A standardized clinical database for research in Chagas disease: The NHEPACHA network.

The NHEPACHA Iberoamerican Network, founded on the initiative of a group of researchers from Latin American countries and Spain, aims to establish a research framework for Chagas disease that encompasses diagnosis and treatment. For this purpose, the network has created a questionnaire to gather rel...

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Bibliographic Details
Published in:PLOS Neglected Tropical Diseases
Main Authors: Adriana González Martínez, Irene Losada-Galván, Juan Carlos Gabaldón-Figueira, Nieves Martínez-Peinado, Roberto Magalhães Saraiva, Marisa Liliana Fernández, Janine M Ramsey, Oscar Noya-González, Belkisyole Alarcón de Noya, Alejandro Gabriel Schijman, Soledad Berón, Marcelo Abril, Joaquim Gascón, Sergio Sosa-Estani, María Jesús Pinazo, Julio Alonso-Padilla, Alejandro Marcel Hasslocher-Moreno
Format: Article in Journal/Newspaper
Language:English
Published: Public Library of Science (PLoS) 2024
Subjects:
Arctic medicine. Tropical medicine
RC955-962
Public aspects of medicine
RA1-1270
Arctic
Online Access:https://doi.org/10.1371/journal.pntd.0012364
https://doaj.org/article/57de3893f01f4537ae8dd4c2298cb661
Description
Summary:The NHEPACHA Iberoamerican Network, founded on the initiative of a group of researchers from Latin American countries and Spain, aims to establish a research framework for Chagas disease that encompasses diagnosis and treatment. For this purpose, the network has created a questionnaire to gather relevant data on epidemiological, clinical, diagnostic, and therapeutic aspects of the disease. This questionnaire was developed based on a consensus of expert members of the network, with the intention of collecting high-quality standardized data, which can be used interchangeably by the different research centers that make up the NHEPACHA network. Furthermore, the network intends to offer a clinical protocol that can be embraced by other researchers, facilitating comparability among published studies, as well as the development of therapeutic response and progression markers.

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