Donating Human Samples: Who Benefits? Cases from Iceland, Kenya and Indonesia
Benefit sharing involving human genetic resources is an unresolved topic. Some argue that participation in scientific research should always be altruistically motivated, which is how access to human genetic resources has historically been governed in affluent nations. However, uncritically transferr...
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ftunivnairobi:oai:http://erepository.uonbi.ac.ke:11295/88892 2023-05-15T16:50:10+02:00 Donating Human Samples: Who Benefits? Cases from Iceland, Kenya and Indonesia Lucas, Julie C Schroeder, Doris Arnason, Gardar Andanda, Pamela Kimani, Joshua Fournier, Veronique Krishnamurthy, Meena 2013-01 application/pdf http://hdl.handle.net/11295/88892 http://link.springer.com/chapter/10.1007/978-94-007-6205-3_5 en eng University of Nairobi Benefit Sharing 2013, pp 95-127 http://link.springer.com/chapter/10.1007/978-94-007-6205-3_5 http://hdl.handle.net/11295/88892 Article en 2013 ftunivnairobi 2022-12-28T09:18:23Z Benefit sharing involving human genetic resources is an unresolved topic. Some argue that participation in scientific research should always be altruistically motivated, which is how access to human genetic resources has historically been governed in affluent nations. However, uncritically transferring the altruism model to developing countries leads to the emergence of serious exploitation issues. This chapter illustrates the potential for exploitation and other associated ethical concerns through a discussion of three cases: The Icelandic deCODE biobank for genetic research; the sex workers from Nairobi, Kenya, whose samples are used for ongoing HIV/AIDS research; and the Indonesian government’s decision to withhold virus samples from the World Health Organization in order to achieve fairer benefit sharing. Public attention is captured more easily by global pandemics, but the case of the Nairobi sex workers illustrates that the exploitation issues raised on the international stage by the Indonesian government are not limited to virus sharing. A framework for equitable access to human genetic resources is urgently needed, but in order to ensure justice, this needs to be accompanied by sustained attention to benefit sharing. Article in Journal/Newspaper Iceland University of Nairobi Digital Repository |
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University of Nairobi Digital Repository |
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ftunivnairobi |
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English |
description |
Benefit sharing involving human genetic resources is an unresolved topic. Some argue that participation in scientific research should always be altruistically motivated, which is how access to human genetic resources has historically been governed in affluent nations. However, uncritically transferring the altruism model to developing countries leads to the emergence of serious exploitation issues. This chapter illustrates the potential for exploitation and other associated ethical concerns through a discussion of three cases: The Icelandic deCODE biobank for genetic research; the sex workers from Nairobi, Kenya, whose samples are used for ongoing HIV/AIDS research; and the Indonesian government’s decision to withhold virus samples from the World Health Organization in order to achieve fairer benefit sharing. Public attention is captured more easily by global pandemics, but the case of the Nairobi sex workers illustrates that the exploitation issues raised on the international stage by the Indonesian government are not limited to virus sharing. A framework for equitable access to human genetic resources is urgently needed, but in order to ensure justice, this needs to be accompanied by sustained attention to benefit sharing. |
format |
Article in Journal/Newspaper |
author |
Lucas, Julie C Schroeder, Doris Arnason, Gardar Andanda, Pamela Kimani, Joshua Fournier, Veronique Krishnamurthy, Meena |
spellingShingle |
Lucas, Julie C Schroeder, Doris Arnason, Gardar Andanda, Pamela Kimani, Joshua Fournier, Veronique Krishnamurthy, Meena Donating Human Samples: Who Benefits? Cases from Iceland, Kenya and Indonesia |
author_facet |
Lucas, Julie C Schroeder, Doris Arnason, Gardar Andanda, Pamela Kimani, Joshua Fournier, Veronique Krishnamurthy, Meena |
author_sort |
Lucas, Julie C |
title |
Donating Human Samples: Who Benefits? Cases from Iceland, Kenya and Indonesia |
title_short |
Donating Human Samples: Who Benefits? Cases from Iceland, Kenya and Indonesia |
title_full |
Donating Human Samples: Who Benefits? Cases from Iceland, Kenya and Indonesia |
title_fullStr |
Donating Human Samples: Who Benefits? Cases from Iceland, Kenya and Indonesia |
title_full_unstemmed |
Donating Human Samples: Who Benefits? Cases from Iceland, Kenya and Indonesia |
title_sort |
donating human samples: who benefits? cases from iceland, kenya and indonesia |
publisher |
University of Nairobi |
publishDate |
2013 |
url |
http://hdl.handle.net/11295/88892 http://link.springer.com/chapter/10.1007/978-94-007-6205-3_5 |
genre |
Iceland |
genre_facet |
Iceland |
op_relation |
Benefit Sharing 2013, pp 95-127 http://link.springer.com/chapter/10.1007/978-94-007-6205-3_5 http://hdl.handle.net/11295/88892 |
_version_ |
1766040346373914624 |