The impact of a web-based educational and support intervention on parents' perception of their children's cancer quality of life: an exploratory study.

To access publisher's full text version of this article click on the hyperlink at the bottom of the page The purpose of this exploratory study was to (1) describe the development of an evidence-based web educational and support intervention for families of children with cancer and (2) assess th...

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Bibliographic Details
Published in:Journal of Pediatric Oncology Nursing
Main Authors: Sigurdardottir, Anna Olafia, Svavarsdottir, Erla Kolbrun, Rayens, Mary Kay, Gokun, Yevgeniya
Other Authors: Landspitali Natl Univ Hosp Iceland, IS-101 Reykjavik, Iceland, Univ Iceland, Fac Nursing, Sch Hlth Sci, Reykjavik, Iceland, Univ Kentucky, Coll Nursing, Lexington, KY USA, Univ Kentucky, Coll Publ Hlth, Lexington, KY USA
Format: Article in Journal/Newspaper
Language:English
Published: SAGE Publications Inc 2014
Subjects:
Krabbamein
Krabbameinssjúklingar
Börn
Foreldrar
Krabbameinshjúkrun
Fræðsluefni
Kennsluaðferðir
Professional-Family Relations
Child
Preschool
Family/education
Parenting/psychology
Pediatrics*/education
Neoplasms/nursing
Quality of Life
Adult
Humans
Internet*
Neoplasms/physiopathology*
Neoplasms/psychology
Parents/psychology*
Iceland
Online Access:http://hdl.handle.net/2336/326047
https://doi.org/10.1177/1043454213515334
Description
Summary:To access publisher's full text version of this article click on the hyperlink at the bottom of the page The purpose of this exploratory study was to (1) describe the development of an evidence-based web educational and support intervention for families of children with cancer and (2) assess the favorability of the website, and whether there was any impact on the cancer communication aspect of the quality of life instrument. In the study, 38 persons participated-15 mothers, 12 fathers, and 11 children. The favorability score of the website was found to be very high. The mothers rated the website most favorable, followed closely by the fathers. Furthermore, even though it was not significant, an increase was found in the mothers' evaluation of cancer communication based on the Pediatric Quality of Life Questionnaire (PedsQL) after the intervention as compared with before. The findings suggest that the use of an evidence-based website is feasible, appears to enhance cancer knowledge and might, in that way, contribute to better management of the cancer situation for the families. Research Fund of the National University Hospital in Iceland Science Fund of the Icelandic Nurse's Association Fund of Kristin Bjornsdottir at the Icelandic Cancer Society

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