Validation of the multiple sclerosis diagnosis in the Norwegian Patient Registry
Background: Health registries may yield important data for epidemiological studies. However, in order to be a valuable source for information, the registered data have to be correct. Objectives: The aim of the study was to validate data from the Norwegian Patient Registry (NPR) regarding multiple sc...
Published in: | Brain and Behavior |
---|---|
Main Authors: | , , , |
Format: | Article in Journal/Newspaper |
Language: | English |
Published: |
Wiley
2020
|
Subjects: | |
Online Access: | https://hdl.handle.net/1956/21877 https://doi.org/10.1002/brb3.1422 |
id |
ftunivbergen:oai:bora.uib.no:1956/21877 |
---|---|
record_format |
openpolar |
spelling |
ftunivbergen:oai:bora.uib.no:1956/21877 2023-05-15T17:24:36+02:00 Validation of the multiple sclerosis diagnosis in the Norwegian Patient Registry Benjaminsen, Espen Myhr, Kjell-Morten Grytten, Nina Alstadhaug, Karl Bjørnar 2020-01-03T13:33:59Z application/pdf https://hdl.handle.net/1956/21877 https://doi.org/10.1002/brb3.1422 eng eng Wiley urn:issn:2162-3279 https://hdl.handle.net/1956/21877 https://doi.org/10.1002/brb3.1422 cristin:1747261 Attribution CC BY http://creativecommons.org/licenses/by/4.0/ Copyright 2019 The Author(s) Brain and Behavior Epidemiology health registries Multiple sclerosis validation Peer reviewed Journal article 2020 ftunivbergen https://doi.org/10.1002/brb3.1422 2023-03-14T17:42:51Z Background: Health registries may yield important data for epidemiological studies. However, in order to be a valuable source for information, the registered data have to be correct. Objectives: The aim of the study was to validate data from the Norwegian Patient Registry (NPR) regarding multiple sclerosis (MS). Materials and Methods: We obtained data on individuals residing in Nordland County and registered with a MS diagnosis in the NPR or in local hospital records. The NPR data included a unique 11‐digit personal identity number that made it possible to identify the individuals medical records. For each individual registered with MS in the NPR, the hospital record was scrutinized in order to confirm or rule out the diagnosis. Results: In Nordland County, 657 individuals had MS 1 January 2017. Of these, 637 were recorded with a correct diagnosis of MS in the NPR, while 59 were recorded incorrectly. Incorrect registration was due to a diagnosis that did not fulfill the diagnostic criteria, later investigation had ruled out MS or it was an error in the diagnostic code registration process. Twenty individuals were not registered with MS in the NPR. These were patients who received their diagnosis before data in the NPR were person identifiable (before 2008), and who later had no MS‐registered contact with public specialist healthcare services. The sensitivity is 0.97, and the positive predictive value is 0.92. Conclusion: Data from the NPR gave a good estimate of the occurrence of MS, but nearly one in 10 registered diagnoses was not correct. publishedVersion Article in Journal/Newspaper Nordland Nordland Nordland University of Bergen: Bergen Open Research Archive (BORA-UiB) Brain and Behavior 9 11 |
institution |
Open Polar |
collection |
University of Bergen: Bergen Open Research Archive (BORA-UiB) |
op_collection_id |
ftunivbergen |
language |
English |
topic |
Epidemiology health registries Multiple sclerosis validation |
spellingShingle |
Epidemiology health registries Multiple sclerosis validation Benjaminsen, Espen Myhr, Kjell-Morten Grytten, Nina Alstadhaug, Karl Bjørnar Validation of the multiple sclerosis diagnosis in the Norwegian Patient Registry |
topic_facet |
Epidemiology health registries Multiple sclerosis validation |
description |
Background: Health registries may yield important data for epidemiological studies. However, in order to be a valuable source for information, the registered data have to be correct. Objectives: The aim of the study was to validate data from the Norwegian Patient Registry (NPR) regarding multiple sclerosis (MS). Materials and Methods: We obtained data on individuals residing in Nordland County and registered with a MS diagnosis in the NPR or in local hospital records. The NPR data included a unique 11‐digit personal identity number that made it possible to identify the individuals medical records. For each individual registered with MS in the NPR, the hospital record was scrutinized in order to confirm or rule out the diagnosis. Results: In Nordland County, 657 individuals had MS 1 January 2017. Of these, 637 were recorded with a correct diagnosis of MS in the NPR, while 59 were recorded incorrectly. Incorrect registration was due to a diagnosis that did not fulfill the diagnostic criteria, later investigation had ruled out MS or it was an error in the diagnostic code registration process. Twenty individuals were not registered with MS in the NPR. These were patients who received their diagnosis before data in the NPR were person identifiable (before 2008), and who later had no MS‐registered contact with public specialist healthcare services. The sensitivity is 0.97, and the positive predictive value is 0.92. Conclusion: Data from the NPR gave a good estimate of the occurrence of MS, but nearly one in 10 registered diagnoses was not correct. publishedVersion |
format |
Article in Journal/Newspaper |
author |
Benjaminsen, Espen Myhr, Kjell-Morten Grytten, Nina Alstadhaug, Karl Bjørnar |
author_facet |
Benjaminsen, Espen Myhr, Kjell-Morten Grytten, Nina Alstadhaug, Karl Bjørnar |
author_sort |
Benjaminsen, Espen |
title |
Validation of the multiple sclerosis diagnosis in the Norwegian Patient Registry |
title_short |
Validation of the multiple sclerosis diagnosis in the Norwegian Patient Registry |
title_full |
Validation of the multiple sclerosis diagnosis in the Norwegian Patient Registry |
title_fullStr |
Validation of the multiple sclerosis diagnosis in the Norwegian Patient Registry |
title_full_unstemmed |
Validation of the multiple sclerosis diagnosis in the Norwegian Patient Registry |
title_sort |
validation of the multiple sclerosis diagnosis in the norwegian patient registry |
publisher |
Wiley |
publishDate |
2020 |
url |
https://hdl.handle.net/1956/21877 https://doi.org/10.1002/brb3.1422 |
genre |
Nordland Nordland Nordland |
genre_facet |
Nordland Nordland Nordland |
op_source |
Brain and Behavior |
op_relation |
urn:issn:2162-3279 https://hdl.handle.net/1956/21877 https://doi.org/10.1002/brb3.1422 cristin:1747261 |
op_rights |
Attribution CC BY http://creativecommons.org/licenses/by/4.0/ Copyright 2019 The Author(s) |
op_doi |
https://doi.org/10.1002/brb3.1422 |
container_title |
Brain and Behavior |
container_volume |
9 |
container_issue |
11 |
_version_ |
1766115697572708352 |