Perspectives on rehabilitation for Aboriginal people with stroke: a qualitative study
Published online: 28 Jun 2021 Background Aboriginal and Torres Strait Islander (hereinafter respectfully termed Aboriginal) people have a greater incidence of stroke at a younger age than non-Indigenous people in Australia. The needs and preferences of Aboriginal people for rehabilitation and longer...
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ftunivadelaidedl:oai:digital.library.adelaide.edu.au:2440/131483 2023-12-24T10:16:47+01:00 Perspectives on rehabilitation for Aboriginal people with stroke: a qualitative study Kelly, J. Dowling, A. Hillier, S. Brown, A. Kleinig, T. Goldsmith, K. McBride, K. Pandian, J. Castle, S. Thrift, A.G. 2022 http://hdl.handle.net/2440/131483 https://doi.org/10.1080/10749357.2021.1911771 en eng Taylor & Francis http://purl.org/au-research/grants/nhmrc/1042600 Topics in Stroke Rehabilitation, 2022; 29(4):295-309 1074-9357 1945-5119 http://hdl.handle.net/2440/131483 doi:10.1080/10749357.2021.1911771 Kelly, J. [0000-0002-7497-302X] Brown, A. [0000-0003-2112-3918] Kleinig, T. [0000-0003-4430-3276] © 2021 Taylor & Francis Group, LLC. http://dx.doi.org/10.1080/10749357.2021.1911771 Stroke rehabilitation Aboriginal Torres Strait Islander Indigenous first nations Journal article 2022 ftunivadelaidedl https://doi.org/10.1080/10749357.2021.1911771 2023-11-27T23:28:07Z Published online: 28 Jun 2021 Background Aboriginal and Torres Strait Islander (hereinafter respectfully termed Aboriginal) people have a greater incidence of stroke at a younger age than non-Indigenous people in Australia. The needs and preferences of Aboriginal people for rehabilitation and longer-term support remain largely unknown. Objectives To identify the long-term rehabilitation needs of Aboriginal people who have a stroke, from the perspectives of Aboriginal persons with stroke and health care providers. Methods . Aboriginal people who had experienced stroke in the previous three years were interviewed to obtain their experiences of rehabilitation care. Health professionals who provided care in each of six designated hospitals and nearby community health sites were involved in focus groups and individual interviews. Information obtained was thematically analyzed separately for Aboriginal people with stroke and health professionals, and compared using Nvivo.Results Among six Aboriginal people with stroke and 78 healthcare providers, four main themes emerged: the importance of family; variable access to services; the impact of stroke on Aboriginal peoples' lives; and making positive choices. Communication and involvement of family was highlighted as essential for a shared understanding, particularly when making decisions about participating in short and long-term rehabilitation. Co-morbidities, conflicting priorities, and inadequate or inflexible services and transport compounded issues with changing life roles. Stories of resilience were also shared.Conclusions Aboriginal people report making positive lifestyle changes, but experience significant unmet rehabilitation needs. Addressing issues of communication, advocacy and flexible delivery should improve some of the shortfalls in service provision, particularly in regional and remote areas. Janet Kelly, Anna Dowling, Susan Hillier, Alex Brown, Timothy Kleinig, Kendall Goldsmith, Katharine McBride, Jeyaraj Pandian, Sally Castle, and Amanda G Thrift Article in Journal/Newspaper First Nations The University of Adelaide: Digital Library Kendall ENVELOPE(-59.828,-59.828,-63.497,-63.497) Dowling ENVELOPE(-98.050,-98.050,-72.517,-72.517) Topics in Stroke Rehabilitation 1 15 |
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The University of Adelaide: Digital Library |
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English |
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Stroke rehabilitation Aboriginal Torres Strait Islander Indigenous first nations |
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Stroke rehabilitation Aboriginal Torres Strait Islander Indigenous first nations Kelly, J. Dowling, A. Hillier, S. Brown, A. Kleinig, T. Goldsmith, K. McBride, K. Pandian, J. Castle, S. Thrift, A.G. Perspectives on rehabilitation for Aboriginal people with stroke: a qualitative study |
topic_facet |
Stroke rehabilitation Aboriginal Torres Strait Islander Indigenous first nations |
description |
Published online: 28 Jun 2021 Background Aboriginal and Torres Strait Islander (hereinafter respectfully termed Aboriginal) people have a greater incidence of stroke at a younger age than non-Indigenous people in Australia. The needs and preferences of Aboriginal people for rehabilitation and longer-term support remain largely unknown. Objectives To identify the long-term rehabilitation needs of Aboriginal people who have a stroke, from the perspectives of Aboriginal persons with stroke and health care providers. Methods . Aboriginal people who had experienced stroke in the previous three years were interviewed to obtain their experiences of rehabilitation care. Health professionals who provided care in each of six designated hospitals and nearby community health sites were involved in focus groups and individual interviews. Information obtained was thematically analyzed separately for Aboriginal people with stroke and health professionals, and compared using Nvivo.Results Among six Aboriginal people with stroke and 78 healthcare providers, four main themes emerged: the importance of family; variable access to services; the impact of stroke on Aboriginal peoples' lives; and making positive choices. Communication and involvement of family was highlighted as essential for a shared understanding, particularly when making decisions about participating in short and long-term rehabilitation. Co-morbidities, conflicting priorities, and inadequate or inflexible services and transport compounded issues with changing life roles. Stories of resilience were also shared.Conclusions Aboriginal people report making positive lifestyle changes, but experience significant unmet rehabilitation needs. Addressing issues of communication, advocacy and flexible delivery should improve some of the shortfalls in service provision, particularly in regional and remote areas. Janet Kelly, Anna Dowling, Susan Hillier, Alex Brown, Timothy Kleinig, Kendall Goldsmith, Katharine McBride, Jeyaraj Pandian, Sally Castle, and Amanda G Thrift |
format |
Article in Journal/Newspaper |
author |
Kelly, J. Dowling, A. Hillier, S. Brown, A. Kleinig, T. Goldsmith, K. McBride, K. Pandian, J. Castle, S. Thrift, A.G. |
author_facet |
Kelly, J. Dowling, A. Hillier, S. Brown, A. Kleinig, T. Goldsmith, K. McBride, K. Pandian, J. Castle, S. Thrift, A.G. |
author_sort |
Kelly, J. |
title |
Perspectives on rehabilitation for Aboriginal people with stroke: a qualitative study |
title_short |
Perspectives on rehabilitation for Aboriginal people with stroke: a qualitative study |
title_full |
Perspectives on rehabilitation for Aboriginal people with stroke: a qualitative study |
title_fullStr |
Perspectives on rehabilitation for Aboriginal people with stroke: a qualitative study |
title_full_unstemmed |
Perspectives on rehabilitation for Aboriginal people with stroke: a qualitative study |
title_sort |
perspectives on rehabilitation for aboriginal people with stroke: a qualitative study |
publisher |
Taylor & Francis |
publishDate |
2022 |
url |
http://hdl.handle.net/2440/131483 https://doi.org/10.1080/10749357.2021.1911771 |
long_lat |
ENVELOPE(-59.828,-59.828,-63.497,-63.497) ENVELOPE(-98.050,-98.050,-72.517,-72.517) |
geographic |
Kendall Dowling |
geographic_facet |
Kendall Dowling |
genre |
First Nations |
genre_facet |
First Nations |
op_source |
http://dx.doi.org/10.1080/10749357.2021.1911771 |
op_relation |
http://purl.org/au-research/grants/nhmrc/1042600 Topics in Stroke Rehabilitation, 2022; 29(4):295-309 1074-9357 1945-5119 http://hdl.handle.net/2440/131483 doi:10.1080/10749357.2021.1911771 Kelly, J. [0000-0002-7497-302X] Brown, A. [0000-0003-2112-3918] Kleinig, T. [0000-0003-4430-3276] |
op_rights |
© 2021 Taylor & Francis Group, LLC. |
op_doi |
https://doi.org/10.1080/10749357.2021.1911771 |
container_title |
Topics in Stroke Rehabilitation |
container_start_page |
1 |
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15 |
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