Children with palliative care needs - the landscape of the nordic countries
BACKGROUND: To strengthen palliative care for children in the Nordic countries, an updated status of current needs, resources, clinical services, education, and research is necessary to align and consolidate future research. A Nordic research collaboration initiative for children with palliative car...
Published in: | BMC Palliative Care |
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2024
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Online Access: | https://pure.au.dk/portal/en/publications/1fad4fe7-1a92-4935-bd04-a911a3ceb3f2 https://doi.org/10.1186/s12904-024-01447-x http://www.scopus.com/inward/record.url?scp=85192359747&partnerID=8YFLogxK |
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ftuniaarhuspubl:oai:pure.atira.dk:publications/1fad4fe7-1a92-4935-bd04-a911a3ceb3f2 2024-09-09T19:39:57+00:00 Children with palliative care needs - the landscape of the nordic countries Winger, Anette Holmen, Heidi Birgisdóttir, Dröfn Lykke, Camilla Lövgren, Malin Neergaard, Mette Asbjoern Grönroos, Marika Kero, Johanna Kristinsdóttir, Oddný Pétursdóttir, Ásta Bjarney Castor, Charlotte 2024-05 https://pure.au.dk/portal/en/publications/1fad4fe7-1a92-4935-bd04-a911a3ceb3f2 https://doi.org/10.1186/s12904-024-01447-x http://www.scopus.com/inward/record.url?scp=85192359747&partnerID=8YFLogxK eng eng https://pure.au.dk/portal/en/publications/1fad4fe7-1a92-4935-bd04-a911a3ceb3f2 info:eu-repo/semantics/openAccess Winger , A , Holmen , H , Birgisdóttir , D , Lykke , C , Lövgren , M , Neergaard , M A , Grönroos , M , Kero , J , Kristinsdóttir , O , Pétursdóttir , Á B & Castor , C 2024 , ' Children with palliative care needs - the landscape of the nordic countries ' , BMC Palliative Care , vol. 23 , no. 1 , 118 . https://doi.org/10.1186/s12904-024-01447-x Humans Palliative Care/methods Scandinavian and Nordic Countries Child Infant Preschool Adolescent Newborn Health Services Needs and Demand/trends Pediatrics/methods Nordic countries Pediatric palliative care Care models Collaborative overview Research Pediatric palliative education article 2024 ftuniaarhuspubl https://doi.org/10.1186/s12904-024-01447-x 2024-06-18T14:33:40Z BACKGROUND: To strengthen palliative care for children in the Nordic countries, an updated status of current needs, resources, clinical services, education, and research is necessary to align and consolidate future research. A Nordic research collaboration initiative for children with palliative care needs was assembled in 2023. Building on this initiative, this paper presents an overview of pediatric palliative care (PPC) in the Nordic countries' (a) population characteristics, (b) care models and setting of care, (c) education and training, and (d) research. METHODS: The Nordic initiative researchers collaboratively gathered and assessed available data on the characteristics of PPC within Denmark, Finland, Greenland, Iceland, Norway, the Faroe Islands, Sweden, and Åland. Data were compiled in a matrix with population characteristics, models- and setting of care, education and training, and areas of research in a Nordic context. The findings are narratively and descriptively presented, providing an overview of Nordic PPC. RESULTS: In total, the Nordic child population comprises around six million children (0-19 years), of which about 41.200 are estimated to be living with a life-limiting and/or life-threatening condition. Healthcare services are provided through various care models, ranging from specialized care to homecare settings. Overall, there remain few opportunities for education and training with some exceptions. Also, Nordic research within PPC has been shown to be a growing field although much remains to be done. CONCLUSION: This overview is the first outline of the current PPC in Nordic countries. Although some differences remain important to acknowledge, overall, the strengths and challenges faced within PPC in the Nordic countries are comparable and call for joint action to increase evidence, services, and education to better serve the children, families, and healthcare personnel within PPC. Despite the varying structural premises for PPC, research endeavors aiming to provide evidence in this field ... Article in Journal/Newspaper Faroe Islands Greenland Iceland Aarhus University: Research Faroe Islands Greenland Norway BMC Palliative Care 23 1 |
institution |
Open Polar |
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Aarhus University: Research |
op_collection_id |
ftuniaarhuspubl |
language |
English |
topic |
Humans Palliative Care/methods Scandinavian and Nordic Countries Child Infant Preschool Adolescent Newborn Health Services Needs and Demand/trends Pediatrics/methods Nordic countries Pediatric palliative care Care models Collaborative overview Research Pediatric palliative education |
spellingShingle |
Humans Palliative Care/methods Scandinavian and Nordic Countries Child Infant Preschool Adolescent Newborn Health Services Needs and Demand/trends Pediatrics/methods Nordic countries Pediatric palliative care Care models Collaborative overview Research Pediatric palliative education Winger, Anette Holmen, Heidi Birgisdóttir, Dröfn Lykke, Camilla Lövgren, Malin Neergaard, Mette Asbjoern Grönroos, Marika Kero, Johanna Kristinsdóttir, Oddný Pétursdóttir, Ásta Bjarney Castor, Charlotte Children with palliative care needs - the landscape of the nordic countries |
topic_facet |
Humans Palliative Care/methods Scandinavian and Nordic Countries Child Infant Preschool Adolescent Newborn Health Services Needs and Demand/trends Pediatrics/methods Nordic countries Pediatric palliative care Care models Collaborative overview Research Pediatric palliative education |
description |
BACKGROUND: To strengthen palliative care for children in the Nordic countries, an updated status of current needs, resources, clinical services, education, and research is necessary to align and consolidate future research. A Nordic research collaboration initiative for children with palliative care needs was assembled in 2023. Building on this initiative, this paper presents an overview of pediatric palliative care (PPC) in the Nordic countries' (a) population characteristics, (b) care models and setting of care, (c) education and training, and (d) research. METHODS: The Nordic initiative researchers collaboratively gathered and assessed available data on the characteristics of PPC within Denmark, Finland, Greenland, Iceland, Norway, the Faroe Islands, Sweden, and Åland. Data were compiled in a matrix with population characteristics, models- and setting of care, education and training, and areas of research in a Nordic context. The findings are narratively and descriptively presented, providing an overview of Nordic PPC. RESULTS: In total, the Nordic child population comprises around six million children (0-19 years), of which about 41.200 are estimated to be living with a life-limiting and/or life-threatening condition. Healthcare services are provided through various care models, ranging from specialized care to homecare settings. Overall, there remain few opportunities for education and training with some exceptions. Also, Nordic research within PPC has been shown to be a growing field although much remains to be done. CONCLUSION: This overview is the first outline of the current PPC in Nordic countries. Although some differences remain important to acknowledge, overall, the strengths and challenges faced within PPC in the Nordic countries are comparable and call for joint action to increase evidence, services, and education to better serve the children, families, and healthcare personnel within PPC. Despite the varying structural premises for PPC, research endeavors aiming to provide evidence in this field ... |
format |
Article in Journal/Newspaper |
author |
Winger, Anette Holmen, Heidi Birgisdóttir, Dröfn Lykke, Camilla Lövgren, Malin Neergaard, Mette Asbjoern Grönroos, Marika Kero, Johanna Kristinsdóttir, Oddný Pétursdóttir, Ásta Bjarney Castor, Charlotte |
author_facet |
Winger, Anette Holmen, Heidi Birgisdóttir, Dröfn Lykke, Camilla Lövgren, Malin Neergaard, Mette Asbjoern Grönroos, Marika Kero, Johanna Kristinsdóttir, Oddný Pétursdóttir, Ásta Bjarney Castor, Charlotte |
author_sort |
Winger, Anette |
title |
Children with palliative care needs - the landscape of the nordic countries |
title_short |
Children with palliative care needs - the landscape of the nordic countries |
title_full |
Children with palliative care needs - the landscape of the nordic countries |
title_fullStr |
Children with palliative care needs - the landscape of the nordic countries |
title_full_unstemmed |
Children with palliative care needs - the landscape of the nordic countries |
title_sort |
children with palliative care needs - the landscape of the nordic countries |
publishDate |
2024 |
url |
https://pure.au.dk/portal/en/publications/1fad4fe7-1a92-4935-bd04-a911a3ceb3f2 https://doi.org/10.1186/s12904-024-01447-x http://www.scopus.com/inward/record.url?scp=85192359747&partnerID=8YFLogxK |
geographic |
Faroe Islands Greenland Norway |
geographic_facet |
Faroe Islands Greenland Norway |
genre |
Faroe Islands Greenland Iceland |
genre_facet |
Faroe Islands Greenland Iceland |
op_source |
Winger , A , Holmen , H , Birgisdóttir , D , Lykke , C , Lövgren , M , Neergaard , M A , Grönroos , M , Kero , J , Kristinsdóttir , O , Pétursdóttir , Á B & Castor , C 2024 , ' Children with palliative care needs - the landscape of the nordic countries ' , BMC Palliative Care , vol. 23 , no. 1 , 118 . https://doi.org/10.1186/s12904-024-01447-x |
op_relation |
https://pure.au.dk/portal/en/publications/1fad4fe7-1a92-4935-bd04-a911a3ceb3f2 |
op_rights |
info:eu-repo/semantics/openAccess |
op_doi |
https://doi.org/10.1186/s12904-024-01447-x |
container_title |
BMC Palliative Care |
container_volume |
23 |
container_issue |
1 |
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1809909040760750080 |