Values and preferences for future end-of-life care among the Indigenous Sámi
Intoduction: Research with Indigenous peoples internationally indicates the importance of socio-cultural contexts for end-of-life (EoL) preferences. However, knowledge about values and preferences for future EoL care among the Indigenous Sámi is limited. Aim: We investigated if and how a Swedish ada...
Published in: | Scandinavian Journal of Caring Sciences |
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Language: | English |
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Umeå universitet, Institutionen för omvårdnad
2022
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Online Access: | http://urn.kb.se/resolve?urn=urn:nbn:se:umu:diva-182085 https://doi.org/10.1111/scs.13047 |
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ftumeauniv:oai:DiVA.org:umu-182085 2023-10-09T21:55:48+02:00 Values and preferences for future end-of-life care among the Indigenous Sámi Kroik, Lena Eneslätt, Malin Tishelman, Carol Stoor, Krister Edin-Liljegren, Anette 2022 application/pdf http://urn.kb.se/resolve?urn=urn:nbn:se:umu:diva-182085 https://doi.org/10.1111/scs.13047 eng eng Umeå universitet, Institutionen för omvårdnad Umeå universitet, Várdduo – Centrum för samisk forskning Umeå universitet, Institutionen för språkstudier The Centre for Rural Medicine, Storuman, Sweden LIME/Division of Innovative Care Research, Karolinska Institutet, Stockholm, Sweden; Department of Health, Education and Technology, Luleå University of Technology, Luleå, Sweden LIME/Division of Innovative Care Research, Karolinska Institutet, Stockholm, Sweden; Stockholm Health Care Services, Stockholm, Sweden The Centre for Rural Medicine, Storuman, Sweden; LIME/Division of Innovative Care Research, Karolinska Institutet, Stockholm, Sweden Scandinavian Journal of Caring Sciences, 0283-9318, 2022, 36:2, s. 504-514 orcid:0000-0003-4546-5269 orcid:0000-0002-0050-4853 orcid:0000-0003-4161-0342 orcid:0000-0001-6294-0303 orcid:0000-0003-3220-9557 http://urn.kb.se/resolve?urn=urn:nbn:se:umu:diva-182085 doi:10.1111/scs.13047 PMID 34841544 ISI:000723058500001 Scopus 2-s2.0-85119981637 info:eu-repo/semantics/openAccess Public Health Environmental and Occupational Health advance care planning DöBra cards end of life ethnic groups go wish cards go-wish cards indigenous Sámi Nursing Omvårdnad Article in journal info:eu-repo/semantics/article text 2022 ftumeauniv https://doi.org/10.1111/scs.13047 2023-09-22T13:56:05Z Intoduction: Research with Indigenous peoples internationally indicates the importance of socio-cultural contexts for end-of-life (EoL) preferences. However, knowledge about values and preferences for future EoL care among the Indigenous Sámi is limited. Aim: We investigated if and how a Swedish adaptation of the English-language GoWish cards, DöBra cards, supports reflection and discussion of values and preferences for future EoL care among the Sámi. Methods: This qualitative study is based on interviews with 31 self-defined Sámi adults who used DöBra cards at four events targeting the Sámi population, between August 2019 and February 2020. Using directed content analysis, we examined aspects of interviews addressing Sámi-specific and Sámi-relevant motivations for choices. Data about individuals’ card rankings were collated and compiled on group level to examine variation in card choices. Findings: All 37 pre-formulated card statements were ranked as a top 10 priority by at least one person. The cards most frequently ranked in the top 10 were a wild card used to formulate an individual preference and thus not representing the same statement, and the pre-formulated card ‘to have those I am close to around me’. Reactions to interviews varied, with some participants commenting on the taboo-laden nature of discussing EoL issues, although many commented positively about EoL conversations in general, and the benefit of using the DöBra cards in particular. We categorised reasoning about Sámi-specific and Sámi-relevant values and preferences under the themes: Attributes of contemporary Sámi culture, Spirituality, Setting for death, Maintaining identity, Preferences related to death, Dying and EoL care and After death. Conclusions: The DöBra cards were found to be easy-to-use, understandable and a flexible tool for initiating and supporting conversations about EoL values and preferences. The open formulations of cards, with wild cards, enable discussions about individual values and preferences, with potential to reflect ... Article in Journal/Newspaper Sámi Umeå University: Publications (DiVA) Scandinavian Journal of Caring Sciences |
institution |
Open Polar |
collection |
Umeå University: Publications (DiVA) |
op_collection_id |
ftumeauniv |
language |
English |
topic |
Public Health Environmental and Occupational Health advance care planning DöBra cards end of life ethnic groups go wish cards go-wish cards indigenous Sámi Nursing Omvårdnad |
spellingShingle |
Public Health Environmental and Occupational Health advance care planning DöBra cards end of life ethnic groups go wish cards go-wish cards indigenous Sámi Nursing Omvårdnad Kroik, Lena Eneslätt, Malin Tishelman, Carol Stoor, Krister Edin-Liljegren, Anette Values and preferences for future end-of-life care among the Indigenous Sámi |
topic_facet |
Public Health Environmental and Occupational Health advance care planning DöBra cards end of life ethnic groups go wish cards go-wish cards indigenous Sámi Nursing Omvårdnad |
description |
Intoduction: Research with Indigenous peoples internationally indicates the importance of socio-cultural contexts for end-of-life (EoL) preferences. However, knowledge about values and preferences for future EoL care among the Indigenous Sámi is limited. Aim: We investigated if and how a Swedish adaptation of the English-language GoWish cards, DöBra cards, supports reflection and discussion of values and preferences for future EoL care among the Sámi. Methods: This qualitative study is based on interviews with 31 self-defined Sámi adults who used DöBra cards at four events targeting the Sámi population, between August 2019 and February 2020. Using directed content analysis, we examined aspects of interviews addressing Sámi-specific and Sámi-relevant motivations for choices. Data about individuals’ card rankings were collated and compiled on group level to examine variation in card choices. Findings: All 37 pre-formulated card statements were ranked as a top 10 priority by at least one person. The cards most frequently ranked in the top 10 were a wild card used to formulate an individual preference and thus not representing the same statement, and the pre-formulated card ‘to have those I am close to around me’. Reactions to interviews varied, with some participants commenting on the taboo-laden nature of discussing EoL issues, although many commented positively about EoL conversations in general, and the benefit of using the DöBra cards in particular. We categorised reasoning about Sámi-specific and Sámi-relevant values and preferences under the themes: Attributes of contemporary Sámi culture, Spirituality, Setting for death, Maintaining identity, Preferences related to death, Dying and EoL care and After death. Conclusions: The DöBra cards were found to be easy-to-use, understandable and a flexible tool for initiating and supporting conversations about EoL values and preferences. The open formulations of cards, with wild cards, enable discussions about individual values and preferences, with potential to reflect ... |
format |
Article in Journal/Newspaper |
author |
Kroik, Lena Eneslätt, Malin Tishelman, Carol Stoor, Krister Edin-Liljegren, Anette |
author_facet |
Kroik, Lena Eneslätt, Malin Tishelman, Carol Stoor, Krister Edin-Liljegren, Anette |
author_sort |
Kroik, Lena |
title |
Values and preferences for future end-of-life care among the Indigenous Sámi |
title_short |
Values and preferences for future end-of-life care among the Indigenous Sámi |
title_full |
Values and preferences for future end-of-life care among the Indigenous Sámi |
title_fullStr |
Values and preferences for future end-of-life care among the Indigenous Sámi |
title_full_unstemmed |
Values and preferences for future end-of-life care among the Indigenous Sámi |
title_sort |
values and preferences for future end-of-life care among the indigenous sámi |
publisher |
Umeå universitet, Institutionen för omvårdnad |
publishDate |
2022 |
url |
http://urn.kb.se/resolve?urn=urn:nbn:se:umu:diva-182085 https://doi.org/10.1111/scs.13047 |
genre |
Sámi |
genre_facet |
Sámi |
op_relation |
Scandinavian Journal of Caring Sciences, 0283-9318, 2022, 36:2, s. 504-514 orcid:0000-0003-4546-5269 orcid:0000-0002-0050-4853 orcid:0000-0003-4161-0342 orcid:0000-0001-6294-0303 orcid:0000-0003-3220-9557 http://urn.kb.se/resolve?urn=urn:nbn:se:umu:diva-182085 doi:10.1111/scs.13047 PMID 34841544 ISI:000723058500001 Scopus 2-s2.0-85119981637 |
op_rights |
info:eu-repo/semantics/openAccess |
op_doi |
https://doi.org/10.1111/scs.13047 |
container_title |
Scandinavian Journal of Caring Sciences |
_version_ |
1779319960343937024 |