Ethical Space for a Sensitive Research Topic: Engaging First Nations Women in the Development of Culturally Safe Human Papillomavirus Screening
Human papillomavirus (HPV) is a sexually transmitted infection (STI) and the main risk factor for cervical cancer. Cervical cancer is highly preventable with regular screening, especially when using HPV testing. In Canada, an up to 20-fold higher rate of this cancer has been reported in First Nation...
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Waakebiness-Bryce Institute for Indigenous Health
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ftunitorontoojs:oai:jps.library.utoronto.ca:article/29013 2023-05-15T16:13:59+02:00 Ethical Space for a Sensitive Research Topic: Engaging First Nations Women in the Development of Culturally Safe Human Papillomavirus Screening Zehbe, Ingeborg Maar, Marion Nahwegahbow, Amy J. Berst, Kayla SM Pintar, Janine 2013-06-09 application/pdf https://jps.library.utoronto.ca/index.php/ijih/article/view/29013 https://doi.org/10.3138/ijih.v8i1.29013 eng eng Waakebiness-Bryce Institute for Indigenous Health https://jps.library.utoronto.ca/index.php/ijih/article/view/29013/23853 https://jps.library.utoronto.ca/index.php/ijih/article/view/29013 doi:10.3138/ijih.v8i1.29013 Copyright (c) 2017 International Journal of Indigenous Health International Journal of Indigenous Health; Vol 8 No 1 (2012): Journal of Aboriginal Health; 41-50 2291-9376 2291-9368 10.3138/ijih.v8i1 Cervical cancer screening Pap smear HPV test participatory action research ethical space First Nations women info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion 2013 ftunitorontoojs https://doi.org/10.3138/ijih.v8i1.29013 https://doi.org/10.3138/ijih.v8i1 2020-12-01T10:53:32Z Human papillomavirus (HPV) is a sexually transmitted infection (STI) and the main risk factor for cervical cancer. Cervical cancer is highly preventable with regular screening, especially when using HPV testing. In Canada, an up to 20-fold higher rate of this cancer has been reported in First Nations women compared to the mainstream population, possibly associated with under-screening, barriers to follow-up treatment, and a pervasive lack of access to culturally safe screening services. As a foundation for the development of culturally safe screening methods in First Nations communities in northwest Ontario, we have developed a participatory action research approach based on respectful and meaningful collaboration with First Nations women, community health care providers, and community leaders. Being mindful of the schism that exists between Western public health approaches to cervical cancer screening and First Nations women’s experiences thereof, we adopted Ermine’s interpretation of ethical space to initiate dialogues with First Nations communities on this sensitive topic. We used an iterative approach to continuously widen the ethical space of engagement through several cycles of increasing dialogue with First Nations stakeholders. This approach resulted in a rich exchange of knowledge between community stakeholders and our research team, leading to the development of a shared plan for First Nations HPV research. Because of this successful engagement process, a pilot study in one First Nations community in northwest Ontario has been completed and there is support from ten First Nations communities for a large-scale study involving up to 1,000 women. Ethical space served as the foundation for a meaningful dialogue in this participatory action research approach and can be adapted to fit other research projects in similar settings. Article in Journal/Newspaper First Nations University of Toronto: Journal Publishing Services Canada |
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Open Polar |
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University of Toronto: Journal Publishing Services |
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ftunitorontoojs |
language |
English |
topic |
Cervical cancer screening Pap smear HPV test participatory action research ethical space First Nations women |
spellingShingle |
Cervical cancer screening Pap smear HPV test participatory action research ethical space First Nations women Zehbe, Ingeborg Maar, Marion Nahwegahbow, Amy J. Berst, Kayla SM Pintar, Janine Ethical Space for a Sensitive Research Topic: Engaging First Nations Women in the Development of Culturally Safe Human Papillomavirus Screening |
topic_facet |
Cervical cancer screening Pap smear HPV test participatory action research ethical space First Nations women |
description |
Human papillomavirus (HPV) is a sexually transmitted infection (STI) and the main risk factor for cervical cancer. Cervical cancer is highly preventable with regular screening, especially when using HPV testing. In Canada, an up to 20-fold higher rate of this cancer has been reported in First Nations women compared to the mainstream population, possibly associated with under-screening, barriers to follow-up treatment, and a pervasive lack of access to culturally safe screening services. As a foundation for the development of culturally safe screening methods in First Nations communities in northwest Ontario, we have developed a participatory action research approach based on respectful and meaningful collaboration with First Nations women, community health care providers, and community leaders. Being mindful of the schism that exists between Western public health approaches to cervical cancer screening and First Nations women’s experiences thereof, we adopted Ermine’s interpretation of ethical space to initiate dialogues with First Nations communities on this sensitive topic. We used an iterative approach to continuously widen the ethical space of engagement through several cycles of increasing dialogue with First Nations stakeholders. This approach resulted in a rich exchange of knowledge between community stakeholders and our research team, leading to the development of a shared plan for First Nations HPV research. Because of this successful engagement process, a pilot study in one First Nations community in northwest Ontario has been completed and there is support from ten First Nations communities for a large-scale study involving up to 1,000 women. Ethical space served as the foundation for a meaningful dialogue in this participatory action research approach and can be adapted to fit other research projects in similar settings. |
format |
Article in Journal/Newspaper |
author |
Zehbe, Ingeborg Maar, Marion Nahwegahbow, Amy J. Berst, Kayla SM Pintar, Janine |
author_facet |
Zehbe, Ingeborg Maar, Marion Nahwegahbow, Amy J. Berst, Kayla SM Pintar, Janine |
author_sort |
Zehbe, Ingeborg |
title |
Ethical Space for a Sensitive Research Topic: Engaging First Nations Women in the Development of Culturally Safe Human Papillomavirus Screening |
title_short |
Ethical Space for a Sensitive Research Topic: Engaging First Nations Women in the Development of Culturally Safe Human Papillomavirus Screening |
title_full |
Ethical Space for a Sensitive Research Topic: Engaging First Nations Women in the Development of Culturally Safe Human Papillomavirus Screening |
title_fullStr |
Ethical Space for a Sensitive Research Topic: Engaging First Nations Women in the Development of Culturally Safe Human Papillomavirus Screening |
title_full_unstemmed |
Ethical Space for a Sensitive Research Topic: Engaging First Nations Women in the Development of Culturally Safe Human Papillomavirus Screening |
title_sort |
ethical space for a sensitive research topic: engaging first nations women in the development of culturally safe human papillomavirus screening |
publisher |
Waakebiness-Bryce Institute for Indigenous Health |
publishDate |
2013 |
url |
https://jps.library.utoronto.ca/index.php/ijih/article/view/29013 https://doi.org/10.3138/ijih.v8i1.29013 |
geographic |
Canada |
geographic_facet |
Canada |
genre |
First Nations |
genre_facet |
First Nations |
op_source |
International Journal of Indigenous Health; Vol 8 No 1 (2012): Journal of Aboriginal Health; 41-50 2291-9376 2291-9368 10.3138/ijih.v8i1 |
op_relation |
https://jps.library.utoronto.ca/index.php/ijih/article/view/29013/23853 https://jps.library.utoronto.ca/index.php/ijih/article/view/29013 doi:10.3138/ijih.v8i1.29013 |
op_rights |
Copyright (c) 2017 International Journal of Indigenous Health |
op_doi |
https://doi.org/10.3138/ijih.v8i1.29013 https://doi.org/10.3138/ijih.v8i1 |
_version_ |
1765999824139714560 |