A salutogenic perspective on end-of-life care among the Indigenous Sámi of Northern Fennoscandia
There is limited empirical data about both health and end-of-life (EoL) issues among the Indigenous Sámi of Fennoscandia. We therefore aimed to investigate experiences of EoL care and support among the Sámi, both from the Sámi community itself as well as from more formalized health and social care s...
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Umeå universitet, Institutionen för omvårdnad
2021
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ftumeauniv:oai:DiVA.org:umu-182084 2023-10-09T21:51:24+02:00 A salutogenic perspective on end-of-life care among the Indigenous Sámi of Northern Fennoscandia Kroik, Lena Tishelman, Carol Stoor, Krister Edin-Liljegren, Anette 2021 application/pdf http://urn.kb.se/resolve?urn=urn:nbn:se:umu:diva-182084 https://doi.org/10.3390/healthcare9060766 eng eng Umeå universitet, Institutionen för omvårdnad Umeå universitet, Várdduo – Centrum för samisk forskning Umeå universitet, Institutionen för språkstudier The Center for Rural Medicine, Region Västerbotten, Storuman, Sweden LIME/Division of Innovative Care Research, Karolinska Institutet, Stockholm, Sweden; Stockholm Health Care Services, Stockholm, Sweden The Center for Rural Medicine, Region Västerbotten, Storuman, Sweden; LIME/Division of Innovative Care Research, Karolinska Institutet, Stockholm, Sweden Healthcare, 2021, 9:6, orcid:0000-0003-4546-5269 orcid:0000-0003-4161-0342 orcid:0000-0001-6294-0303 orcid:0000-0003-3220-9557 http://urn.kb.se/resolve?urn=urn:nbn:se:umu:diva-182084 doi:10.3390/healthcare9060766 PMID 34205402 ISI:000666494600001 Scopus 2-s2.0-85109079166 info:eu-repo/semantics/openAccess indigenous research salutogenesis end-of-life ethnic groups Sámi Sweden sense of community coherence Nursing Omvårdnad Article in journal info:eu-repo/semantics/article text 2021 ftumeauniv https://doi.org/10.3390/healthcare9060766 2023-09-22T13:54:25Z There is limited empirical data about both health and end-of-life (EoL) issues among the Indigenous Sámi of Fennoscandia. We therefore aimed to investigate experiences of EoL care and support among the Sámi, both from the Sámi community itself as well as from more formalized health and social care services in Sweden. Our primary data source is from focus group discussions (FGDs) held at a Sámi event in 2017 with 24 people, complemented with analysis of previously collected data from 15 individual interviews with both Sámi and non-Sámi informants familiar with dying, death and bereavement among Sámi; “go-along” discussions with 12 Sámi, and individual interviews with 31 Sámi about advance care planning. After initial framework analysis, we applied a salutogenic model for interpretation, focusing on a sense of community coherence. We found a range of generalized resistance resources in relation to the Sámi community, which appeared to support EoL care situations, i.e., Social Organization; Familiarity with EoL Care, Collective Cultural Heritage; Expressions of Spirituality; Support from Majority Care Systems; and Brokerage. These positive features appear to support key components of a sense of community coherence, i.e., comprehensibility, meaningfulness and manageability. We also found relatively few, but notable deficits that may diminish the sense of community coherence, i.e., lack of communication in one’s own language; orientation, familiarity and/or agreement in contacts with formal health and social care systems; and/or support from extended family. The results suggest that there is a robust basis among Sámi for well-functioning EoL care; a challenge is in developing supportive interactions with the majority health and social care systems that support and complement these structures, for partnership in developing care that is meaningful, comprehensible and manageable even in potentially difficult EoL situations. Previously included in thesis in manuscript form Article in Journal/Newspaper Fennoscandia Sámi Sámi Umeå University: Publications (DiVA) Healthcare 9 6 766 |
institution |
Open Polar |
collection |
Umeå University: Publications (DiVA) |
op_collection_id |
ftumeauniv |
language |
English |
topic |
indigenous research salutogenesis end-of-life ethnic groups Sámi Sweden sense of community coherence Nursing Omvårdnad |
spellingShingle |
indigenous research salutogenesis end-of-life ethnic groups Sámi Sweden sense of community coherence Nursing Omvårdnad Kroik, Lena Tishelman, Carol Stoor, Krister Edin-Liljegren, Anette A salutogenic perspective on end-of-life care among the Indigenous Sámi of Northern Fennoscandia |
topic_facet |
indigenous research salutogenesis end-of-life ethnic groups Sámi Sweden sense of community coherence Nursing Omvårdnad |
description |
There is limited empirical data about both health and end-of-life (EoL) issues among the Indigenous Sámi of Fennoscandia. We therefore aimed to investigate experiences of EoL care and support among the Sámi, both from the Sámi community itself as well as from more formalized health and social care services in Sweden. Our primary data source is from focus group discussions (FGDs) held at a Sámi event in 2017 with 24 people, complemented with analysis of previously collected data from 15 individual interviews with both Sámi and non-Sámi informants familiar with dying, death and bereavement among Sámi; “go-along” discussions with 12 Sámi, and individual interviews with 31 Sámi about advance care planning. After initial framework analysis, we applied a salutogenic model for interpretation, focusing on a sense of community coherence. We found a range of generalized resistance resources in relation to the Sámi community, which appeared to support EoL care situations, i.e., Social Organization; Familiarity with EoL Care, Collective Cultural Heritage; Expressions of Spirituality; Support from Majority Care Systems; and Brokerage. These positive features appear to support key components of a sense of community coherence, i.e., comprehensibility, meaningfulness and manageability. We also found relatively few, but notable deficits that may diminish the sense of community coherence, i.e., lack of communication in one’s own language; orientation, familiarity and/or agreement in contacts with formal health and social care systems; and/or support from extended family. The results suggest that there is a robust basis among Sámi for well-functioning EoL care; a challenge is in developing supportive interactions with the majority health and social care systems that support and complement these structures, for partnership in developing care that is meaningful, comprehensible and manageable even in potentially difficult EoL situations. Previously included in thesis in manuscript form |
format |
Article in Journal/Newspaper |
author |
Kroik, Lena Tishelman, Carol Stoor, Krister Edin-Liljegren, Anette |
author_facet |
Kroik, Lena Tishelman, Carol Stoor, Krister Edin-Liljegren, Anette |
author_sort |
Kroik, Lena |
title |
A salutogenic perspective on end-of-life care among the Indigenous Sámi of Northern Fennoscandia |
title_short |
A salutogenic perspective on end-of-life care among the Indigenous Sámi of Northern Fennoscandia |
title_full |
A salutogenic perspective on end-of-life care among the Indigenous Sámi of Northern Fennoscandia |
title_fullStr |
A salutogenic perspective on end-of-life care among the Indigenous Sámi of Northern Fennoscandia |
title_full_unstemmed |
A salutogenic perspective on end-of-life care among the Indigenous Sámi of Northern Fennoscandia |
title_sort |
salutogenic perspective on end-of-life care among the indigenous sámi of northern fennoscandia |
publisher |
Umeå universitet, Institutionen för omvårdnad |
publishDate |
2021 |
url |
http://urn.kb.se/resolve?urn=urn:nbn:se:umu:diva-182084 https://doi.org/10.3390/healthcare9060766 |
genre |
Fennoscandia Sámi Sámi |
genre_facet |
Fennoscandia Sámi Sámi |
op_relation |
Healthcare, 2021, 9:6, orcid:0000-0003-4546-5269 orcid:0000-0003-4161-0342 orcid:0000-0001-6294-0303 orcid:0000-0003-3220-9557 http://urn.kb.se/resolve?urn=urn:nbn:se:umu:diva-182084 doi:10.3390/healthcare9060766 PMID 34205402 ISI:000666494600001 Scopus 2-s2.0-85109079166 |
op_rights |
info:eu-repo/semantics/openAccess |
op_doi |
https://doi.org/10.3390/healthcare9060766 |
container_title |
Healthcare |
container_volume |
9 |
container_issue |
6 |
container_start_page |
766 |
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1779314527083429888 |