Summary: | About the authors -- List of tables and figures -- List of abbreviations -- Preface / Octavi Quintana-Trias -- Introduction -- Ch. 1. Genetic information: science, society, and legal norms / Judit Sándor -- Pt. I. Genetic information and biomedical science -- Ch. 2. Genetic revolution? consequences for science and society / Pál Venetianer -- Ch. 3. What can we do with our genetic knowledge? / István Raskó -- Pt. II. Genetic information: ethical and cultural aspects -- Ch. 4. Religious traditions and stem cell research / Béla Somfai -- Ch. 5. Moral dilemmas of gene transfer techniques / Imre Szebik -- Pt. III. Law in the genetic era -- Ch. 6. Seeking common grounds on genetic issues: the UNESCO declaration on the human genome / Roberto Andorno -- Ch. 7. Who owns genetic information? / David Townend -- Ch. 8. The genetic testing of children / Sheila McLean -- Ch. 9. A disability rights approach to genetic discrimination / Gregor Wolbring -- Ch. 10. Insurance and genetic testing in Germany and the international context / Jürgen Simon -- Pt. IV. Genetic databanks -- Ch. 11. The constitutionality of the Icelandic act on a health sector database / Ragnar Adalsteinsson -- Ch. 12. The Estonian genome project / Krista Kruuv and Ants Nomper -- Ch. 13. The Latvian genome project / Valdis Pirags and Elmars Grens -- Ch. 14. Population genome project in Latvia: exploring the articulation of agency / Aivita Putnina -- Ch. 15. The UK biobank / Alan Doyle, Frances Rawle, and Peter Greenaway -- Appendix -- Legal and ethical norms in the field of genetics -- A selection of international and national legal documents, reports, and policy recommendations -- Universal Declaration on the Human Genome and Human Rights (UNESCO, 1997) -- International Declaration on Human Genetic Data (UNESCO, 2003) -- Convention on Human Rights and Biomedicine (Council of Europe, 1997) -- Additional protocol on the Prohibition of Cloning Human Beings (Council of Europe, 1998) -- European Biotechnological Directive (European Parliament and the Council of Europe, 1998) -- Health Sector Database Act (Iceland, 1998) -- Biobanks Act (Iceland, 2000) -- Human Genes Research Act (Estonia, 2001) -- Human Genome Research Act (Latvia, 2003) -- Bibliography -- Index
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