Under-reporting of major birth defects in Northwest Russia: a registry-based study
Source at https://doi.org/10.1080/22423982.2017.1366785 . The objective was to assess the prevalence of selected major birth defects, based on data from two medical registries in Murmansk County, and compare the observed rates with those available for Norway and Arkhangelsk County, Northwest Russia....
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ftunivtroemsoe:oai:munin.uit.no:10037/12287 2023-05-15T15:23:58+02:00 Under-reporting of major birth defects in Northwest Russia: a registry-based study Kovalenko, Anton Alexandrovich Brenn, Tormod Odland, Jon Øyvind Nieboer, Evert Krettek, Alexandra Anda, Erik Eik 2017-08-30 https://hdl.handle.net/10037/12287 eng eng Taylor & Francis Open Kovalenko, A. (2018). Epidemiology and new opportunities of investigating risk factors for congenital malformations in Northwest Russia: a registry-based linkage study. Doctoral thesis. http://hdl.handle.net/10037/14071 International Journal of Circumpolar Health Kovalenko, A.A., Brenn, T., Odland, J.Ø., Nieboer, E., Krettek, A. & Anda, E.E. (2017). Under-reporting of major birth defects in Northwest Russia: a registry-based study. International Journal of Circumpolar Health, 76, 1, 1366785. FRIDAID 1512550 1239-9736 2242-3982 0.1080/22423982.2017.1366785 https://hdl.handle.net/10037/12287 openAccess Birth defect linkage under-reporting VDP::Medisinske Fag: 700::Helsefag: 800::Samfunnsmedisin sosialmedisin: 801 VDP::Medical disciplines: 700::Health sciences: 800::Community medicine Social medicine: 801 Journal article Tidsskriftartikkel Peer reviewed 2017 ftunivtroemsoe 2021-06-25T17:55:37Z Source at https://doi.org/10.1080/22423982.2017.1366785 . The objective was to assess the prevalence of selected major birth defects, based on data from two medical registries in Murmansk County, and compare the observed rates with those available for Norway and Arkhangelsk County, Northwest Russia. It included all newborns (≥22 completed weeks of gestation) registered in the Murmansk County Birth Registry (MCBR) and born between 1 January 2006 and 31 December 2009 (n=35,417). The infants were followed-up post-partum for 2 years through direct linkage to the Murmansk Regional Congenital Defects Registry (MRCDR). Birth defects identified and confirmed in both registries constituted the “cases” and corresponded to one or more of the 21 birth defect types reportable to health authorities in Moscow. The overall prevalence of major birth defects recorded in the MRCDR was 50/10,000 before linkage and 77/10,000 after linkage with the MCBR. Routine under-reporting to the MRCDR of 40% cases was evident. This study demonstrates that birth registry data improved case ascertainment and official prevalence assessments and reduced the potential of under-reporting by physicians. The direct linkage of the two registries revealed that hypospadias cases were the most prevalent among the major birth defects in Murmansk County. Abbreviations: ICD-10, International Classification of Diseases, 10th revision; MCBR, Murmansk County Birth Registry; MRCDR, Murmansk Regional Congenital Defects Registry; MGC, Murmansk Genetics Center Article in Journal/Newspaper Arkhangelsk Circumpolar Health International Journal of Circumpolar Health Northwest Russia University of Tromsø: Munin Open Research Archive Murmansk Norway |
institution |
Open Polar |
collection |
University of Tromsø: Munin Open Research Archive |
op_collection_id |
ftunivtroemsoe |
language |
English |
topic |
Birth defect linkage under-reporting VDP::Medisinske Fag: 700::Helsefag: 800::Samfunnsmedisin sosialmedisin: 801 VDP::Medical disciplines: 700::Health sciences: 800::Community medicine Social medicine: 801 |
spellingShingle |
Birth defect linkage under-reporting VDP::Medisinske Fag: 700::Helsefag: 800::Samfunnsmedisin sosialmedisin: 801 VDP::Medical disciplines: 700::Health sciences: 800::Community medicine Social medicine: 801 Kovalenko, Anton Alexandrovich Brenn, Tormod Odland, Jon Øyvind Nieboer, Evert Krettek, Alexandra Anda, Erik Eik Under-reporting of major birth defects in Northwest Russia: a registry-based study |
topic_facet |
Birth defect linkage under-reporting VDP::Medisinske Fag: 700::Helsefag: 800::Samfunnsmedisin sosialmedisin: 801 VDP::Medical disciplines: 700::Health sciences: 800::Community medicine Social medicine: 801 |
description |
Source at https://doi.org/10.1080/22423982.2017.1366785 . The objective was to assess the prevalence of selected major birth defects, based on data from two medical registries in Murmansk County, and compare the observed rates with those available for Norway and Arkhangelsk County, Northwest Russia. It included all newborns (≥22 completed weeks of gestation) registered in the Murmansk County Birth Registry (MCBR) and born between 1 January 2006 and 31 December 2009 (n=35,417). The infants were followed-up post-partum for 2 years through direct linkage to the Murmansk Regional Congenital Defects Registry (MRCDR). Birth defects identified and confirmed in both registries constituted the “cases” and corresponded to one or more of the 21 birth defect types reportable to health authorities in Moscow. The overall prevalence of major birth defects recorded in the MRCDR was 50/10,000 before linkage and 77/10,000 after linkage with the MCBR. Routine under-reporting to the MRCDR of 40% cases was evident. This study demonstrates that birth registry data improved case ascertainment and official prevalence assessments and reduced the potential of under-reporting by physicians. The direct linkage of the two registries revealed that hypospadias cases were the most prevalent among the major birth defects in Murmansk County. Abbreviations: ICD-10, International Classification of Diseases, 10th revision; MCBR, Murmansk County Birth Registry; MRCDR, Murmansk Regional Congenital Defects Registry; MGC, Murmansk Genetics Center |
format |
Article in Journal/Newspaper |
author |
Kovalenko, Anton Alexandrovich Brenn, Tormod Odland, Jon Øyvind Nieboer, Evert Krettek, Alexandra Anda, Erik Eik |
author_facet |
Kovalenko, Anton Alexandrovich Brenn, Tormod Odland, Jon Øyvind Nieboer, Evert Krettek, Alexandra Anda, Erik Eik |
author_sort |
Kovalenko, Anton Alexandrovich |
title |
Under-reporting of major birth defects in Northwest Russia: a registry-based study |
title_short |
Under-reporting of major birth defects in Northwest Russia: a registry-based study |
title_full |
Under-reporting of major birth defects in Northwest Russia: a registry-based study |
title_fullStr |
Under-reporting of major birth defects in Northwest Russia: a registry-based study |
title_full_unstemmed |
Under-reporting of major birth defects in Northwest Russia: a registry-based study |
title_sort |
under-reporting of major birth defects in northwest russia: a registry-based study |
publisher |
Taylor & Francis Open |
publishDate |
2017 |
url |
https://hdl.handle.net/10037/12287 |
geographic |
Murmansk Norway |
geographic_facet |
Murmansk Norway |
genre |
Arkhangelsk Circumpolar Health International Journal of Circumpolar Health Northwest Russia |
genre_facet |
Arkhangelsk Circumpolar Health International Journal of Circumpolar Health Northwest Russia |
op_relation |
Kovalenko, A. (2018). Epidemiology and new opportunities of investigating risk factors for congenital malformations in Northwest Russia: a registry-based linkage study. Doctoral thesis. http://hdl.handle.net/10037/14071 International Journal of Circumpolar Health Kovalenko, A.A., Brenn, T., Odland, J.Ø., Nieboer, E., Krettek, A. & Anda, E.E. (2017). Under-reporting of major birth defects in Northwest Russia: a registry-based study. International Journal of Circumpolar Health, 76, 1, 1366785. FRIDAID 1512550 1239-9736 2242-3982 0.1080/22423982.2017.1366785 https://hdl.handle.net/10037/12287 |
op_rights |
openAccess |
_version_ |
1766354559258591232 |