SOCIETY AND GENETIC INFORMATION: CODES AND LAWS IN THE GENETIC ERA

• Main Author: Sándor, Judit, ed.
• Language: English
• Published: 2003
• Subjects: Genetic Information; Laws; Religious Ethics; Science; Technology; and Society; Codes of / Position Statements on Professional Ethics; Confidentiality; Genetics; Molecular Biology and Microbiology; Genetic Screening / Genetic Testing; Gene Therapy / Gene Transfer; Eugenics; Genome Mapping; Genetics and Human Ancestry; International and Political Dimensions of Biology and Medicine; Information Science Ethics; Research on Embryos and Fetuses; Economics of Health Care; Health Care for Newborns and Minors; Doyle; Sheila; Iceland
• Online Access: http://hdl.handle.net/10822/547494

About the authors -- List of tables and figures -- List of abbreviations -- Preface / Octavi Quintana-Trias -- Introduction -- Ch. 1. Genetic information: science, society, and legal norms / Judit Sándor -- Pt. I. Genetic information and biomedical science -- Ch. 2. Genetic revolution? consequences for science and society / Pál Venetianer -- Ch. 3. What can we do with our genetic knowledge? / István Raskó -- Pt. II. Genetic information: ethical and cultural aspects -- Ch. 4. Religious traditions and stem cell research / Béla Somfai -- Ch. 5. Moral dilemmas of gene transfer techniques / Imre Szebik -- Pt. III. Law in the genetic era -- Ch. 6. Seeking common grounds on genetic issues: the UNESCO declaration on the human genome / Roberto Andorno -- Ch. 7. Who owns genetic information? / David Townend -- Ch. 8. The genetic testing of children / Sheila McLean -- Ch. 9. A disability rights approach to genetic discrimination / Gregor Wolbring -- Ch. 10. Insurance and genetic testing in Germany and the international context / Jürgen Simon -- Pt. IV. Genetic databanks -- Ch. 11. The constitutionality of the Icelandic act on a health sector database / Ragnar Adalsteinsson -- Ch. 12. The Estonian genome project / Krista Kruuv and Ants Nomper -- Ch. 13. The Latvian genome project / Valdis Pirags and Elmars Grens -- Ch. 14. Population genome project in Latvia: exploring the articulation of agency / Aivita Putnina -- Ch. 15. The UK biobank / Alan Doyle, Frances Rawle, and Peter Greenaway -- Appendix -- Legal and ethical norms in the field of genetics -- A selection of international and national legal documents, reports, and policy recommendations -- Universal Declaration on the Human Genome and Human Rights (UNESCO, 1997) -- International Declaration on Human Genetic Data (UNESCO, 2003) -- Convention on Human Rights and Biomedicine (Council of Europe, 1997) -- Additional protocol on the Prohibition of Cloning Human Beings (Council of Europe, 1998) -- European Biotechnological Directive (European Parliament and the Council of Europe, 1998) -- Health Sector Database Act (Iceland, 1998) -- Biobanks Act (Iceland, 2000) -- Human Genes Research Act (Estonia, 2001) -- Human Genome Research Act (Latvia, 2003) -- Bibliography -- Index