Indigenous Engagement in Health Research in Circumpolar Countries: An Analysis of Existing Ethical Guidelines
In this paper, we review existing ethical guidelines that support Circumpolar Indigenous Peoples’ engagement in health research. For this study, we collated national and regional ethical guidelines addressing health research engaging with Indigenous communities. Our study found that ethical guidelin...
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ftunivwontaojs:oai:ojs.uwo.ca:article/10928 2023-05-15T14:55:04+02:00 Indigenous Engagement in Health Research in Circumpolar Countries: An Analysis of Existing Ethical Guidelines Lavoie, Josée Stoor, Jon Petter Cueva, Katie Healey Akearok, Gwen Rink, Elizabeth Viskum Lytken Larsen, Christina Gladun, Elena 2022-07-03 application/pdf https://ojs.lib.uwo.ca/index.php/iipj/article/view/10928 eng eng Western University https://ojs.lib.uwo.ca/index.php/iipj/article/view/10928/11824 https://ojs.lib.uwo.ca/index.php/iipj/article/view/10928 Copyright (c) 2022 Josée Lavoie, Jon Petter Stoor, Katie Cueva, Gwen Healey Akearok, Elizabeth Rink, Christina Viskum Lytken Larsen, Elena Gladun https://creativecommons.org/licenses/by-nc-nd/4.0 CC-BY-NC-ND The International Indigenous Policy Journal; Vol. 13 No. 1 (2022) International Indigenous Policy Journal; Vol. 13 No. 1 (2022) 1916-5781 American Indians Alaska Natives Sāmi First Nations Aboriginal peoples Arctic partnership Canada United States Greenland Denmark Finland Norway Sweden Russia info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion research-article N/A 2022 ftunivwontaojs 2023-02-05T19:15:52Z In this paper, we review existing ethical guidelines that support Circumpolar Indigenous Peoples’ engagement in health research. For this study, we collated national and regional ethical guidelines addressing health research engaging with Indigenous communities. Our study found that ethical guidelines addressing Indigenous engagement in health research have emerged in Canada and the U.S.A. Currently, there are no Indigenous-specific provisions in national guidelines, or legislation concerning health research engaging Indigenous peoples, in Denmark, Finland, Greenland, Norway, Sweden, or Russia. Where guidelines exist, they show considerable variations. We conclude that guidelines are essential to ensure that research undertaken in Indigenous communities is relevant and beneficial to those communities, is conducted respectfully, and that results are appropriately contextualized and accurate. We believe that our analysis might serve as a checklist to support the development of comprehensive guidelines developed by, or at least in partnership with, Arctic Indigenous communities. Article in Journal/Newspaper Arctic First Nations Greenland Alaska Western Libraries OJS Arctic Canada Greenland Norway |
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Open Polar |
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Western Libraries OJS |
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ftunivwontaojs |
language |
English |
topic |
American Indians Alaska Natives Sāmi First Nations Aboriginal peoples Arctic partnership Canada United States Greenland Denmark Finland Norway Sweden Russia |
spellingShingle |
American Indians Alaska Natives Sāmi First Nations Aboriginal peoples Arctic partnership Canada United States Greenland Denmark Finland Norway Sweden Russia Lavoie, Josée Stoor, Jon Petter Cueva, Katie Healey Akearok, Gwen Rink, Elizabeth Viskum Lytken Larsen, Christina Gladun, Elena Indigenous Engagement in Health Research in Circumpolar Countries: An Analysis of Existing Ethical Guidelines |
topic_facet |
American Indians Alaska Natives Sāmi First Nations Aboriginal peoples Arctic partnership Canada United States Greenland Denmark Finland Norway Sweden Russia |
description |
In this paper, we review existing ethical guidelines that support Circumpolar Indigenous Peoples’ engagement in health research. For this study, we collated national and regional ethical guidelines addressing health research engaging with Indigenous communities. Our study found that ethical guidelines addressing Indigenous engagement in health research have emerged in Canada and the U.S.A. Currently, there are no Indigenous-specific provisions in national guidelines, or legislation concerning health research engaging Indigenous peoples, in Denmark, Finland, Greenland, Norway, Sweden, or Russia. Where guidelines exist, they show considerable variations. We conclude that guidelines are essential to ensure that research undertaken in Indigenous communities is relevant and beneficial to those communities, is conducted respectfully, and that results are appropriately contextualized and accurate. We believe that our analysis might serve as a checklist to support the development of comprehensive guidelines developed by, or at least in partnership with, Arctic Indigenous communities. |
format |
Article in Journal/Newspaper |
author |
Lavoie, Josée Stoor, Jon Petter Cueva, Katie Healey Akearok, Gwen Rink, Elizabeth Viskum Lytken Larsen, Christina Gladun, Elena |
author_facet |
Lavoie, Josée Stoor, Jon Petter Cueva, Katie Healey Akearok, Gwen Rink, Elizabeth Viskum Lytken Larsen, Christina Gladun, Elena |
author_sort |
Lavoie, Josée |
title |
Indigenous Engagement in Health Research in Circumpolar Countries: An Analysis of Existing Ethical Guidelines |
title_short |
Indigenous Engagement in Health Research in Circumpolar Countries: An Analysis of Existing Ethical Guidelines |
title_full |
Indigenous Engagement in Health Research in Circumpolar Countries: An Analysis of Existing Ethical Guidelines |
title_fullStr |
Indigenous Engagement in Health Research in Circumpolar Countries: An Analysis of Existing Ethical Guidelines |
title_full_unstemmed |
Indigenous Engagement in Health Research in Circumpolar Countries: An Analysis of Existing Ethical Guidelines |
title_sort |
indigenous engagement in health research in circumpolar countries: an analysis of existing ethical guidelines |
publisher |
Western University |
publishDate |
2022 |
url |
https://ojs.lib.uwo.ca/index.php/iipj/article/view/10928 |
geographic |
Arctic Canada Greenland Norway |
geographic_facet |
Arctic Canada Greenland Norway |
genre |
Arctic First Nations Greenland Alaska |
genre_facet |
Arctic First Nations Greenland Alaska |
op_source |
The International Indigenous Policy Journal; Vol. 13 No. 1 (2022) International Indigenous Policy Journal; Vol. 13 No. 1 (2022) 1916-5781 |
op_relation |
https://ojs.lib.uwo.ca/index.php/iipj/article/view/10928/11824 https://ojs.lib.uwo.ca/index.php/iipj/article/view/10928 |
op_rights |
Copyright (c) 2022 Josée Lavoie, Jon Petter Stoor, Katie Cueva, Gwen Healey Akearok, Elizabeth Rink, Christina Viskum Lytken Larsen, Elena Gladun https://creativecommons.org/licenses/by-nc-nd/4.0 |
op_rightsnorm |
CC-BY-NC-ND |
_version_ |
1766326861449658368 |