Zgoda na pobranie komórek, tkanek i narządów ex mortuo w amerykańskim systemie transplantacyjnym

According to data, deceased and living donor rates cannot keep pace with the growing need for replacement organs in the United States. In three decades, the national waiting list has grown 8-fold. It is estimated that every 10 minutes another name is added to the national transplant waiting list. Ap...

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Published in:Białostockie Studia Prawnicze
Main Author: Olesiuk-Okomska, Magda
Format: Article in Journal/Newspaper
Language:Polish
Published: Temida 2 2017
Subjects:
Online Access:http://hdl.handle.net/11320/5870
https://doi.org/10.15290/bsp.2017.22.02.05
id ftunivbialystok:oai:repozytorium.uwb.edu.pl:11320/5870
record_format openpolar
institution Open Polar
collection Repozytorium Uniwersytetu w Białymstoku (RUB)
op_collection_id ftunivbialystok
language Polish
topic transplantation
donation
deceased donor
transplantacja
donacja
dawca ex mortuo
spellingShingle transplantation
donation
deceased donor
transplantacja
donacja
dawca ex mortuo
Olesiuk-Okomska, Magda
Zgoda na pobranie komórek, tkanek i narządów ex mortuo w amerykańskim systemie transplantacyjnym
topic_facet transplantation
donation
deceased donor
transplantacja
donacja
dawca ex mortuo
description According to data, deceased and living donor rates cannot keep pace with the growing need for replacement organs in the United States. In three decades, the national waiting list has grown 8-fold. It is estimated that every 10 minutes another name is added to the national transplant waiting list. Approximately 22 people die every day waiting for a transplant. Most organs for transplants are recovered from deceased donors. The United States uses the “donation model”, a consent model for deceased organ recovery that prioritizes the rights of the individual (or surrogate decision maker) over the needs of society, by requiring authorization or explicit consent prior to deceased organ recovery. Some transplant community members have advocated for shifting the current donation model of deceased donor organ recovery to a model that permits deceased organ recovery without explicit consent or authorization, in order to increase the number of organs available for transplant. This article aims at answering the question of whether shifting to such model in the United States could solve systemic problems, organs shortage in particular, and would be ethically justified. The paper describes models of deceased organ recovery and presents the model currently used by the United States. It presents, from an American perspective, an analysis of the model of deceased organ recovery without explicit consent or authorization, as well as proposes alternative opportunities to increase deceased organ supply. magda.olesiuk@gmail.com Magda Olesiuk-Okomska – doktorantka w Zakładzie Prawa Karnego i Kryminologii, Katedra Prawa Karnego, Wydział Prawa, Uniwersytet w Białymstoku. Magda Olesiuk-Okomska – PhD candidate, Department of Criminal Law and Criminology, Institute of Criminal Law, Faculty of law, University of Białystok. Uniwersytet w Białymstoku 2012 National Survey of Organ Donation Attitudes and Behaviors, September 2013, U.S. Department of Health and Human Services, Health Resources and Services Administration, Healthcare Systems Bureau, Rockville, Maryland: U.S. Department of Health and Human Services. Abadie A., Gray S., The impact of presumed consent legislation on cadaveric organ donation: A crosscountry study, „Journal of Health Economics” 2006, nr 25 (4). An Evaluation of the Ethics of Presumed Consent, A Report of the Presumed Consent Subcommittee of the Ethics Committee (June 1993), dokument dostępny na oficjalnej stronie OPTN pod adresem: www.optn.transplant.hrsa.gov (data dostępu: 26.04.2017 r.). Anatomical Gift Act (2006) Summary, dostępne na stronie Komisji ds. Uniformizacji Prawa (Uniform Law Commission) pod adresem: www.uniformlaws.org (data dostępu: 26.04.2017 r.). Borro-Escribano B., Martinez-Alpuente I., Blanco A., Application of game-like simulations in the Spanish Transplant National Organization, „Transplantation Proceedings” 2013, nr 45 (1). Boyarsky B., Hall E., Deshpande N., Potential limitations of presumed consent legislation, „Transplantation” 2012, nr 93 (2). Breitkopf C., Attitudes, beliefs and behaviors surrounding organ donation among Hispanic women, „Current Opinion in Organ Transplantation” 2009, nr 14 (2). Data on Donation and Transplantation, Association of Organ Procurement Organizations, dostępne pod adresem: www.aopo.org (data dostępu: 26.04.2017 r.). Davison S., Jhangri S., Knowledge and attitudes of Canadian First Nations people toward organ donation and transplantation: a quantitative and qualitative analysis, „American Journal of Kidney Diseases” 2014, nr 64 (5). Dukeminier J., Sanders D., Organ transplantation: a proposal for routine salvaging of cadaver organs, „The New England Journal of Medicine” 1968, nr 279 (8). Ethics of deceased organ donor recovery without requirement of explicit consent or authorization, White Paper, OPTN, dostępna pod adresem: www.optn.transplant.hrsa.gov/data (data dostępu: 26.04.2017 r.). Fabre J., Presumed consent for organ donation: a clinically unnecessary and corrupting infl uence in medicine and politics, „Clinical Medicine” 2014, nr 14 (6). Garner B. (ed.), Black’s Law Dictionary, 10th ed., Thomson Reuters, 2014. Gordon E., Mullee J., Ramirez D., U.S. Hispanic/Latino concerns about living kidney donation: a focus group study, „Progress in Transplantation” 2014, nr 24 (2). Gordon E., Patel C., Sohn M., Does financial compensation for living kidney donation change willingness to donate?, „American Journal of Transplantation” 2015, nr 15 (1). Gordon E., Patients’ decisions for treatment of end-stage renal disease and their implications for access to transplantation, „Social Science & Medicine” 2001, nr 53 (8). Guzik-Makaruk E., Transplantacja organów tkanek i komórek w ujęciu prawnym i kryminologicznym. Studium prawnoporównawcze, Białystok 2008. Healy K., Do presumed consent laws raise organ procurement rates?, „DePaul Law Review” 2005-2006, nr 55. Irving M., Tong A., Jan S., Factors that influence the decision to be an organ donor: a systematic review of the qualitative literature, „Nephrology Dialysis Transplantation” 2012, nr 27 (6). Metasanz R., Domiguez-Gil B., Coll E., Spanish experience as a leading country: what kind of measures were taken?, „Transplant International” 2011, nr 24 (4). Morgan M., Kenten C., Deedat S., Donate Programme Team. Attitudes to deceased organ donation and registration as a donor among minority ethnic groups in North America and the UK: a synthesis of quantitative and qualitative research, „Ethnicity & Health” 2013, nr 18 (4). National Organ Transplant Act, Public Law 98-507-OCT. 19, 1984. Norris C., Agodoa L., Reducing Disparities in Assessment for Kidney Transplantation, “Clinical Journal of the American Society of Nephrology” 2012, nr 7 (9). Ramsey P., Th e Patient as Person: Explorations in medical ethics, New Haven, Connecticut 1970. Reese P., Nair M., Bloom R., Eliminating racial disparities in access to living donor kidney transplantation; how can centers do better?, „American Journal of Kidney Diseases” 2012, nr 59 (6). Rejman G., Zgoda na pobranie organu, narządu lub tkanek ze zwłok jako okoliczność uchylająca bezprawność czynu, „Studia Iuridica” 1991, t. 19. Revised Uniform Anatomical Gift Act (2006). Rithalia A., McDaid C., Suekarran S., Impact of presumed consent for organ donation on donation rates: a systematic review, „BMJ” 2009, nr 338, a3162. Rodriguez Arias D., Wright L., Paredes D., Success factors and ethical challenges of the Spanish Model of organ donation, „Lancet” 2010, nr 376. Rudge C., Buggins E., How to increase organ donation: Does opting out have a role?, „Transplantation” 2012, nr 93 (2). Satal S., Cronin D., Time to test incetives to increase organ donation, „JAMA Internal Medicine” 2015, nr 175 (8). Shepherd L., O’Carroll R., Ferguson E., An international comparison of deceased and living organ donation/transplant rates in opt-in and opt-out systems: a panel study, „BMC Medicine” 2014, nr 12 (131). Simillis C., Do we need to change the legislation to a system of presumed consent to address organ shortage?, „Medicine, Science and the Law” 2010, nr 50 (2). Siminoff L., Saunders Sturm C., African-American reluctance to donate: beliefs and attitudes about organ donation and implications for policy, „Kennedy Institute of Ethics Journal” 2000, nr 10 (1). Switzer G., Bruce J., Myaskovsky L., Race and ethnicity in decisions about unrelated hematopoietic stem cell donation, „Blood” 2013, nr 121 (8). Veatch R., Ross L., Chapter 10: Routine Salvaging and Presumed Consent, (w:) Transplantation Ethic, 2nd ed., Washington 2015. Zielińska E., Transplantacja w świetle prawa w Polsce i na świecie, „Państwo i Prawo” 1995, nr 6. 69-83
format Article in Journal/Newspaper
author Olesiuk-Okomska, Magda
author_facet Olesiuk-Okomska, Magda
author_sort Olesiuk-Okomska, Magda
title Zgoda na pobranie komórek, tkanek i narządów ex mortuo w amerykańskim systemie transplantacyjnym
title_short Zgoda na pobranie komórek, tkanek i narządów ex mortuo w amerykańskim systemie transplantacyjnym
title_full Zgoda na pobranie komórek, tkanek i narządów ex mortuo w amerykańskim systemie transplantacyjnym
title_fullStr Zgoda na pobranie komórek, tkanek i narządów ex mortuo w amerykańskim systemie transplantacyjnym
title_full_unstemmed Zgoda na pobranie komórek, tkanek i narządów ex mortuo w amerykańskim systemie transplantacyjnym
title_sort zgoda na pobranie komórek, tkanek i narządów ex mortuo w amerykańskim systemie transplantacyjnym
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spelling ftunivbialystok:oai:repozytorium.uwb.edu.pl:11320/5870 2023-05-15T16:17:20+02:00 Zgoda na pobranie komórek, tkanek i narządów ex mortuo w amerykańskim systemie transplantacyjnym Consent to deceased donation in the American transplant system Olesiuk-Okomska, Magda 2017 application/pdf http://hdl.handle.net/11320/5870 https://doi.org/10.15290/bsp.2017.22.02.05 pl pol Temida 2 Białostockie Studia Prawnicze, Vol. 22 nr 2, 2017, s. 69-83 1689-7404 http://hdl.handle.net/11320/5870 doi:10.15290/bsp.2017.22.02.05 transplantation donation deceased donor transplantacja donacja dawca ex mortuo Article 2017 ftunivbialystok https://doi.org/10.15290/bsp.2017.22.02.05 2020-07-14T20:30:20Z According to data, deceased and living donor rates cannot keep pace with the growing need for replacement organs in the United States. In three decades, the national waiting list has grown 8-fold. It is estimated that every 10 minutes another name is added to the national transplant waiting list. Approximately 22 people die every day waiting for a transplant. Most organs for transplants are recovered from deceased donors. The United States uses the “donation model”, a consent model for deceased organ recovery that prioritizes the rights of the individual (or surrogate decision maker) over the needs of society, by requiring authorization or explicit consent prior to deceased organ recovery. Some transplant community members have advocated for shifting the current donation model of deceased donor organ recovery to a model that permits deceased organ recovery without explicit consent or authorization, in order to increase the number of organs available for transplant. This article aims at answering the question of whether shifting to such model in the United States could solve systemic problems, organs shortage in particular, and would be ethically justified. The paper describes models of deceased organ recovery and presents the model currently used by the United States. It presents, from an American perspective, an analysis of the model of deceased organ recovery without explicit consent or authorization, as well as proposes alternative opportunities to increase deceased organ supply. magda.olesiuk@gmail.com Magda Olesiuk-Okomska – doktorantka w Zakładzie Prawa Karnego i Kryminologii, Katedra Prawa Karnego, Wydział Prawa, Uniwersytet w Białymstoku. Magda Olesiuk-Okomska – PhD candidate, Department of Criminal Law and Criminology, Institute of Criminal Law, Faculty of law, University of Białystok. Uniwersytet w Białymstoku 2012 National Survey of Organ Donation Attitudes and Behaviors, September 2013, U.S. Department of Health and Human Services, Health Resources and Services Administration, Healthcare Systems Bureau, Rockville, Maryland: U.S. Department of Health and Human Services. Abadie A., Gray S., The impact of presumed consent legislation on cadaveric organ donation: A crosscountry study, „Journal of Health Economics” 2006, nr 25 (4). An Evaluation of the Ethics of Presumed Consent, A Report of the Presumed Consent Subcommittee of the Ethics Committee (June 1993), dokument dostępny na oficjalnej stronie OPTN pod adresem: www.optn.transplant.hrsa.gov (data dostępu: 26.04.2017 r.). Anatomical Gift Act (2006) Summary, dostępne na stronie Komisji ds. Uniformizacji Prawa (Uniform Law Commission) pod adresem: www.uniformlaws.org (data dostępu: 26.04.2017 r.). Borro-Escribano B., Martinez-Alpuente I., Blanco A., Application of game-like simulations in the Spanish Transplant National Organization, „Transplantation Proceedings” 2013, nr 45 (1). Boyarsky B., Hall E., Deshpande N., Potential limitations of presumed consent legislation, „Transplantation” 2012, nr 93 (2). Breitkopf C., Attitudes, beliefs and behaviors surrounding organ donation among Hispanic women, „Current Opinion in Organ Transplantation” 2009, nr 14 (2). Data on Donation and Transplantation, Association of Organ Procurement Organizations, dostępne pod adresem: www.aopo.org (data dostępu: 26.04.2017 r.). Davison S., Jhangri S., Knowledge and attitudes of Canadian First Nations people toward organ donation and transplantation: a quantitative and qualitative analysis, „American Journal of Kidney Diseases” 2014, nr 64 (5). Dukeminier J., Sanders D., Organ transplantation: a proposal for routine salvaging of cadaver organs, „The New England Journal of Medicine” 1968, nr 279 (8). Ethics of deceased organ donor recovery without requirement of explicit consent or authorization, White Paper, OPTN, dostępna pod adresem: www.optn.transplant.hrsa.gov/data (data dostępu: 26.04.2017 r.). Fabre J., Presumed consent for organ donation: a clinically unnecessary and corrupting infl uence in medicine and politics, „Clinical Medicine” 2014, nr 14 (6). Garner B. (ed.), Black’s Law Dictionary, 10th ed., Thomson Reuters, 2014. Gordon E., Mullee J., Ramirez D., U.S. Hispanic/Latino concerns about living kidney donation: a focus group study, „Progress in Transplantation” 2014, nr 24 (2). Gordon E., Patel C., Sohn M., Does financial compensation for living kidney donation change willingness to donate?, „American Journal of Transplantation” 2015, nr 15 (1). Gordon E., Patients’ decisions for treatment of end-stage renal disease and their implications for access to transplantation, „Social Science & Medicine” 2001, nr 53 (8). Guzik-Makaruk E., Transplantacja organów tkanek i komórek w ujęciu prawnym i kryminologicznym. Studium prawnoporównawcze, Białystok 2008. Healy K., Do presumed consent laws raise organ procurement rates?, „DePaul Law Review” 2005-2006, nr 55. Irving M., Tong A., Jan S., Factors that influence the decision to be an organ donor: a systematic review of the qualitative literature, „Nephrology Dialysis Transplantation” 2012, nr 27 (6). Metasanz R., Domiguez-Gil B., Coll E., Spanish experience as a leading country: what kind of measures were taken?, „Transplant International” 2011, nr 24 (4). Morgan M., Kenten C., Deedat S., Donate Programme Team. Attitudes to deceased organ donation and registration as a donor among minority ethnic groups in North America and the UK: a synthesis of quantitative and qualitative research, „Ethnicity & Health” 2013, nr 18 (4). National Organ Transplant Act, Public Law 98-507-OCT. 19, 1984. Norris C., Agodoa L., Reducing Disparities in Assessment for Kidney Transplantation, “Clinical Journal of the American Society of Nephrology” 2012, nr 7 (9). Ramsey P., Th e Patient as Person: Explorations in medical ethics, New Haven, Connecticut 1970. Reese P., Nair M., Bloom R., Eliminating racial disparities in access to living donor kidney transplantation; how can centers do better?, „American Journal of Kidney Diseases” 2012, nr 59 (6). Rejman G., Zgoda na pobranie organu, narządu lub tkanek ze zwłok jako okoliczność uchylająca bezprawność czynu, „Studia Iuridica” 1991, t. 19. Revised Uniform Anatomical Gift Act (2006). Rithalia A., McDaid C., Suekarran S., Impact of presumed consent for organ donation on donation rates: a systematic review, „BMJ” 2009, nr 338, a3162. Rodriguez Arias D., Wright L., Paredes D., Success factors and ethical challenges of the Spanish Model of organ donation, „Lancet” 2010, nr 376. Rudge C., Buggins E., How to increase organ donation: Does opting out have a role?, „Transplantation” 2012, nr 93 (2). Satal S., Cronin D., Time to test incetives to increase organ donation, „JAMA Internal Medicine” 2015, nr 175 (8). Shepherd L., O’Carroll R., Ferguson E., An international comparison of deceased and living organ donation/transplant rates in opt-in and opt-out systems: a panel study, „BMC Medicine” 2014, nr 12 (131). Simillis C., Do we need to change the legislation to a system of presumed consent to address organ shortage?, „Medicine, Science and the Law” 2010, nr 50 (2). Siminoff L., Saunders Sturm C., African-American reluctance to donate: beliefs and attitudes about organ donation and implications for policy, „Kennedy Institute of Ethics Journal” 2000, nr 10 (1). Switzer G., Bruce J., Myaskovsky L., Race and ethnicity in decisions about unrelated hematopoietic stem cell donation, „Blood” 2013, nr 121 (8). Veatch R., Ross L., Chapter 10: Routine Salvaging and Presumed Consent, (w:) Transplantation Ethic, 2nd ed., Washington 2015. Zielińska E., Transplantacja w świetle prawa w Polsce i na świecie, „Państwo i Prawo” 1995, nr 6. 69-83 Article in Journal/Newspaper First Nations Repozytorium Uniwersytetu w Białymstoku (RUB) Blanco ENVELOPE(-55.233,-55.233,-61.250,-61.250) Ferguson ENVELOPE(-168.583,-168.583,-84.933,-84.933) Jama ENVELOPE(68.300,68.300,-73.317,-73.317) Ramirez ENVELOPE(-56.683,-56.683,-63.583,-63.583) Rodriguez ENVELOPE(-56.720,-56.720,-63.529,-63.529) Saunders ENVELOPE(-45.316,-45.316,-60.700,-60.700) Sturm ENVELOPE(162.967,162.967,-71.050,-71.050) Białostockie Studia Prawnicze 22 2 69 83