Tailoring and field-testing the use of a knowledge translation peer support shared decision making strategy with First Nations, Inuit and Métis people making decisions about their cancer care: a study protocol

• Published in: Research Involvement and Engagement
• Main Authors: Janet Jull, Maegan Mazereeuw, Amanada Sheppard, Alethea Kewayosh, Richard Steiner, Ian D. Graham
• Format: Article in Journal/Newspaper
• Language: English
• Published: BMC 2018
• Subjects: First Nations; Inuit and Métis people; Shared decision making; Decision coaching; Peer support; Integrated knowledge translation; Cancer care; Medicine; R; Medicine (General); R5-920; inuit
• Online Access: https://doi.org/10.1186/s40900-018-0085-3; https://doaj.org/article/13dffb161ae04d9dbab4be2103637b13

Plain English summary Tailoring and testing a peer support decision making strategy with First Nations, Inuit and Métis people making decisions about their cancer care: A study protocol. First Nations, Inuit and Métis (FNIM) people face higher risks for cancer compared to non-FNIM populations. They also face cultural barriers to health service use. Within non-FNIM populations an approach to health decision making, called shared decision making (SDM), has been found to improve the participation of people in their healthcare. Peer support with SDM further improves these benefits. The purpose of this study is to tailor and test a peer support SDM strategy with community support workers to increase FNIM people’s participation in their cancer care. This project has two phases that will be designed and conducted with a Steering Committee that includes members of the FNIM and cancer care communities. First, a peer support SDM strategy will be tailored to meet the needs of cancer system users who are receiving care in urban settings, and training in the SDM strategy developed for community support workers. Three communities will be supported for participation in the study and community support workers who are peers from each community will be trained to use the SDM strategy. Next, each community support worker will work with a community member who has a diagnosis of cancer or who has supported a family member with cancer. Each community support worker and community member pair will use the SDM strategy. The participation and experience of the community support worker and community member will be evaluated. The research will be used to develop strategies to support people who are making decisions about their health. Abstract Tailoring and field-testing the use of a knowledge translation peer support shared decision making strategy with First Nations, Inuit and Métis people making decisions about their cancer care: A study protocol Background First Nations, Inuit and Métis (“FNIM”) people face increased cancer risks in ...