Neuroethics, confidentiality, and a cultural imperative in early onset Alzheimer disease: a case study with a First Nation population

• Published in: Philosophy, Ethics, and Humanities in Medicine
• Main Authors: Stevenson, Shaun, Beattie, B L, Vedan, Richard, Dwosh, Emily, Bruce, Lindsey, Illes, Judy
• Format: Article in Journal/Newspaper
• Language: English
• Published: BioMed Central 2013
• Subjects: Confidentiality; Global health neuroethics; Biomedical ethics; First nations; Research ethics; Early Onset Familial Alzheimer Disease; Community-based research; First Nations
• Online Access: http://hdl.handle.net/2429/55090; https://doi.org/10.1186/1747-5341-8-15

The meaningful consideration of cultural practices, values and beliefs is a necessary component in the effective translation of advancements in neuroscience to clinical practice and public discourse. Society’s immense investment in biomedical science and technology, in conjunction with an increasingly diverse socio-cultural landscape, necessitates the study of how potential discoveries in neurodegenerative diseases such as Alzheimer disease are perceived and utilized across cultures. Building on the work of neuroscientists, ethicists and philosophers, we argue that the growing field of neuroethics provides a pragmatic and constructive pathway to guide advancements in neuroscience in a manner that is culturally nuanced and relevant. Here we review a case study of one issue in culturally oriented neuroscience research where it is evident that traditional research ethics must be broadened and the values and needs of diverse populations considered for meaningful and relevant research practices. A global approach to neuroethics has the potential to furnish critical engagement with cultural considerations of advancements in neuroscience. Medicine, Department of Medicine, Faculty of Neurology, Division of Social Work, School of Other UBC Arts, Faculty of Reviewed Faculty