Analiza problemov staršev otrok z motnjo avtističnega spektra

• Main Author: Krsnik, Josipa
• Other Authors: Masten, Robert
• Format: Master Thesis
• Language: Slovenian
• Published: J. Krsnik 2021
• Subjects: motnje avtističnega spektra; otroci; starši; družina; podpora; autism spectrum disorders; children; parents; family; support; info:eu-repo/classification/udc/616.896:316.36(043.2); sami
• Online Access: https://repozitorij.uni-lj.si/IzpisGradiva.php?id=124823; https://repozitorij.uni-lj.si/Dokument.php?id=140442&dn=; https://plus.si.cobiss.net/opac7/bib/56603139?lang=sl

Diagnoza motnje avtističnega spektra lahko spremeni dinamiko družine in tudi celotno družinsko delovanje. Družine, ki imajo otroka z motnjo avtističnega spektra, se soočajo z drugačnimi izzivi kot normativne družine. Tako me je v magistrski nalogi zanimalo, s kakšnimi težavami se soočajo starši otrok z motnjo avtističnega spektra. Zanimale so me težave, povezane z diagnosticiranjem motnje avtističnega spektra, z vzgojo otroka, z izobraževanjem otroka, predvsem pa občutki, s katerimi se soočajo starši in na kak način se je ob diagnozi odzvalo okolje družine. Starša sta lahko zelo obremenjena in to lahko vpliva negativno na njihovo psihično zdravje in življenjsko blagostanje. V raziskavo je bilo vključenih 7 staršev, ki so sodelovali v polstrukturiranem intervjuju. Rezultati so pokazali, da so starši zelo obremenjeni od postavitve diagnoze do razmišljanja o otrokovi prihodnosti. Manj staršev poroča o težavah s šolanjem otroka, o težavah v odnosu s partnerjem, med prijatelji in pri sami podpori. Več težav opisujejo pri postavljanju diagnoze, pri strahu in skrbeh, ki jih v veliki meri povezujejo s prihodnostjo otroka in na splošno z negativnimi izkušnjami, ki so povezane z različnimi vedenji otroka, ki jih starši ocenjujejo kot negativne. Pridobljeni rezultati magistrske raziskave so lahko podlaga za nadaljnja raziskovanja tako s temi družinami kot na samem področju diagnosticiranja otrok z motnjo avtističnega spektra, predvsem v smislu, kako pomagati staršem s psihično podporo kot tudi na drugih področjih, ki so jih sami navedli kot težavna. Receiving a diagnosis of autism spectrum disorder can change family dynamics as well as overall family functioning. Families who have a child with autism spectrum disorder face different challenges than normative families. Therefore, the main focus of my master's thesis are problems that parents of children with autism spectrum disorder face. I was interested in the problems related to diagnosing the autism spectrum disorder, raising and educating the child, the feelings that parents deal with and how the family environment reacted. Parents can be very stressed and this can negatively affect their mental health and well-being. Seven parents participated in the study and they took part in a semi-structured interview. The results showed that parents carry a heavy burden from receiving a diagnosis to pondering about the child’s future. Fewer parents report problems with their child’s schooling, relationship with their partner and friends, and receiving support. The majority of the issues the parents face are connected to formulating the diagnosis, and to concerns regarding the child’s future, and in general, to the negative experiences, stemming from the child’s behavior, which the parents evaluate as negative. The results of the master’s thesis can serve as the basis for further research with these families, both in the field of diagnosing children with autism spectrum disorder, psychological support for parents, as well as in other areas which the parents described as being problematic.