Partnering with First Nations in Northern British Columbia Canada to Reduce Inequity in Access to Genomic Research ...
Indigenous-led, culturally safe health research and infrastructure are essential to address existing inequities and disparities for Indigenous Peoples globally. Biobanking, genomic research, and self-governance could reduce the existing divide and increase Indigenous participation in health research...
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2023
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ftdatacite:10.14288/1.0437655 2024-04-28T08:18:50+00:00 Partnering with First Nations in Northern British Columbia Canada to Reduce Inequity in Access to Genomic Research ... Caron, Nadine R. Adam, Wilf Anderson, Kate Boswell, Brooke T. Chongo, Meck Deineko, Viktor Dick, Alexanne Hall, Shannon E. Hatcher, Jessica T. Howard, Patricia Hunt, Megan Linn, Kevin O’Neill, Ashling 2023 https://dx.doi.org/10.14288/1.0437655 https://doi.library.ubc.ca/10.14288/1.0437655 en eng Multidisciplinary Digital Publishing Institute https://dx.doi.org/10.3390/ijerph20105783 article-journal Text ScholarlyArticle 2023 ftdatacite https://doi.org/10.14288/1.043765510.3390/ijerph20105783 2024-04-02T09:54:43Z Indigenous-led, culturally safe health research and infrastructure are essential to address existing inequities and disparities for Indigenous Peoples globally. Biobanking, genomic research, and self-governance could reduce the existing divide and increase Indigenous participation in health research. While genomic research advances medicine, barriers persist for Indigenous patients to benefit. In northern BC, Canada, the Northern Biobank Initiative (NBI), with guidance from a Northern First Nations Biobank Advisory Committee (NFNBAC), has engaged in consultations with First Nations on biobanking and genomic research. Key informant interviews and focus groups conducted with First Nations leaders, Elders, Knowledge Keepers, and community members established culturally safe ways of biobanking and exploring genomic research. Strong support for a Northern British Columbia First Nations Biobank (NBCFNB) that will promote choice, inclusion, and access to health research opportunities emerged. The acceptance and ... Text First Nations DataCite Metadata Store (German National Library of Science and Technology) |
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Indigenous-led, culturally safe health research and infrastructure are essential to address existing inequities and disparities for Indigenous Peoples globally. Biobanking, genomic research, and self-governance could reduce the existing divide and increase Indigenous participation in health research. While genomic research advances medicine, barriers persist for Indigenous patients to benefit. In northern BC, Canada, the Northern Biobank Initiative (NBI), with guidance from a Northern First Nations Biobank Advisory Committee (NFNBAC), has engaged in consultations with First Nations on biobanking and genomic research. Key informant interviews and focus groups conducted with First Nations leaders, Elders, Knowledge Keepers, and community members established culturally safe ways of biobanking and exploring genomic research. Strong support for a Northern British Columbia First Nations Biobank (NBCFNB) that will promote choice, inclusion, and access to health research opportunities emerged. The acceptance and ... |
format |
Text |
author |
Caron, Nadine R. Adam, Wilf Anderson, Kate Boswell, Brooke T. Chongo, Meck Deineko, Viktor Dick, Alexanne Hall, Shannon E. Hatcher, Jessica T. Howard, Patricia Hunt, Megan Linn, Kevin O’Neill, Ashling |
spellingShingle |
Caron, Nadine R. Adam, Wilf Anderson, Kate Boswell, Brooke T. Chongo, Meck Deineko, Viktor Dick, Alexanne Hall, Shannon E. Hatcher, Jessica T. Howard, Patricia Hunt, Megan Linn, Kevin O’Neill, Ashling Partnering with First Nations in Northern British Columbia Canada to Reduce Inequity in Access to Genomic Research ... |
author_facet |
Caron, Nadine R. Adam, Wilf Anderson, Kate Boswell, Brooke T. Chongo, Meck Deineko, Viktor Dick, Alexanne Hall, Shannon E. Hatcher, Jessica T. Howard, Patricia Hunt, Megan Linn, Kevin O’Neill, Ashling |
author_sort |
Caron, Nadine R. |
title |
Partnering with First Nations in Northern British Columbia Canada to Reduce Inequity in Access to Genomic Research ... |
title_short |
Partnering with First Nations in Northern British Columbia Canada to Reduce Inequity in Access to Genomic Research ... |
title_full |
Partnering with First Nations in Northern British Columbia Canada to Reduce Inequity in Access to Genomic Research ... |
title_fullStr |
Partnering with First Nations in Northern British Columbia Canada to Reduce Inequity in Access to Genomic Research ... |
title_full_unstemmed |
Partnering with First Nations in Northern British Columbia Canada to Reduce Inequity in Access to Genomic Research ... |
title_sort |
partnering with first nations in northern british columbia canada to reduce inequity in access to genomic research ... |
publisher |
Multidisciplinary Digital Publishing Institute |
publishDate |
2023 |
url |
https://dx.doi.org/10.14288/1.0437655 https://doi.library.ubc.ca/10.14288/1.0437655 |
genre |
First Nations |
genre_facet |
First Nations |
op_relation |
https://dx.doi.org/10.3390/ijerph20105783 |
op_doi |
https://doi.org/10.14288/1.043765510.3390/ijerph20105783 |
_version_ |
1797582612006436864 |