Experiences of quality of life the first year after stroke in Denmark and Norway. A qualitative analysis
Purpose : This study aims to explore quality of life (QOL) during the first year of recovery after stroke in North Norway and Central Denmark. Method : Individual in-depth interviews with 11 stroke survivors were performed twelve months after stroke onset. An interpretative, inductive approach shape...
Published in: | International Journal of Qualitative Studies on Health and Well-being |
---|---|
Main Authors: | , , , , , |
Format: | Article in Journal/Newspaper |
Language: | English |
Published: |
Taylor & Francis
2019
|
Subjects: | |
Online Access: | https://hdl.handle.net/10037/16836 https://doi.org/10.1080/17482631.2019.1659540 |
id |
ftunivtroemsoe:oai:munin.uit.no:10037/16836 |
---|---|
record_format |
openpolar |
spelling |
ftunivtroemsoe:oai:munin.uit.no:10037/16836 2023-05-15T17:39:23+02:00 Experiences of quality of life the first year after stroke in Denmark and Norway. A qualitative analysis Pedersen, Synne Garder Anke, Audny Aadal, Lena Pallesen, Hanne Moe, Siri Arntzen, Cathrine 2019-09-24 https://hdl.handle.net/10037/16836 https://doi.org/10.1080/17482631.2019.1659540 eng eng Taylor & Francis International Journal of Qualitative Studies on Health and Well-being Norges forskningsråd: 188932 info:eu-repo/grantAgreement/RCN/HELSEVEL-H/188932/Norway/Senter for omsorgsforskning i region nord, UiT Norges arktiske universitet// Pedersen, Anke, Aadal L, Pallesen H, Moe S, Arntzen C. Experiences of quality of life the first year after stroke in Denmark and Norway. A qualitative analysis. International Journal of Qualitative Studies on Health and Well-being. 2019;14(1):1-14 FRIDAID 1728299 doi:10.1080/17482631.2019.1659540 1748-2623 1748-2631 https://hdl.handle.net/10037/16836 openAccess Fatigue / Fatigue Hjerneslag / Cerebral stroke Livskvaliet / Quality of life Recovery / Recovery Selvet og identitet / Self and identity VDP::Medical disciplines: 700::Health sciences: 800 VDP::Medisinske Fag: 700::Helsefag: 800 Journal article Tidsskriftartikkel Peer reviewed publishedVersion 2019 ftunivtroemsoe https://doi.org/10.1080/17482631.2019.1659540 2021-06-25T17:56:59Z Purpose : This study aims to explore quality of life (QOL) during the first year of recovery after stroke in North Norway and Central Denmark. Method : Individual in-depth interviews with 11 stroke survivors were performed twelve months after stroke onset. An interpretative, inductive approach shaped the interview process and the processing of data. Results : We found that QOL reflected the individuals’ reconstruction of the embodied self, which was identified by three intertwined and negotiating processes: a familiar self, an unfamiliar self, and a recovery of self. Further, we found that reconstruction of the embodied self and QOL could be framed as an ongoing and interrelated process of “ being, doing, belonging and becoming ”. Enriching social relations, successful return to work, and continuity and presence in professional support during recovery enhanced the experience of QOL. Fatigue and sustained reduced function hindered participation in meaningful activities and influenced the perceived QOL negatively. Conclusions : The two countries differed in descriptions of continuity and support in the professional follow-up during the recovery process, influencing the degree of encouragement in reconstructing the embodied self. Reconstruction of the embodied self is a means of understanding stroke survivors’ QOL during the first year of recovery, supporting an individualized and tailored rehabilitation practice. Article in Journal/Newspaper North Norway University of Tromsø: Munin Open Research Archive Norway International Journal of Qualitative Studies on Health and Well-being 14 1 1659540 |
institution |
Open Polar |
collection |
University of Tromsø: Munin Open Research Archive |
op_collection_id |
ftunivtroemsoe |
language |
English |
topic |
Fatigue / Fatigue Hjerneslag / Cerebral stroke Livskvaliet / Quality of life Recovery / Recovery Selvet og identitet / Self and identity VDP::Medical disciplines: 700::Health sciences: 800 VDP::Medisinske Fag: 700::Helsefag: 800 |
spellingShingle |
Fatigue / Fatigue Hjerneslag / Cerebral stroke Livskvaliet / Quality of life Recovery / Recovery Selvet og identitet / Self and identity VDP::Medical disciplines: 700::Health sciences: 800 VDP::Medisinske Fag: 700::Helsefag: 800 Pedersen, Synne Garder Anke, Audny Aadal, Lena Pallesen, Hanne Moe, Siri Arntzen, Cathrine Experiences of quality of life the first year after stroke in Denmark and Norway. A qualitative analysis |
topic_facet |
Fatigue / Fatigue Hjerneslag / Cerebral stroke Livskvaliet / Quality of life Recovery / Recovery Selvet og identitet / Self and identity VDP::Medical disciplines: 700::Health sciences: 800 VDP::Medisinske Fag: 700::Helsefag: 800 |
description |
Purpose : This study aims to explore quality of life (QOL) during the first year of recovery after stroke in North Norway and Central Denmark. Method : Individual in-depth interviews with 11 stroke survivors were performed twelve months after stroke onset. An interpretative, inductive approach shaped the interview process and the processing of data. Results : We found that QOL reflected the individuals’ reconstruction of the embodied self, which was identified by three intertwined and negotiating processes: a familiar self, an unfamiliar self, and a recovery of self. Further, we found that reconstruction of the embodied self and QOL could be framed as an ongoing and interrelated process of “ being, doing, belonging and becoming ”. Enriching social relations, successful return to work, and continuity and presence in professional support during recovery enhanced the experience of QOL. Fatigue and sustained reduced function hindered participation in meaningful activities and influenced the perceived QOL negatively. Conclusions : The two countries differed in descriptions of continuity and support in the professional follow-up during the recovery process, influencing the degree of encouragement in reconstructing the embodied self. Reconstruction of the embodied self is a means of understanding stroke survivors’ QOL during the first year of recovery, supporting an individualized and tailored rehabilitation practice. |
format |
Article in Journal/Newspaper |
author |
Pedersen, Synne Garder Anke, Audny Aadal, Lena Pallesen, Hanne Moe, Siri Arntzen, Cathrine |
author_facet |
Pedersen, Synne Garder Anke, Audny Aadal, Lena Pallesen, Hanne Moe, Siri Arntzen, Cathrine |
author_sort |
Pedersen, Synne Garder |
title |
Experiences of quality of life the first year after stroke in Denmark and Norway. A qualitative analysis |
title_short |
Experiences of quality of life the first year after stroke in Denmark and Norway. A qualitative analysis |
title_full |
Experiences of quality of life the first year after stroke in Denmark and Norway. A qualitative analysis |
title_fullStr |
Experiences of quality of life the first year after stroke in Denmark and Norway. A qualitative analysis |
title_full_unstemmed |
Experiences of quality of life the first year after stroke in Denmark and Norway. A qualitative analysis |
title_sort |
experiences of quality of life the first year after stroke in denmark and norway. a qualitative analysis |
publisher |
Taylor & Francis |
publishDate |
2019 |
url |
https://hdl.handle.net/10037/16836 https://doi.org/10.1080/17482631.2019.1659540 |
geographic |
Norway |
geographic_facet |
Norway |
genre |
North Norway |
genre_facet |
North Norway |
op_relation |
International Journal of Qualitative Studies on Health and Well-being Norges forskningsråd: 188932 info:eu-repo/grantAgreement/RCN/HELSEVEL-H/188932/Norway/Senter for omsorgsforskning i region nord, UiT Norges arktiske universitet// Pedersen, Anke, Aadal L, Pallesen H, Moe S, Arntzen C. Experiences of quality of life the first year after stroke in Denmark and Norway. A qualitative analysis. International Journal of Qualitative Studies on Health and Well-being. 2019;14(1):1-14 FRIDAID 1728299 doi:10.1080/17482631.2019.1659540 1748-2623 1748-2631 https://hdl.handle.net/10037/16836 |
op_rights |
openAccess |
op_doi |
https://doi.org/10.1080/17482631.2019.1659540 |
container_title |
International Journal of Qualitative Studies on Health and Well-being |
container_volume |
14 |
container_issue |
1 |
container_start_page |
1659540 |
_version_ |
1766140142354956288 |