Preferences for prenatal tests for Down syndrome:an international comparison of the views of pregnant women and health professionals
Non-invasive prenatal testing is increasingly available worldwide and stakeholder viewpoints are essential to guide implementation. Here we compare the preferences of women and health professionals from nine different countries towards attributes of non-invasive and invasive prenatal tests for Down...
Published in: | European Journal of Human Genetics |
---|---|
Main Authors: | , , , , , , , , , , , , , , , , , , , , , , , , , , , , , |
Format: | Article in Journal/Newspaper |
Language: | English |
Published: |
2016
|
Subjects: | |
Online Access: | https://pure.au.dk/portal/da/publications/preferences-for-prenatal-tests-for-down-syndrome(e14997b5-16fc-472f-bb4a-dae066ae8af2).html https://doi.org/10.1038/ejhg.2015.249 |
id |
ftuniaarhuspubl:oai:pure.atira.dk:publications/e14997b5-16fc-472f-bb4a-dae066ae8af2 |
---|---|
record_format |
openpolar |
spelling |
ftuniaarhuspubl:oai:pure.atira.dk:publications/e14997b5-16fc-472f-bb4a-dae066ae8af2 2023-05-15T16:50:28+02:00 Preferences for prenatal tests for Down syndrome:an international comparison of the views of pregnant women and health professionals Hill, Melissa Johnson, Jo-Ann Langlois, Sylvie Lee, Hyun Winsor, Stephanie Dineley, Brigid Horniachek, Marisa Lalatta, Faustina Ronzoni, Luisa Barrett, Angela N Advani, Henna V Choolani, Mahesh Rabinowitz, Ron Pajkrt, Eva van Schendel, Rachèl V Henneman, Lidewij Rommers, Wieke Bilardo, Caterina M Rendeiro, Paula Ribeiro, Maria João Rocha, José Lund, Ida Charlotte Bay Petersen, Olav B Becher, Naja Vogel, Ida Stefánsdottir, Vigdis Ingvarsdottir, Sigrun Gottfredsdottir, Helga Morris, Stephen Chitty, Lyn S 2016 https://pure.au.dk/portal/da/publications/preferences-for-prenatal-tests-for-down-syndrome(e14997b5-16fc-472f-bb4a-dae066ae8af2).html https://doi.org/10.1038/ejhg.2015.249 eng eng info:eu-repo/semantics/restrictedAccess Hill , M , Johnson , J-A , Langlois , S , Lee , H , Winsor , S , Dineley , B , Horniachek , M , Lalatta , F , Ronzoni , L , Barrett , A N , Advani , H V , Choolani , M , Rabinowitz , R , Pajkrt , E , van Schendel , R V , Henneman , L , Rommers , W , Bilardo , C M , Rendeiro , P , Ribeiro , M J , Rocha , J , Lund , I C B , Petersen , O B , Becher , N , Vogel , I , Stefánsdottir , V , Ingvarsdottir , S , Gottfredsdottir , H , Morris , S & Chitty , L S 2016 , ' Preferences for prenatal tests for Down syndrome : an international comparison of the views of pregnant women and health professionals ' , European Journal of Human Genetics , vol. 24 , pp. 968-975 . https://doi.org/10.1038/ejhg.2015.249 article 2016 ftuniaarhuspubl https://doi.org/10.1038/ejhg.2015.249 2022-03-23T23:50:16Z Non-invasive prenatal testing is increasingly available worldwide and stakeholder viewpoints are essential to guide implementation. Here we compare the preferences of women and health professionals from nine different countries towards attributes of non-invasive and invasive prenatal tests for Down syndrome. A discrete choice experiment was used to obtain participants' stated preference for prenatal tests that varied according to four attributes: accuracy, time of test, risk of miscarriage, and type of information. Pregnant women and health professionals were recruited from Canada, Denmark, Iceland, Israel, Italy, the Netherlands, Portugal, Singapore, and the United Kingdom. A total of 2666 women's and 1245 health professionals' questionnaires were included in the analysis. Differences in preferences were seen between women and health professionals within and between countries. Overall, women placed greater emphasis on test safety and comprehensive information than health professionals, who emphasised accuracy and early testing. Differences between women's and health professionals' preferences are marked between countries. Varied approaches to implementation and service delivery are therefore needed and individual countries should develop guidelines appropriate for their own social and screening contexts.European Journal of Human Genetics advance online publication, 18 November 2015; doi:10.1038/ejhg.2015.249. Article in Journal/Newspaper Iceland Aarhus University: Research Canada European Journal of Human Genetics 24 7 968 975 |
institution |
Open Polar |
collection |
Aarhus University: Research |
op_collection_id |
ftuniaarhuspubl |
language |
English |
description |
Non-invasive prenatal testing is increasingly available worldwide and stakeholder viewpoints are essential to guide implementation. Here we compare the preferences of women and health professionals from nine different countries towards attributes of non-invasive and invasive prenatal tests for Down syndrome. A discrete choice experiment was used to obtain participants' stated preference for prenatal tests that varied according to four attributes: accuracy, time of test, risk of miscarriage, and type of information. Pregnant women and health professionals were recruited from Canada, Denmark, Iceland, Israel, Italy, the Netherlands, Portugal, Singapore, and the United Kingdom. A total of 2666 women's and 1245 health professionals' questionnaires were included in the analysis. Differences in preferences were seen between women and health professionals within and between countries. Overall, women placed greater emphasis on test safety and comprehensive information than health professionals, who emphasised accuracy and early testing. Differences between women's and health professionals' preferences are marked between countries. Varied approaches to implementation and service delivery are therefore needed and individual countries should develop guidelines appropriate for their own social and screening contexts.European Journal of Human Genetics advance online publication, 18 November 2015; doi:10.1038/ejhg.2015.249. |
format |
Article in Journal/Newspaper |
author |
Hill, Melissa Johnson, Jo-Ann Langlois, Sylvie Lee, Hyun Winsor, Stephanie Dineley, Brigid Horniachek, Marisa Lalatta, Faustina Ronzoni, Luisa Barrett, Angela N Advani, Henna V Choolani, Mahesh Rabinowitz, Ron Pajkrt, Eva van Schendel, Rachèl V Henneman, Lidewij Rommers, Wieke Bilardo, Caterina M Rendeiro, Paula Ribeiro, Maria João Rocha, José Lund, Ida Charlotte Bay Petersen, Olav B Becher, Naja Vogel, Ida Stefánsdottir, Vigdis Ingvarsdottir, Sigrun Gottfredsdottir, Helga Morris, Stephen Chitty, Lyn S |
spellingShingle |
Hill, Melissa Johnson, Jo-Ann Langlois, Sylvie Lee, Hyun Winsor, Stephanie Dineley, Brigid Horniachek, Marisa Lalatta, Faustina Ronzoni, Luisa Barrett, Angela N Advani, Henna V Choolani, Mahesh Rabinowitz, Ron Pajkrt, Eva van Schendel, Rachèl V Henneman, Lidewij Rommers, Wieke Bilardo, Caterina M Rendeiro, Paula Ribeiro, Maria João Rocha, José Lund, Ida Charlotte Bay Petersen, Olav B Becher, Naja Vogel, Ida Stefánsdottir, Vigdis Ingvarsdottir, Sigrun Gottfredsdottir, Helga Morris, Stephen Chitty, Lyn S Preferences for prenatal tests for Down syndrome:an international comparison of the views of pregnant women and health professionals |
author_facet |
Hill, Melissa Johnson, Jo-Ann Langlois, Sylvie Lee, Hyun Winsor, Stephanie Dineley, Brigid Horniachek, Marisa Lalatta, Faustina Ronzoni, Luisa Barrett, Angela N Advani, Henna V Choolani, Mahesh Rabinowitz, Ron Pajkrt, Eva van Schendel, Rachèl V Henneman, Lidewij Rommers, Wieke Bilardo, Caterina M Rendeiro, Paula Ribeiro, Maria João Rocha, José Lund, Ida Charlotte Bay Petersen, Olav B Becher, Naja Vogel, Ida Stefánsdottir, Vigdis Ingvarsdottir, Sigrun Gottfredsdottir, Helga Morris, Stephen Chitty, Lyn S |
author_sort |
Hill, Melissa |
title |
Preferences for prenatal tests for Down syndrome:an international comparison of the views of pregnant women and health professionals |
title_short |
Preferences for prenatal tests for Down syndrome:an international comparison of the views of pregnant women and health professionals |
title_full |
Preferences for prenatal tests for Down syndrome:an international comparison of the views of pregnant women and health professionals |
title_fullStr |
Preferences for prenatal tests for Down syndrome:an international comparison of the views of pregnant women and health professionals |
title_full_unstemmed |
Preferences for prenatal tests for Down syndrome:an international comparison of the views of pregnant women and health professionals |
title_sort |
preferences for prenatal tests for down syndrome:an international comparison of the views of pregnant women and health professionals |
publishDate |
2016 |
url |
https://pure.au.dk/portal/da/publications/preferences-for-prenatal-tests-for-down-syndrome(e14997b5-16fc-472f-bb4a-dae066ae8af2).html https://doi.org/10.1038/ejhg.2015.249 |
geographic |
Canada |
geographic_facet |
Canada |
genre |
Iceland |
genre_facet |
Iceland |
op_source |
Hill , M , Johnson , J-A , Langlois , S , Lee , H , Winsor , S , Dineley , B , Horniachek , M , Lalatta , F , Ronzoni , L , Barrett , A N , Advani , H V , Choolani , M , Rabinowitz , R , Pajkrt , E , van Schendel , R V , Henneman , L , Rommers , W , Bilardo , C M , Rendeiro , P , Ribeiro , M J , Rocha , J , Lund , I C B , Petersen , O B , Becher , N , Vogel , I , Stefánsdottir , V , Ingvarsdottir , S , Gottfredsdottir , H , Morris , S & Chitty , L S 2016 , ' Preferences for prenatal tests for Down syndrome : an international comparison of the views of pregnant women and health professionals ' , European Journal of Human Genetics , vol. 24 , pp. 968-975 . https://doi.org/10.1038/ejhg.2015.249 |
op_rights |
info:eu-repo/semantics/restrictedAccess |
op_doi |
https://doi.org/10.1038/ejhg.2015.249 |
container_title |
European Journal of Human Genetics |
container_volume |
24 |
container_issue |
7 |
container_start_page |
968 |
op_container_end_page |
975 |
_version_ |
1766040610319368192 |