Animating the concept of “ethical space”: The Labrador Aboriginal Health Research Committee Ethics Workshop
This paper reports on an innovative process by which the Inuit and First Nations communities of Newfoundland and Labrador confronted and challenged the policies and procedures of the provincial research ethics system. We describe the ways in which these communities engaged with health and university...
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Waakebiness-Bryce Institute for Indigenous Health
2014
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ftunitorontoojs:oai:jps.library.utoronto.ca:article/29024 2023-05-15T16:16:24+02:00 Animating the concept of “ethical space”: The Labrador Aboriginal Health Research Committee Ethics Workshop Brunger, Fern Schiff, Rebecca Morton-Ninomiya, Melody Bull, Julie 2014-12-19 application/pdf https://jps.library.utoronto.ca/index.php/ijih/article/view/29024 https://doi.org/10.3138/ijih.v10i1.29024 eng eng Waakebiness-Bryce Institute for Indigenous Health https://jps.library.utoronto.ca/index.php/ijih/article/view/29024/pdf_2 https://jps.library.utoronto.ca/index.php/ijih/article/view/29024 doi:10.3138/ijih.v10i1.29024 Copyright (c) 2014 Fern Brunger, Rebecca Schiff, Melody Morton-Ninomiya, Julie Bull http://creativecommons.org/licenses/by-nc-nd/4.0/ CC-BY-NC-ND International Journal of Indigenous Health; Vol 10 No 1 (2014); 3-15 2291-9376 2291-9368 10.3138/ijih.v10i1 info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion research-article 2014 ftunitorontoojs https://doi.org/10.3138/ijih.v10i1.29024 https://doi.org/10.3138/ijih.v10i1 2020-12-01T10:53:32Z This paper reports on an innovative process by which the Inuit and First Nations communities of Newfoundland and Labrador confronted and challenged the policies and procedures of the provincial research ethics system. We describe the ways in which these communities engaged with health and university research review administrators to exchange information, identify challenges with existing processes, and outline a strategy for movement forward. We highlight the innovative structure of the process, and show how that resulted in immediate and ongoing community-led reforms to the provincial research ethics boards. Key to the success of the workshop was the fact that diverse stakeholders—community members, community research review administrators, research ethics board administrators, and health board research administrators—came together in an ethical space and worked together to critically interrogate the bureaucratic structure of the government, health, and university-based ethics review processes in the province. Recommendations arising from this process led to changes in the governance of health research involving the province’s Indigenous communities. Article in Journal/Newspaper First Nations inuit Newfoundland University of Toronto: Journal Publishing Services Newfoundland |
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University of Toronto: Journal Publishing Services |
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ftunitorontoojs |
language |
English |
description |
This paper reports on an innovative process by which the Inuit and First Nations communities of Newfoundland and Labrador confronted and challenged the policies and procedures of the provincial research ethics system. We describe the ways in which these communities engaged with health and university research review administrators to exchange information, identify challenges with existing processes, and outline a strategy for movement forward. We highlight the innovative structure of the process, and show how that resulted in immediate and ongoing community-led reforms to the provincial research ethics boards. Key to the success of the workshop was the fact that diverse stakeholders—community members, community research review administrators, research ethics board administrators, and health board research administrators—came together in an ethical space and worked together to critically interrogate the bureaucratic structure of the government, health, and university-based ethics review processes in the province. Recommendations arising from this process led to changes in the governance of health research involving the province’s Indigenous communities. |
format |
Article in Journal/Newspaper |
author |
Brunger, Fern Schiff, Rebecca Morton-Ninomiya, Melody Bull, Julie |
spellingShingle |
Brunger, Fern Schiff, Rebecca Morton-Ninomiya, Melody Bull, Julie Animating the concept of “ethical space”: The Labrador Aboriginal Health Research Committee Ethics Workshop |
author_facet |
Brunger, Fern Schiff, Rebecca Morton-Ninomiya, Melody Bull, Julie |
author_sort |
Brunger, Fern |
title |
Animating the concept of “ethical space”: The Labrador Aboriginal Health Research Committee Ethics Workshop |
title_short |
Animating the concept of “ethical space”: The Labrador Aboriginal Health Research Committee Ethics Workshop |
title_full |
Animating the concept of “ethical space”: The Labrador Aboriginal Health Research Committee Ethics Workshop |
title_fullStr |
Animating the concept of “ethical space”: The Labrador Aboriginal Health Research Committee Ethics Workshop |
title_full_unstemmed |
Animating the concept of “ethical space”: The Labrador Aboriginal Health Research Committee Ethics Workshop |
title_sort |
animating the concept of “ethical space”: the labrador aboriginal health research committee ethics workshop |
publisher |
Waakebiness-Bryce Institute for Indigenous Health |
publishDate |
2014 |
url |
https://jps.library.utoronto.ca/index.php/ijih/article/view/29024 https://doi.org/10.3138/ijih.v10i1.29024 |
geographic |
Newfoundland |
geographic_facet |
Newfoundland |
genre |
First Nations inuit Newfoundland |
genre_facet |
First Nations inuit Newfoundland |
op_source |
International Journal of Indigenous Health; Vol 10 No 1 (2014); 3-15 2291-9376 2291-9368 10.3138/ijih.v10i1 |
op_relation |
https://jps.library.utoronto.ca/index.php/ijih/article/view/29024/pdf_2 https://jps.library.utoronto.ca/index.php/ijih/article/view/29024 doi:10.3138/ijih.v10i1.29024 |
op_rights |
Copyright (c) 2014 Fern Brunger, Rebecca Schiff, Melody Morton-Ninomiya, Julie Bull http://creativecommons.org/licenses/by-nc-nd/4.0/ |
op_rightsnorm |
CC-BY-NC-ND |
op_doi |
https://doi.org/10.3138/ijih.v10i1.29024 https://doi.org/10.3138/ijih.v10i1 |
_version_ |
1766002268678651904 |