Development and pilot phase of a European MS register
The MS-ID (Multiple Sclerosis Information Dividend) project was initiated by the European Multiple Sclerosis Platform (EMSP) in 2007 in order to identify and address major inequalities of MS treatment and care and thus eliminate disparities across the EU. One major approach to reach these goals in t...
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ftucl:oai:eprints.ucl.ac.uk.OAI2:1030550 2023-05-15T16:51:15+02:00 Development and pilot phase of a European MS register Flachenecker, P Khil, L Bergmann, S Kowalewski, M Pascu, I Perez-Miralles, F Sastre-Garriga, J Zwingers, T 2010-10 http://discovery.ucl.ac.uk/1030550/ unknown SPRINGER HEIDELBERG J NEUROL , 257 (10) 1620 - 1627. (2010) Multiple sclerosis Databases Registries Epidemiology MULTIPLE-SCLEROSIS DISABILITY Article 2010 ftucl 2013-11-10T03:54:07Z The MS-ID (Multiple Sclerosis Information Dividend) project was initiated by the European Multiple Sclerosis Platform (EMSP) in 2007 in order to identify and address major inequalities of MS treatment and care and thus eliminate disparities across the EU. One major approach to reach these goals in the longer term is the implementation of a European MS register for MS. The feasibility of an EU MS register was piloted among five countries (Germany, Iceland, Poland, Romania and Spain). Each country liaised with one documentation centre. Countries and test centres were both chosen in a way that a heterogeneous health care structure was provided. After reaching consensus about the data set, comprehension and acceptability of the two questionnaires-representing both the physician's and the patient's perspective-were tested with 20 MS patients in each country. In a 6-month data collection period, data from 547 patients were recorded. Most sections of the questionnaires were available for more than 90% of patients. The results obtained from the pilot phase of the European MS register indicate that it is feasible to collect standardized data across Europe. Thus, the European MS register may be a valuable instrument to compare treatment and care of MS across countries, estimate the cost of MS in Europe and monitor the implementation of and adherence to guidelines. It may help to reduce the disparities in MS care and treatment throughout Europe and eventually improve the quality of life of people with MS. Article in Journal/Newspaper Iceland University College London: UCL Discovery |
institution |
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University College London: UCL Discovery |
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ftucl |
language |
unknown |
topic |
Multiple sclerosis Databases Registries Epidemiology MULTIPLE-SCLEROSIS DISABILITY |
spellingShingle |
Multiple sclerosis Databases Registries Epidemiology MULTIPLE-SCLEROSIS DISABILITY Flachenecker, P Khil, L Bergmann, S Kowalewski, M Pascu, I Perez-Miralles, F Sastre-Garriga, J Zwingers, T Development and pilot phase of a European MS register |
topic_facet |
Multiple sclerosis Databases Registries Epidemiology MULTIPLE-SCLEROSIS DISABILITY |
description |
The MS-ID (Multiple Sclerosis Information Dividend) project was initiated by the European Multiple Sclerosis Platform (EMSP) in 2007 in order to identify and address major inequalities of MS treatment and care and thus eliminate disparities across the EU. One major approach to reach these goals in the longer term is the implementation of a European MS register for MS. The feasibility of an EU MS register was piloted among five countries (Germany, Iceland, Poland, Romania and Spain). Each country liaised with one documentation centre. Countries and test centres were both chosen in a way that a heterogeneous health care structure was provided. After reaching consensus about the data set, comprehension and acceptability of the two questionnaires-representing both the physician's and the patient's perspective-were tested with 20 MS patients in each country. In a 6-month data collection period, data from 547 patients were recorded. Most sections of the questionnaires were available for more than 90% of patients. The results obtained from the pilot phase of the European MS register indicate that it is feasible to collect standardized data across Europe. Thus, the European MS register may be a valuable instrument to compare treatment and care of MS across countries, estimate the cost of MS in Europe and monitor the implementation of and adherence to guidelines. It may help to reduce the disparities in MS care and treatment throughout Europe and eventually improve the quality of life of people with MS. |
format |
Article in Journal/Newspaper |
author |
Flachenecker, P Khil, L Bergmann, S Kowalewski, M Pascu, I Perez-Miralles, F Sastre-Garriga, J Zwingers, T |
author_facet |
Flachenecker, P Khil, L Bergmann, S Kowalewski, M Pascu, I Perez-Miralles, F Sastre-Garriga, J Zwingers, T |
author_sort |
Flachenecker, P |
title |
Development and pilot phase of a European MS register |
title_short |
Development and pilot phase of a European MS register |
title_full |
Development and pilot phase of a European MS register |
title_fullStr |
Development and pilot phase of a European MS register |
title_full_unstemmed |
Development and pilot phase of a European MS register |
title_sort |
development and pilot phase of a european ms register |
publisher |
SPRINGER HEIDELBERG |
publishDate |
2010 |
url |
http://discovery.ucl.ac.uk/1030550/ |
genre |
Iceland |
genre_facet |
Iceland |
op_source |
J NEUROL , 257 (10) 1620 - 1627. (2010) |
_version_ |
1766041364057817088 |