The Role of Patient Advisory Councils in Health Research: Lessons From Two Provincial Councils in Canada

This article describes two patient advisory councils (PACs) in Canada in order to contribute to the limited evidence base on how they might facilitate patient engagement in health research. Specifically, members of PACs from Newfoundland and Labrador and Alberta describe their councils’ governance s...

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Bibliographic Details
Published in:Journal of Patient Experience
Main Authors: Warren, Mike, Leamon, Toni, Hall, Amanda, Twells, Laurie, Street, Catherine, Stordy, Allan, Majumdar, Kakali, Breault, Lorraine, Fiest, Kirsten, Rasiah, Jananee, Santana, Maria, Etchegary, Holly
Format: Article in Journal/Newspaper
Language:English
Published: SAGE Publications 2020
Subjects:
Newfoundland
Online Access:http://dx.doi.org/10.1177/2374373520909598
http://journals.sagepub.com/doi/pdf/10.1177/2374373520909598
http://journals.sagepub.com/doi/full-xml/10.1177/2374373520909598
Description
Summary:This article describes two patient advisory councils (PACs) in Canada in order to contribute to the limited evidence base on how they might facilitate patient engagement in health research. Specifically, members of PACs from Newfoundland and Labrador and Alberta describe their councils’ governance structure, primary functions, creation and composition, and recount specific research-related activities with which they have been involved. Key challenges of these councils and facilitators of their use are also presented. Finally, members from both councils recount lessons learned and offer suggestions for others interested in advisory councils as a mechanism for patient engagement in any health research project. Members believe patient engagement can result in better quality research and encourage decision makers and researchers to utilize patients’ valuable input to inform health system changes and drive priorities at a policy level.

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