Children with palliative care needs - the landscape of the nordic countries
BACKGROUND: To strengthen palliative care for children in the Nordic countries, an updated status of current needs, resources, clinical services, education, and research is necessary to align and consolidate future research. A Nordic research collaboration initiative for children with palliative car...
Published in: | BMC Palliative Care |
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Language: | English |
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BioMed Central (BMC)
2024
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Online Access: | https://lup.lub.lu.se/record/c2fda2e4-e743-4b1c-b767-650d4aab4fe6 https://doi.org/10.1186/s12904-024-01447-x |
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ftulundlup:oai:lup.lub.lu.se:c2fda2e4-e743-4b1c-b767-650d4aab4fe6 2024-09-30T14:34:43+00:00 Children with palliative care needs - the landscape of the nordic countries Winger, Anette Holmen, Heidi Birgisdóttir, Dröfn Lykke, Camilla Lövgren, Malin Neergaard, Mette Asbjoern Grönroos, Marika Kero, Johanna Kristinsdóttir, Oddný Pétursdóttir, Ásta Bjarney Castor, Charlotte 2024-05-08 https://lup.lub.lu.se/record/c2fda2e4-e743-4b1c-b767-650d4aab4fe6 https://doi.org/10.1186/s12904-024-01447-x eng eng BioMed Central (BMC) https://lup.lub.lu.se/record/c2fda2e4-e743-4b1c-b767-650d4aab4fe6 http://dx.doi.org/10.1186/s12904-024-01447-x scopus:85192359747 pmid:38720316 BMC Palliative Care; 23(1), no 118 (2024) ISSN: 1472-684X Nursing Humans Palliative Care/methods Scandinavian and Nordic Countries Child Infant Preschool Adolescent Newborn Health Services Needs and Demand/trends Pediatrics/methods contributiontojournal/article info:eu-repo/semantics/article text 2024 ftulundlup https://doi.org/10.1186/s12904-024-01447-x 2024-09-18T14:23:21Z BACKGROUND: To strengthen palliative care for children in the Nordic countries, an updated status of current needs, resources, clinical services, education, and research is necessary to align and consolidate future research. A Nordic research collaboration initiative for children with palliative care needs was assembled in 2023. Building on this initiative, this paper presents an overview of pediatric palliative care (PPC) in the Nordic countries' (a) population characteristics, (b) care models and setting of care, (c) education and training, and (d) research.METHODS: The Nordic initiative researchers collaboratively gathered and assessed available data on the characteristics of PPC within Denmark, Finland, Greenland, Iceland, Norway, the Faroe Islands, Sweden, and Åland. Data were compiled in a matrix with population characteristics, models- and setting of care, education and training, and areas of research in a Nordic context. The findings are narratively and descriptively presented, providing an overview of Nordic PPC.RESULTS: In total, the Nordic child population comprises around six million children (0-19 years), of which about 41.200 are estimated to be living with a life-limiting and/or life-threatening condition. Healthcare services are provided through various care models, ranging from specialized care to homecare settings. Overall, there remain few opportunities for education and training with some exceptions. Also, Nordic research within PPC has been shown to be a growing field although much remains to be done.CONCLUSION: This overview is the first outline of the current PPC in Nordic countries. Although some differences remain important to acknowledge, overall, the strengths and challenges faced within PPC in the Nordic countries are comparable and call for joint action to increase evidence, services, and education to better serve the children, families, and healthcare personnel within PPC. Despite the varying structural premises for PPC, research endeavors aiming to provide evidence in this field ... Article in Journal/Newspaper Faroe Islands Greenland Iceland Lund University Publications (LUP) Faroe Islands Greenland Norway BMC Palliative Care 23 1 |
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Open Polar |
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Lund University Publications (LUP) |
op_collection_id |
ftulundlup |
language |
English |
topic |
Nursing Humans Palliative Care/methods Scandinavian and Nordic Countries Child Infant Preschool Adolescent Newborn Health Services Needs and Demand/trends Pediatrics/methods |
spellingShingle |
Nursing Humans Palliative Care/methods Scandinavian and Nordic Countries Child Infant Preschool Adolescent Newborn Health Services Needs and Demand/trends Pediatrics/methods Winger, Anette Holmen, Heidi Birgisdóttir, Dröfn Lykke, Camilla Lövgren, Malin Neergaard, Mette Asbjoern Grönroos, Marika Kero, Johanna Kristinsdóttir, Oddný Pétursdóttir, Ásta Bjarney Castor, Charlotte Children with palliative care needs - the landscape of the nordic countries |
topic_facet |
Nursing Humans Palliative Care/methods Scandinavian and Nordic Countries Child Infant Preschool Adolescent Newborn Health Services Needs and Demand/trends Pediatrics/methods |
description |
BACKGROUND: To strengthen palliative care for children in the Nordic countries, an updated status of current needs, resources, clinical services, education, and research is necessary to align and consolidate future research. A Nordic research collaboration initiative for children with palliative care needs was assembled in 2023. Building on this initiative, this paper presents an overview of pediatric palliative care (PPC) in the Nordic countries' (a) population characteristics, (b) care models and setting of care, (c) education and training, and (d) research.METHODS: The Nordic initiative researchers collaboratively gathered and assessed available data on the characteristics of PPC within Denmark, Finland, Greenland, Iceland, Norway, the Faroe Islands, Sweden, and Åland. Data were compiled in a matrix with population characteristics, models- and setting of care, education and training, and areas of research in a Nordic context. The findings are narratively and descriptively presented, providing an overview of Nordic PPC.RESULTS: In total, the Nordic child population comprises around six million children (0-19 years), of which about 41.200 are estimated to be living with a life-limiting and/or life-threatening condition. Healthcare services are provided through various care models, ranging from specialized care to homecare settings. Overall, there remain few opportunities for education and training with some exceptions. Also, Nordic research within PPC has been shown to be a growing field although much remains to be done.CONCLUSION: This overview is the first outline of the current PPC in Nordic countries. Although some differences remain important to acknowledge, overall, the strengths and challenges faced within PPC in the Nordic countries are comparable and call for joint action to increase evidence, services, and education to better serve the children, families, and healthcare personnel within PPC. Despite the varying structural premises for PPC, research endeavors aiming to provide evidence in this field ... |
format |
Article in Journal/Newspaper |
author |
Winger, Anette Holmen, Heidi Birgisdóttir, Dröfn Lykke, Camilla Lövgren, Malin Neergaard, Mette Asbjoern Grönroos, Marika Kero, Johanna Kristinsdóttir, Oddný Pétursdóttir, Ásta Bjarney Castor, Charlotte |
author_facet |
Winger, Anette Holmen, Heidi Birgisdóttir, Dröfn Lykke, Camilla Lövgren, Malin Neergaard, Mette Asbjoern Grönroos, Marika Kero, Johanna Kristinsdóttir, Oddný Pétursdóttir, Ásta Bjarney Castor, Charlotte |
author_sort |
Winger, Anette |
title |
Children with palliative care needs - the landscape of the nordic countries |
title_short |
Children with palliative care needs - the landscape of the nordic countries |
title_full |
Children with palliative care needs - the landscape of the nordic countries |
title_fullStr |
Children with palliative care needs - the landscape of the nordic countries |
title_full_unstemmed |
Children with palliative care needs - the landscape of the nordic countries |
title_sort |
children with palliative care needs - the landscape of the nordic countries |
publisher |
BioMed Central (BMC) |
publishDate |
2024 |
url |
https://lup.lub.lu.se/record/c2fda2e4-e743-4b1c-b767-650d4aab4fe6 https://doi.org/10.1186/s12904-024-01447-x |
geographic |
Faroe Islands Greenland Norway |
geographic_facet |
Faroe Islands Greenland Norway |
genre |
Faroe Islands Greenland Iceland |
genre_facet |
Faroe Islands Greenland Iceland |
op_source |
BMC Palliative Care; 23(1), no 118 (2024) ISSN: 1472-684X |
op_relation |
https://lup.lub.lu.se/record/c2fda2e4-e743-4b1c-b767-650d4aab4fe6 http://dx.doi.org/10.1186/s12904-024-01447-x scopus:85192359747 pmid:38720316 |
op_doi |
https://doi.org/10.1186/s12904-024-01447-x |
container_title |
BMC Palliative Care |
container_volume |
23 |
container_issue |
1 |
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1811638240953761792 |