Donating Human Samples: Who Benefits? Cases from Iceland, Kenya and Indonesia
Benefit sharing involving human genetic resources is an unresolved topic. Some argue that participation in scientific research should always be altruistically motivated, whcih is how access to human genetic resources has historically been governed in affluent nations. However, uncritically transferr...
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ftunivclancas:oai:clok.uclan.ac.uk:16044 2023-05-15T16:50:04+02:00 Donating Human Samples: Who Benefits? Cases from Iceland, Kenya and Indonesia Cook Lucas, Julie Schroeder, Doris Arnason, Gardar Andanda, Pamela Kimani, Joshua Fournier, Veronique Krishnamurthy, Meena 2013-05-31 http://clok.uclan.ac.uk/16044/ https://doi.org/10.1007/978-94-007-6205-3_5 unknown Springer Cook Lucas, Julie orcid:0000-0002-6391-5430 , Schroeder, Doris orcid:0000-0002-3633-2758 , Arnason, Gardar, Andanda, Pamela, Kimani, Joshua, Fournier, Veronique and Krishnamurthy, Meena (2013) Donating Human Samples: Who Benefits? Cases from Iceland, Kenya and Indonesia. In: Benefit Sharing. Springer, pp. 95-127. ISBN Print: 978-94-007-6204-6; Online: 978-94-007-6205-3 doi:10.1007/978-94-007-6205-3_5 Y - Combined/general subject unspecified Book Section PeerReviewed 2013 ftunivclancas https://doi.org/10.1007/978-94-007-6205-3_5 2021-09-09T22:27:46Z Benefit sharing involving human genetic resources is an unresolved topic. Some argue that participation in scientific research should always be altruistically motivated, whcih is how access to human genetic resources has historically been governed in affluent nations. However, uncritically transferring the altruism model to developing countries leads to the emergence of serious exploitation issues. This chapter illustrates the potential for exploitation and other associated ethical concerns through a discussion of three cases: The Icelandic deCODE biobank for genetic research; the sex workers from Nairobi, Kenya, whose samples are used for ongoing HIV/AIDS research; and the Indonesian government's decision to withold virus samples from the World Health Organization in order to achieve fairer benefit sharing. Public attention is captured more easily by global pandemics, but the case of the Nairobi sex workers illustrates that the exploitation issues raised on the international stage by the Indonesian government are not limited to virus sharing. A framework for equitable access to human genetic resources is urgently needed, but in order to ensure justice, this needs to be accompanied by sustained attention to benefit sharing. Book Part Iceland University of Central Lancashire: CLOK - Central Lancashire Online Knowledge 95 127 Dordrecht |
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University of Central Lancashire: CLOK - Central Lancashire Online Knowledge |
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Y - Combined/general subject unspecified |
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Y - Combined/general subject unspecified Cook Lucas, Julie Schroeder, Doris Arnason, Gardar Andanda, Pamela Kimani, Joshua Fournier, Veronique Krishnamurthy, Meena Donating Human Samples: Who Benefits? Cases from Iceland, Kenya and Indonesia |
topic_facet |
Y - Combined/general subject unspecified |
description |
Benefit sharing involving human genetic resources is an unresolved topic. Some argue that participation in scientific research should always be altruistically motivated, whcih is how access to human genetic resources has historically been governed in affluent nations. However, uncritically transferring the altruism model to developing countries leads to the emergence of serious exploitation issues. This chapter illustrates the potential for exploitation and other associated ethical concerns through a discussion of three cases: The Icelandic deCODE biobank for genetic research; the sex workers from Nairobi, Kenya, whose samples are used for ongoing HIV/AIDS research; and the Indonesian government's decision to withold virus samples from the World Health Organization in order to achieve fairer benefit sharing. Public attention is captured more easily by global pandemics, but the case of the Nairobi sex workers illustrates that the exploitation issues raised on the international stage by the Indonesian government are not limited to virus sharing. A framework for equitable access to human genetic resources is urgently needed, but in order to ensure justice, this needs to be accompanied by sustained attention to benefit sharing. |
format |
Book Part |
author |
Cook Lucas, Julie Schroeder, Doris Arnason, Gardar Andanda, Pamela Kimani, Joshua Fournier, Veronique Krishnamurthy, Meena |
author_facet |
Cook Lucas, Julie Schroeder, Doris Arnason, Gardar Andanda, Pamela Kimani, Joshua Fournier, Veronique Krishnamurthy, Meena |
author_sort |
Cook Lucas, Julie |
title |
Donating Human Samples: Who Benefits? Cases from Iceland, Kenya and Indonesia |
title_short |
Donating Human Samples: Who Benefits? Cases from Iceland, Kenya and Indonesia |
title_full |
Donating Human Samples: Who Benefits? Cases from Iceland, Kenya and Indonesia |
title_fullStr |
Donating Human Samples: Who Benefits? Cases from Iceland, Kenya and Indonesia |
title_full_unstemmed |
Donating Human Samples: Who Benefits? Cases from Iceland, Kenya and Indonesia |
title_sort |
donating human samples: who benefits? cases from iceland, kenya and indonesia |
publisher |
Springer |
publishDate |
2013 |
url |
http://clok.uclan.ac.uk/16044/ https://doi.org/10.1007/978-94-007-6205-3_5 |
genre |
Iceland |
genre_facet |
Iceland |
op_relation |
Cook Lucas, Julie orcid:0000-0002-6391-5430 , Schroeder, Doris orcid:0000-0002-3633-2758 , Arnason, Gardar, Andanda, Pamela, Kimani, Joshua, Fournier, Veronique and Krishnamurthy, Meena (2013) Donating Human Samples: Who Benefits? Cases from Iceland, Kenya and Indonesia. In: Benefit Sharing. Springer, pp. 95-127. ISBN Print: 978-94-007-6204-6; Online: 978-94-007-6205-3 doi:10.1007/978-94-007-6205-3_5 |
op_doi |
https://doi.org/10.1007/978-94-007-6205-3_5 |
container_start_page |
95 |
op_container_end_page |
127 |
op_publisher_place |
Dordrecht |
_version_ |
1766040254770315264 |