Forming a consensus opinion to inform long COVID support mechanisms and interventions: a modified Delphi approachResearch in context

• Published in: eClinicalMedicine
• Main Authors: Rebecca Owen, Ruth E.M. Ashton, Francesco V. Ferraro, Lindsay Skipper, Tom Bewick, Paul Leighton, Bethan E. Phillips, Mark A. Faghy
• Format: Article in Journal/Newspaper
• Language: English
• Published: Elsevier 2023
• Subjects: COVID-19; Long COVID; Lived experience; Global health; Quality of life; Functional status; Medicine (General); R5-920; Canada; Norway; Iceland
• Online Access: https://doi.org/10.1016/j.eclinm.2023.102145; https://doaj.org/article/a654828a471546b39de841fa6e1e3577

Summary: Background: Current approaches to support patients living with post-COVID condition, also known as Long COVID, are highly disparate with limited success in managing or resolving a well-documented and long-standing symptom burden. With approximately 2.1 million people living with the condition in the UK alone and millions more worldwide, there is a desperate need to devise support strategies and interventions for patients. Methods: A three-round Delphi consensus methodology was distributed internationally using an online survey and was completed by healthcare professionals (including clinicians, physiotherapists, and general practitioners), people with long COVID, and long COVID academic researchers (round 1 n = 273, round 2 n = 186, round 3 n = 138). Across the three rounds, respondents were located predominantly in the United Kingdom (UK), with 17.3–15.2% (round 1, n = 47; round 2 n = 32, round 2 n = 21) of respondents located elsewhere (United States of America (USA), Austria, Malta, United Arab Emirates (UAE), Finland, Norway, Malta, Netherlands, Iceland, Canada, Tunisie, Brazil, Hungary, Greece, France, Austrailia, South Africa, Serbia, and India). Respondents were given ∼5 weeks to complete the survey following enrolment, with round one taking place from 02/15/2022 to 03/28/22, round two; 05/09/2022 to 06/26/2022, and round 3; 07/14/2022 to 08/09/2022. A 5-point Likert scale of agreement was used and the opportunity to include free text responses was provided in the first round. Findings: Fifty-five statements reached consensus (defined as >80% agree and strongly agree), across the domains of i) long COVID as a condition, ii) current support and care available for long COVID, iii) clinical assessments for long COVID, and iv) support mechanisms and rehabilitation interventions for long COVID, further sub-categorised by consideration, inclusion, and focus. Consensus reached proposes that long COVID requires specialised, comprehensive support mechanisms and that interventions should form a ...