Supporting the Journey Home: The Process of Co-designing an Education Program to Strengthen Palliative Care Capacity in First Nations Communities
In Ontario, Canada, several training programs have been created to improve home-based palliative care in First Nations communities, though they primarily focus on meeting needs at end-of-life. Therefore, education focused on incorporating an early palliative care approach for community health-relate...
Main Authors: | , , , , , , , , , , , , , |
---|---|
Format: | Article in Journal/Newspaper |
Language: | English |
Published: |
Waakebiness-Bryce Institute for Indigenous Health
2024
|
Subjects: | |
Online Access: | https://jps.library.utoronto.ca/index.php/ijih/article/view/40944 |
id |
ftunitorontoojs:oai:jps.library.utoronto.ca:article/40944 |
---|---|
record_format |
openpolar |
spelling |
ftunitorontoojs:oai:jps.library.utoronto.ca:article/40944 2024-09-15T18:06:17+00:00 Supporting the Journey Home: The Process of Co-designing an Education Program to Strengthen Palliative Care Capacity in First Nations Communities Seow, Hsien Vautour, Joanna Bishop, Valerie Antone, Chantel Belleau, Tessa Corbiere, Brett Fruch, Verna McCormick, Laura Monture, Lori Civak, Margaret Jyothi Kumar, Shilpa McMillan, Kayla Bainbridge, Daryl Cano, Robin 2024-03-17 application/pdf https://jps.library.utoronto.ca/index.php/ijih/article/view/40944 eng eng Waakebiness-Bryce Institute for Indigenous Health https://jps.library.utoronto.ca/index.php/ijih/article/view/40944/32566 https://jps.library.utoronto.ca/index.php/ijih/article/view/40944 Copyright (c) 2024 Hsien Seow, Joanna Vautour, Valerie Bishop, Chantel Antone, Tessa Belleau, Brett Corbiere, Verna Fruch, Laura McCormick, Lori Monture, Margaret Civak, Shilpa Jyothi Kumar, Kayla McMillan, Daryl Bainbridge, Robin Cano https://creativecommons.org/licenses/by-nc-nd/4.0 International Journal of Indigenous Health; Vol. 19 No. 1 (2024): Research Collaborations that Enhance and Embed Indigenous Ways of Knowing, Being, and Doing 2291-9376 2291-9368 info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion 2024 ftunitorontoojs 2024-06-25T14:24:39Z In Ontario, Canada, several training programs have been created to improve home-based palliative care in First Nations communities, though they primarily focus on meeting needs at end-of-life. Therefore, education focused on incorporating an early palliative care approach for community health-related workers is necessary. To address this gap, we tested the CAPACITI curriculum with 12 health care providers working in First Nations communities across Ontario, 11 of which were members of a First Nations community, and engaged them in a collaborative process to co-design an education program that they felt was representative of First Nations values and culture. The co-designers were trained as nurses (n=8), personal support workers (n=2), a social worker (n=1), and a physician (n=1). We met with them for 12 weekly one hour sessions. They completed a workbook of questions and recommendations to tailor the education to a First Nations community context. We incorporated these recommendations into the new education by reviewing existing material, making notes of suggested changes, and adding new content. We redesigned the education according to several themes: incorporating culture, recognizing First Nations health care workers and knowledge, and approaching education wholistically. The resulting program, Supporting the Journey Home: Growing the Community Bundle to Care for those with Serious Illness, gives First Nations health care providers practical resources to operationalize an early palliative care approach with community members. To our knowledge, this is the first study to describe the co-design process of an existing palliative care education program with First Nations health care providers. Article in Journal/Newspaper First Nations University of Toronto: Journal Publishing Services |
institution |
Open Polar |
collection |
University of Toronto: Journal Publishing Services |
op_collection_id |
ftunitorontoojs |
language |
English |
description |
In Ontario, Canada, several training programs have been created to improve home-based palliative care in First Nations communities, though they primarily focus on meeting needs at end-of-life. Therefore, education focused on incorporating an early palliative care approach for community health-related workers is necessary. To address this gap, we tested the CAPACITI curriculum with 12 health care providers working in First Nations communities across Ontario, 11 of which were members of a First Nations community, and engaged them in a collaborative process to co-design an education program that they felt was representative of First Nations values and culture. The co-designers were trained as nurses (n=8), personal support workers (n=2), a social worker (n=1), and a physician (n=1). We met with them for 12 weekly one hour sessions. They completed a workbook of questions and recommendations to tailor the education to a First Nations community context. We incorporated these recommendations into the new education by reviewing existing material, making notes of suggested changes, and adding new content. We redesigned the education according to several themes: incorporating culture, recognizing First Nations health care workers and knowledge, and approaching education wholistically. The resulting program, Supporting the Journey Home: Growing the Community Bundle to Care for those with Serious Illness, gives First Nations health care providers practical resources to operationalize an early palliative care approach with community members. To our knowledge, this is the first study to describe the co-design process of an existing palliative care education program with First Nations health care providers. |
format |
Article in Journal/Newspaper |
author |
Seow, Hsien Vautour, Joanna Bishop, Valerie Antone, Chantel Belleau, Tessa Corbiere, Brett Fruch, Verna McCormick, Laura Monture, Lori Civak, Margaret Jyothi Kumar, Shilpa McMillan, Kayla Bainbridge, Daryl Cano, Robin |
spellingShingle |
Seow, Hsien Vautour, Joanna Bishop, Valerie Antone, Chantel Belleau, Tessa Corbiere, Brett Fruch, Verna McCormick, Laura Monture, Lori Civak, Margaret Jyothi Kumar, Shilpa McMillan, Kayla Bainbridge, Daryl Cano, Robin Supporting the Journey Home: The Process of Co-designing an Education Program to Strengthen Palliative Care Capacity in First Nations Communities |
author_facet |
Seow, Hsien Vautour, Joanna Bishop, Valerie Antone, Chantel Belleau, Tessa Corbiere, Brett Fruch, Verna McCormick, Laura Monture, Lori Civak, Margaret Jyothi Kumar, Shilpa McMillan, Kayla Bainbridge, Daryl Cano, Robin |
author_sort |
Seow, Hsien |
title |
Supporting the Journey Home: The Process of Co-designing an Education Program to Strengthen Palliative Care Capacity in First Nations Communities |
title_short |
Supporting the Journey Home: The Process of Co-designing an Education Program to Strengthen Palliative Care Capacity in First Nations Communities |
title_full |
Supporting the Journey Home: The Process of Co-designing an Education Program to Strengthen Palliative Care Capacity in First Nations Communities |
title_fullStr |
Supporting the Journey Home: The Process of Co-designing an Education Program to Strengthen Palliative Care Capacity in First Nations Communities |
title_full_unstemmed |
Supporting the Journey Home: The Process of Co-designing an Education Program to Strengthen Palliative Care Capacity in First Nations Communities |
title_sort |
supporting the journey home: the process of co-designing an education program to strengthen palliative care capacity in first nations communities |
publisher |
Waakebiness-Bryce Institute for Indigenous Health |
publishDate |
2024 |
url |
https://jps.library.utoronto.ca/index.php/ijih/article/view/40944 |
genre |
First Nations |
genre_facet |
First Nations |
op_source |
International Journal of Indigenous Health; Vol. 19 No. 1 (2024): Research Collaborations that Enhance and Embed Indigenous Ways of Knowing, Being, and Doing 2291-9376 2291-9368 |
op_relation |
https://jps.library.utoronto.ca/index.php/ijih/article/view/40944/32566 https://jps.library.utoronto.ca/index.php/ijih/article/view/40944 |
op_rights |
Copyright (c) 2024 Hsien Seow, Joanna Vautour, Valerie Bishop, Chantel Antone, Tessa Belleau, Brett Corbiere, Verna Fruch, Laura McCormick, Lori Monture, Margaret Civak, Shilpa Jyothi Kumar, Kayla McMillan, Daryl Bainbridge, Robin Cano https://creativecommons.org/licenses/by-nc-nd/4.0 |
_version_ |
1810443756829147136 |