Respectful engagement of Indigenous peoples in a pan-Canadian kidney research network

• Main Author: Settee, Craig
• Format: Other/Unknown Material
• Language: English
• Published: Morressier 2017
• Subjects: edu; demo; Canada; anishina*
• Online Access: https://doi.org/10.26226/morressier.5d5ec39e5c54eaf9e00b3bdf; https://openresearchlibrary.org/ext/api/media/352f1364-3398-47b1-a1a1-ec34dcd21be3/assets/external_content.pdf; https://openresearchlibrary.org/viewer/352f1364-3398-47b1-a1a1-ec34dcd21be3

IntroductionKidney disease has a strong and disproportionate impact on the health of Indigenous communities in Canada. Therefore, a national strategy to improve kidney health must include meaningful, culturally appropriate engagement with Indigenous peoples. The Can-SOLVE CKD Network is a pan-Canadian patient-oriented kidney research initiative that is working to improve the health of all Canadians and bring Indigenous ways of knowing into health research. MethodsAs part of the Can-SOLVE CKD Network, Indigenous patients, caregivers, researchers, and community leaders created an Indigenous Peoplesu2019 Engagement and Research Council (IPERC). This council sits at the centre of the network and supports collaboration grounded in traditional values and partnerships with Indigenous peoples and communities. Using an ethical framework that encompasses the principles of ownership, control, access and possession and the elements of participatory research, IPERC is mandated to guide Can-SOLVE CKD research projects in respectful engagement of Indigenous communities. A key component of this work is the creation of a new training pathway, Wabishki Bizhiko Skaanj (u201cWhite Horseu201d in Anishinaabe), that will help researchers and patient partners build respectful partnerships with Indigenous peoples in health research. Wabishki Bizhiko Skaanj aims to enhance researchersu2019 knowledge of racial biases, Indigenous voices and stories, the impact of colonization, and culturally safe health research practices. Its objectives are closely aligned with those of the Can-SOLVE CKD Network. Participants are encouraged to look, listen, learn, and lead their way along the pathway by examining racial identities, privileges, and biases, as well as participating in interactive learning exercises, facilitated online modules and webinars. The Wabishki Bizhiko Skaanj learning pathway includes a focus on Indigenous Elders in research, including the role of Elders and how to foster meaningful and reciprocal relationships between researchers ...