Partnering with First Nations in Northern British Columbia Canada to Reduce Inequity in Access to Genomic Research ...

• Main Authors: Caron, Nadine R., Adam, Wilf, Anderson, Kate, Boswell, Brooke T., Chongo, Meck, Deineko, Viktor, Dick, Alexanne, Hall, Shannon E., Hatcher, Jessica T., Howard, Patricia, Hunt, Megan, Linn, Kevin, O’Neill, Ashling
• Format: Text
• Language: English
• Published: Multidisciplinary Digital Publishing Institute 2023
• Subjects: First Nations
• Online Access: https://dx.doi.org/10.14288/1.0437655; https://doi.library.ubc.ca/10.14288/1.0437655

Indigenous-led, culturally safe health research and infrastructure are essential to address existing inequities and disparities for Indigenous Peoples globally. Biobanking, genomic research, and self-governance could reduce the existing divide and increase Indigenous participation in health research. While genomic research advances medicine, barriers persist for Indigenous patients to benefit. In northern BC, Canada, the Northern Biobank Initiative (NBI), with guidance from a Northern First Nations Biobank Advisory Committee (NFNBAC), has engaged in consultations with First Nations on biobanking and genomic research. Key informant interviews and focus groups conducted with First Nations leaders, Elders, Knowledge Keepers, and community members established culturally safe ways of biobanking and exploring genomic research. Strong support for a Northern British Columbia First Nations Biobank (NBCFNB) that will promote choice, inclusion, and access to health research opportunities emerged. The acceptance and ...