The ethics and governance of human genetic databases ::European perspectives /
The Medical Biobank of Umeå in Sweden, deCODE's Health Sector Database in Iceland, the Estonian Genome Project and the UK Biobank contain health data and genetic data from large populations. Some include genealogical or lifestyle information. They are resources for research in human genetics a...
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ftunicalfberklaw:oai:lawcat.berkeley.edu:1173674 2024-09-15T18:13:54+00:00 The ethics and governance of human genetic databases ::European perspectives / Häyry, Matti 2020-07-14T18:58:17Z http://lawcat.berkeley.edu/record/1173674 https://doi.org/10.1017/CBO9780511611087 unknown https://doi.org/10.1017/CBO9780511611087 http://lawcat.berkeley.edu/record/1173674 http://lawcat.berkeley.edu/record/1173674 Text 2020 ftunicalfberklaw https://doi.org/10.1017/CBO9780511611087 2024-08-26T15:43:47Z The Medical Biobank of Umeå in Sweden, deCODE's Health Sector Database in Iceland, the Estonian Genome Project and the UK Biobank contain health data and genetic data from large populations. Some include genealogical or lifestyle information. They are resources for research in human genetics and medicine, exploring interaction between genes, lifestyle, environmental factors and health and diseases. The collection, storage and use of this data raise ethical, legal and social issues. In this book, first published in 2007, bioethics scholars examine whether existing ethical frameworks and social policies reflect people's concerns, and how they may need to change in light of new scientific and technological developments. The ethical issues of social justice, genetic discrimination, informational privacy, trust in science and consent to participation in database research are analyzed, whilst an empirical survey, conducted in the four countries, demonstrates public views of privacy and related moral values in the context of human genetic databases. Text Iceland Berkeley Law (University of California, Berkeley) |
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Berkeley Law (University of California, Berkeley) |
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ftunicalfberklaw |
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description |
The Medical Biobank of Umeå in Sweden, deCODE's Health Sector Database in Iceland, the Estonian Genome Project and the UK Biobank contain health data and genetic data from large populations. Some include genealogical or lifestyle information. They are resources for research in human genetics and medicine, exploring interaction between genes, lifestyle, environmental factors and health and diseases. The collection, storage and use of this data raise ethical, legal and social issues. In this book, first published in 2007, bioethics scholars examine whether existing ethical frameworks and social policies reflect people's concerns, and how they may need to change in light of new scientific and technological developments. The ethical issues of social justice, genetic discrimination, informational privacy, trust in science and consent to participation in database research are analyzed, whilst an empirical survey, conducted in the four countries, demonstrates public views of privacy and related moral values in the context of human genetic databases. |
format |
Text |
author |
Häyry, Matti |
spellingShingle |
Häyry, Matti The ethics and governance of human genetic databases ::European perspectives / |
author_facet |
Häyry, Matti |
author_sort |
Häyry, Matti |
title |
The ethics and governance of human genetic databases ::European perspectives / |
title_short |
The ethics and governance of human genetic databases ::European perspectives / |
title_full |
The ethics and governance of human genetic databases ::European perspectives / |
title_fullStr |
The ethics and governance of human genetic databases ::European perspectives / |
title_full_unstemmed |
The ethics and governance of human genetic databases ::European perspectives / |
title_sort |
ethics and governance of human genetic databases ::european perspectives / |
publishDate |
2020 |
url |
http://lawcat.berkeley.edu/record/1173674 https://doi.org/10.1017/CBO9780511611087 |
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Iceland |
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Iceland |
op_source |
http://lawcat.berkeley.edu/record/1173674 |
op_relation |
https://doi.org/10.1017/CBO9780511611087 http://lawcat.berkeley.edu/record/1173674 |
op_doi |
https://doi.org/10.1017/CBO9780511611087 |
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1810451678598529024 |