The Role of Patient Advisory Councils in Health Research: Lessons From Two Provincial Councils in Canada
This article describes two patient advisory councils (PACs) in Canada in order to contribute to the limited evidence base on how they might facilitate patient engagement in health research. Specifically, members of PACs from Newfoundland and Labrador and Alberta describe their councils’ governance s...
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crsagepubl:10.1177/2374373520909598 2024-09-09T19:53:41+00:00 The Role of Patient Advisory Councils in Health Research: Lessons From Two Provincial Councils in Canada Warren, Mike Leamon, Toni Hall, Amanda Twells, Laurie Street, Catherine Stordy, Allan Majumdar, Kakali Breault, Lorraine Fiest, Kirsten Rasiah, Jananee Santana, Maria Etchegary, Holly 2020 http://dx.doi.org/10.1177/2374373520909598 http://journals.sagepub.com/doi/pdf/10.1177/2374373520909598 http://journals.sagepub.com/doi/full-xml/10.1177/2374373520909598 en eng SAGE Publications https://creativecommons.org/licenses/by-nc/4.0/ Journal of Patient Experience volume 7, issue 6, page 898-905 ISSN 2374-3735 2374-3743 journal-article 2020 crsagepubl https://doi.org/10.1177/2374373520909598 2024-08-19T04:28:27Z This article describes two patient advisory councils (PACs) in Canada in order to contribute to the limited evidence base on how they might facilitate patient engagement in health research. Specifically, members of PACs from Newfoundland and Labrador and Alberta describe their councils’ governance structure, primary functions, creation and composition, and recount specific research-related activities with which they have been involved. Key challenges of these councils and facilitators of their use are also presented. Finally, members from both councils recount lessons learned and offer suggestions for others interested in advisory councils as a mechanism for patient engagement in any health research project. Members believe patient engagement can result in better quality research and encourage decision makers and researchers to utilize patients’ valuable input to inform health system changes and drive priorities at a policy level. Article in Journal/Newspaper Newfoundland SAGE Publications Canada Newfoundland Journal of Patient Experience 7 6 898 905 |
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SAGE Publications |
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crsagepubl |
language |
English |
description |
This article describes two patient advisory councils (PACs) in Canada in order to contribute to the limited evidence base on how they might facilitate patient engagement in health research. Specifically, members of PACs from Newfoundland and Labrador and Alberta describe their councils’ governance structure, primary functions, creation and composition, and recount specific research-related activities with which they have been involved. Key challenges of these councils and facilitators of their use are also presented. Finally, members from both councils recount lessons learned and offer suggestions for others interested in advisory councils as a mechanism for patient engagement in any health research project. Members believe patient engagement can result in better quality research and encourage decision makers and researchers to utilize patients’ valuable input to inform health system changes and drive priorities at a policy level. |
format |
Article in Journal/Newspaper |
author |
Warren, Mike Leamon, Toni Hall, Amanda Twells, Laurie Street, Catherine Stordy, Allan Majumdar, Kakali Breault, Lorraine Fiest, Kirsten Rasiah, Jananee Santana, Maria Etchegary, Holly |
spellingShingle |
Warren, Mike Leamon, Toni Hall, Amanda Twells, Laurie Street, Catherine Stordy, Allan Majumdar, Kakali Breault, Lorraine Fiest, Kirsten Rasiah, Jananee Santana, Maria Etchegary, Holly The Role of Patient Advisory Councils in Health Research: Lessons From Two Provincial Councils in Canada |
author_facet |
Warren, Mike Leamon, Toni Hall, Amanda Twells, Laurie Street, Catherine Stordy, Allan Majumdar, Kakali Breault, Lorraine Fiest, Kirsten Rasiah, Jananee Santana, Maria Etchegary, Holly |
author_sort |
Warren, Mike |
title |
The Role of Patient Advisory Councils in Health Research: Lessons From Two Provincial Councils in Canada |
title_short |
The Role of Patient Advisory Councils in Health Research: Lessons From Two Provincial Councils in Canada |
title_full |
The Role of Patient Advisory Councils in Health Research: Lessons From Two Provincial Councils in Canada |
title_fullStr |
The Role of Patient Advisory Councils in Health Research: Lessons From Two Provincial Councils in Canada |
title_full_unstemmed |
The Role of Patient Advisory Councils in Health Research: Lessons From Two Provincial Councils in Canada |
title_sort |
role of patient advisory councils in health research: lessons from two provincial councils in canada |
publisher |
SAGE Publications |
publishDate |
2020 |
url |
http://dx.doi.org/10.1177/2374373520909598 http://journals.sagepub.com/doi/pdf/10.1177/2374373520909598 http://journals.sagepub.com/doi/full-xml/10.1177/2374373520909598 |
geographic |
Canada Newfoundland |
geographic_facet |
Canada Newfoundland |
genre |
Newfoundland |
genre_facet |
Newfoundland |
op_source |
Journal of Patient Experience volume 7, issue 6, page 898-905 ISSN 2374-3735 2374-3743 |
op_rights |
https://creativecommons.org/licenses/by-nc/4.0/ |
op_doi |
https://doi.org/10.1177/2374373520909598 |
container_title |
Journal of Patient Experience |
container_volume |
7 |
container_issue |
6 |
container_start_page |
898 |
op_container_end_page |
905 |
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1809923142067421184 |