Data from national health registers as endpoints for the Tromsø Study: Correctness and completeness of stroke diagnoses
Aim: To assess whether stroke diagnoses in national health registers are sufficiently correct and complete to replace manual collection of endpoint data for the Tromsø Study, a population-based epidemiological study. Method: Using the Tromsø Study Cardiovascular Disease Register for 2013–2014 as the...
Published in: | Scandinavian Journal of Public Health |
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Online Access: | https://hdl.handle.net/10037/22038 https://doi.org/10.1177/14034948211021191 |
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ftunivtroemsoe:oai:munin.uit.no:10037/22038 2023-05-15T18:34:17+02:00 Data from national health registers as endpoints for the Tromsø Study: Correctness and completeness of stroke diagnoses Varmdal, Torunn Løchen, Maja-Lisa Wilsgaard, Tom Njølstad, Inger Nyrnes, Audhild Grimsgaard, Sameline Mathiesen, Ellisiv B. 2021-06-14 https://hdl.handle.net/10037/22038 https://doi.org/10.1177/14034948211021191 eng eng SAGE Publications Scandinavian Journal of Public Health Varmdal T, Løchen M, Wilsgaard T, Njølstad i, Nyrnes A, Grimsgaard sg, Mathiesen EB. Data from national health registers as endpoints for the Tromsø Study: Correctness and completeness of stroke diagnoses. Scandinavian Journal of Public Health. 2021 FRIDAID 1915557 doi:10.1177/14034948211021191 1403-4948 1651-1905 https://hdl.handle.net/10037/22038 openAccess Copyright 2021 The Author(s) VDP::Medical disciplines: 700::Health sciences: 800::Community medicine Social medicine: 801 VDP::Medisinske Fag: 700::Helsefag: 800::Samfunnsmedisin sosialmedisin: 801 Journal article Tidsskriftartikkel Peer reviewed publishedVersion 2021 ftunivtroemsoe https://doi.org/10.1177/14034948211021191 2021-08-18T22:53:41Z Aim: To assess whether stroke diagnoses in national health registers are sufficiently correct and complete to replace manual collection of endpoint data for the Tromsø Study, a population-based epidemiological study. Method: Using the Tromsø Study Cardiovascular Disease Register for 2013–2014 as the gold standard, we calculated correctness (defined as positive predictive value, PPV) and completeness (defined as sensitivity) of stroke cases in four different data subsets derived from the Norwegian Patient Register and the Norwegian Stroke Register. We calculated the sensitivity and PPV with 95% confidence intervals (CIs) assuming a normal approximation of the binomial distribution. Results: In the Norwegian Stroke Register we found a sensitivity of 79.8% (95% CI 74.2–85.4) and a PPV of 97.5% (95% CI 95.1–99.9). In the Norwegian Patient Register the sensitivity was 86.4% (95% CI 81.6–91.1) and the PPV was 84.2% (95% CI 79.2–89.2). The overall highest levels were found in a subset based on a linkage between the Norwegian Stroke Register and the Norwegian Patient Register, with a sensitivity of 88.9% (95% CI 84.5–93.3), and a PPV of 89.3% (95% CI 85.0–93.6). Conclusions: Data from the Norwegian Patient Register and from the linked data set between the Norwegian Patient Register and the Norwegian Stroke Register had acceptable levels of correctness and completeness to be considered as endpoint sources for the Tromsø Study Cardiovascular Disease Register. The benefits of using data from national registers as endpoints in epidemiological studies must be weighed against the impact of potentially decreased data quality. Article in Journal/Newspaper Tromsø University of Tromsø: Munin Open Research Archive Tromsø Scandinavian Journal of Public Health 140349482110211 |
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Open Polar |
collection |
University of Tromsø: Munin Open Research Archive |
op_collection_id |
ftunivtroemsoe |
language |
English |
topic |
VDP::Medical disciplines: 700::Health sciences: 800::Community medicine Social medicine: 801 VDP::Medisinske Fag: 700::Helsefag: 800::Samfunnsmedisin sosialmedisin: 801 |
spellingShingle |
VDP::Medical disciplines: 700::Health sciences: 800::Community medicine Social medicine: 801 VDP::Medisinske Fag: 700::Helsefag: 800::Samfunnsmedisin sosialmedisin: 801 Varmdal, Torunn Løchen, Maja-Lisa Wilsgaard, Tom Njølstad, Inger Nyrnes, Audhild Grimsgaard, Sameline Mathiesen, Ellisiv B. Data from national health registers as endpoints for the Tromsø Study: Correctness and completeness of stroke diagnoses |
topic_facet |
VDP::Medical disciplines: 700::Health sciences: 800::Community medicine Social medicine: 801 VDP::Medisinske Fag: 700::Helsefag: 800::Samfunnsmedisin sosialmedisin: 801 |
description |
Aim: To assess whether stroke diagnoses in national health registers are sufficiently correct and complete to replace manual collection of endpoint data for the Tromsø Study, a population-based epidemiological study. Method: Using the Tromsø Study Cardiovascular Disease Register for 2013–2014 as the gold standard, we calculated correctness (defined as positive predictive value, PPV) and completeness (defined as sensitivity) of stroke cases in four different data subsets derived from the Norwegian Patient Register and the Norwegian Stroke Register. We calculated the sensitivity and PPV with 95% confidence intervals (CIs) assuming a normal approximation of the binomial distribution. Results: In the Norwegian Stroke Register we found a sensitivity of 79.8% (95% CI 74.2–85.4) and a PPV of 97.5% (95% CI 95.1–99.9). In the Norwegian Patient Register the sensitivity was 86.4% (95% CI 81.6–91.1) and the PPV was 84.2% (95% CI 79.2–89.2). The overall highest levels were found in a subset based on a linkage between the Norwegian Stroke Register and the Norwegian Patient Register, with a sensitivity of 88.9% (95% CI 84.5–93.3), and a PPV of 89.3% (95% CI 85.0–93.6). Conclusions: Data from the Norwegian Patient Register and from the linked data set between the Norwegian Patient Register and the Norwegian Stroke Register had acceptable levels of correctness and completeness to be considered as endpoint sources for the Tromsø Study Cardiovascular Disease Register. The benefits of using data from national registers as endpoints in epidemiological studies must be weighed against the impact of potentially decreased data quality. |
format |
Article in Journal/Newspaper |
author |
Varmdal, Torunn Løchen, Maja-Lisa Wilsgaard, Tom Njølstad, Inger Nyrnes, Audhild Grimsgaard, Sameline Mathiesen, Ellisiv B. |
author_facet |
Varmdal, Torunn Løchen, Maja-Lisa Wilsgaard, Tom Njølstad, Inger Nyrnes, Audhild Grimsgaard, Sameline Mathiesen, Ellisiv B. |
author_sort |
Varmdal, Torunn |
title |
Data from national health registers as endpoints for the Tromsø Study: Correctness and completeness of stroke diagnoses |
title_short |
Data from national health registers as endpoints for the Tromsø Study: Correctness and completeness of stroke diagnoses |
title_full |
Data from national health registers as endpoints for the Tromsø Study: Correctness and completeness of stroke diagnoses |
title_fullStr |
Data from national health registers as endpoints for the Tromsø Study: Correctness and completeness of stroke diagnoses |
title_full_unstemmed |
Data from national health registers as endpoints for the Tromsø Study: Correctness and completeness of stroke diagnoses |
title_sort |
data from national health registers as endpoints for the tromsø study: correctness and completeness of stroke diagnoses |
publisher |
SAGE Publications |
publishDate |
2021 |
url |
https://hdl.handle.net/10037/22038 https://doi.org/10.1177/14034948211021191 |
geographic |
Tromsø |
geographic_facet |
Tromsø |
genre |
Tromsø |
genre_facet |
Tromsø |
op_relation |
Scandinavian Journal of Public Health Varmdal T, Løchen M, Wilsgaard T, Njølstad i, Nyrnes A, Grimsgaard sg, Mathiesen EB. Data from national health registers as endpoints for the Tromsø Study: Correctness and completeness of stroke diagnoses. Scandinavian Journal of Public Health. 2021 FRIDAID 1915557 doi:10.1177/14034948211021191 1403-4948 1651-1905 https://hdl.handle.net/10037/22038 |
op_rights |
openAccess Copyright 2021 The Author(s) |
op_doi |
https://doi.org/10.1177/14034948211021191 |
container_title |
Scandinavian Journal of Public Health |
container_start_page |
140349482110211 |
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1766218971717042176 |