“There are still a lot of things that I need”: a qualitative study exploring opportunities to improve the health services of First Nations People with arthritis seen at an on-reserve outreach rheumatology clinic
Abstract Background Arthritis is a highly prevalent disease and leading cause of disability in the Indigenous population. A novel model of care consisting of a rheumatology outreach clinic in an on-reserve primary healthcare center has provided service to an Indigenous community in Southern Alberta...
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ftunivcalgary:oai:prism.ucalgary.ca:1880/112792 2024-09-15T18:06:50+00:00 “There are still a lot of things that I need”: a qualitative study exploring opportunities to improve the health services of First Nations People with arthritis seen at an on-reserve outreach rheumatology clinic Loyola-Sanchez, Adalberto Pelaez-Ballestas, Ingris Crowshoe, Lynden Lacaille, Diane Henderson, Rita Rame, Ana Linkert, Tessa White, Tyler Barnabe, Cheryl 2020-11-29T01:09:42Z application/pdf http://hdl.handle.net/1880/112792 https://doi.org/10.11575/PRISM/44940 https://doi.org/10.1186/s12913-020-05909-9 en eng BMC Health Services Research. 2020 Nov 25;20(1):1076 http://hdl.handle.net/1880/112792 https://doi.org/10.11575/PRISM/44940 https://doi.org/10.1186/s12913-020-05909-9 The Author(s) Journal Article 2020 ftunivcalgary https://doi.org/10.11575/PRISM/4494010.1186/s12913-020-05909-9 2024-07-30T23:46:17Z Abstract Background Arthritis is a highly prevalent disease and leading cause of disability in the Indigenous population. A novel model of care consisting of a rheumatology outreach clinic in an on-reserve primary healthcare center has provided service to an Indigenous community in Southern Alberta since 2010. Despite quality assessments suggesting this model of care improves accessibility and is effective in meeting treatment targets, substantial improvements in patient-reported outcomes have not been realized. Therefore, the objective of this study was to explore the experiences of Indigenous persons with arthritis and healthcare providers involved in this model of care to inform the development of health service improvements that enhance patient outcomes. Methods This was a narrative-based qualitative study involving a purposeful sample of 32 individuals involved in the Indigenous rheumatology model of care. In-depth interviews were conducted to elicit experiences with the existing model of care and to encourage reflections on opportunities to improve it. A two-stage analysis was conducted. The first stage aimed to produce a narrative synthesis of concepts through a dialogical method comparing people with arthritis and health providers’ narratives. The second stage involved a collective effort to synthesize concepts and propose specific recommendations to improve the quality of the current model of care. Triangulation, through participant checking and discussion among researchers, was used to increase the validity of the final recommendations. Results Ten Indigenous people with arthritis lived experience, 14 health providers and 8 administrative staff were interviewed. One main overarching theme was identified, which reflected the need to provide services that improve people’s physical and mental functioning. Further, the following specific recommendations were identified: 1) enhancing patient-provider communication, 2) improving the continuity of the healthcare service, 3) increasing community awareness ... Article in Journal/Newspaper First Nations PRISM - University of Calgary Digital Repository BMC Health Services Research 20 1 |
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PRISM - University of Calgary Digital Repository |
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ftunivcalgary |
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English |
description |
Abstract Background Arthritis is a highly prevalent disease and leading cause of disability in the Indigenous population. A novel model of care consisting of a rheumatology outreach clinic in an on-reserve primary healthcare center has provided service to an Indigenous community in Southern Alberta since 2010. Despite quality assessments suggesting this model of care improves accessibility and is effective in meeting treatment targets, substantial improvements in patient-reported outcomes have not been realized. Therefore, the objective of this study was to explore the experiences of Indigenous persons with arthritis and healthcare providers involved in this model of care to inform the development of health service improvements that enhance patient outcomes. Methods This was a narrative-based qualitative study involving a purposeful sample of 32 individuals involved in the Indigenous rheumatology model of care. In-depth interviews were conducted to elicit experiences with the existing model of care and to encourage reflections on opportunities to improve it. A two-stage analysis was conducted. The first stage aimed to produce a narrative synthesis of concepts through a dialogical method comparing people with arthritis and health providers’ narratives. The second stage involved a collective effort to synthesize concepts and propose specific recommendations to improve the quality of the current model of care. Triangulation, through participant checking and discussion among researchers, was used to increase the validity of the final recommendations. Results Ten Indigenous people with arthritis lived experience, 14 health providers and 8 administrative staff were interviewed. One main overarching theme was identified, which reflected the need to provide services that improve people’s physical and mental functioning. Further, the following specific recommendations were identified: 1) enhancing patient-provider communication, 2) improving the continuity of the healthcare service, 3) increasing community awareness ... |
format |
Article in Journal/Newspaper |
author |
Loyola-Sanchez, Adalberto Pelaez-Ballestas, Ingris Crowshoe, Lynden Lacaille, Diane Henderson, Rita Rame, Ana Linkert, Tessa White, Tyler Barnabe, Cheryl |
spellingShingle |
Loyola-Sanchez, Adalberto Pelaez-Ballestas, Ingris Crowshoe, Lynden Lacaille, Diane Henderson, Rita Rame, Ana Linkert, Tessa White, Tyler Barnabe, Cheryl “There are still a lot of things that I need”: a qualitative study exploring opportunities to improve the health services of First Nations People with arthritis seen at an on-reserve outreach rheumatology clinic |
author_facet |
Loyola-Sanchez, Adalberto Pelaez-Ballestas, Ingris Crowshoe, Lynden Lacaille, Diane Henderson, Rita Rame, Ana Linkert, Tessa White, Tyler Barnabe, Cheryl |
author_sort |
Loyola-Sanchez, Adalberto |
title |
“There are still a lot of things that I need”: a qualitative study exploring opportunities to improve the health services of First Nations People with arthritis seen at an on-reserve outreach rheumatology clinic |
title_short |
“There are still a lot of things that I need”: a qualitative study exploring opportunities to improve the health services of First Nations People with arthritis seen at an on-reserve outreach rheumatology clinic |
title_full |
“There are still a lot of things that I need”: a qualitative study exploring opportunities to improve the health services of First Nations People with arthritis seen at an on-reserve outreach rheumatology clinic |
title_fullStr |
“There are still a lot of things that I need”: a qualitative study exploring opportunities to improve the health services of First Nations People with arthritis seen at an on-reserve outreach rheumatology clinic |
title_full_unstemmed |
“There are still a lot of things that I need”: a qualitative study exploring opportunities to improve the health services of First Nations People with arthritis seen at an on-reserve outreach rheumatology clinic |
title_sort |
“there are still a lot of things that i need”: a qualitative study exploring opportunities to improve the health services of first nations people with arthritis seen at an on-reserve outreach rheumatology clinic |
publishDate |
2020 |
url |
http://hdl.handle.net/1880/112792 https://doi.org/10.11575/PRISM/44940 https://doi.org/10.1186/s12913-020-05909-9 |
genre |
First Nations |
genre_facet |
First Nations |
op_relation |
BMC Health Services Research. 2020 Nov 25;20(1):1076 http://hdl.handle.net/1880/112792 https://doi.org/10.11575/PRISM/44940 https://doi.org/10.1186/s12913-020-05909-9 |
op_rights |
The Author(s) |
op_doi |
https://doi.org/10.11575/PRISM/4494010.1186/s12913-020-05909-9 |
container_title |
BMC Health Services Research |
container_volume |
20 |
container_issue |
1 |
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1810444206806663168 |