Total pain and social suffering:marginalised Greenlanders’ end-of-life in Denmark
With a focus on socially marginalised Greenlanders in Denmark, this study explores the significance of the concept of social suffering for the concept of total pain. Greenland is a former Danish colony and Greenlanders retain the right to Danish citizenship with all the benefits of access to the res...
Published in: | Frontiers in Sociology |
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2023
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Online Access: | https://portal.findresearcher.sdu.dk/da/publications/22e4e43e-934c-4d24-bfc4-57eb60396a99 https://doi.org/10.3389/fsoc.2023.1161021 https://findresearcher.sdu.dk/ws/files/238095088/fsoc_08_1161021.pdf |
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ftsydanskunivpub:oai:sdu.dk:publications/22e4e43e-934c-4d24-bfc4-57eb60396a99 2024-09-09T19:43:31+00:00 Total pain and social suffering:marginalised Greenlanders’ end-of-life in Denmark Graven, Vibeke Abrahams, Maja Bangsgaard Pedersen, Tina 2023-06-13 application/pdf https://portal.findresearcher.sdu.dk/da/publications/22e4e43e-934c-4d24-bfc4-57eb60396a99 https://doi.org/10.3389/fsoc.2023.1161021 https://findresearcher.sdu.dk/ws/files/238095088/fsoc_08_1161021.pdf eng eng https://portal.findresearcher.sdu.dk/da/publications/22e4e43e-934c-4d24-bfc4-57eb60396a99 info:eu-repo/semantics/openAccess Graven , V , Abrahams , M B & Pedersen , T 2023 , ' Total pain and social suffering : marginalised Greenlanders’ end-of-life in Denmark ' , Frontiers in Sociology , vol. 8 , 1161021 . https://doi.org/10.3389/fsoc.2023.1161021 Greenlanders intersectionality marginalised Greenlanders othering palliative care social suffering stigma total pain article 2023 ftsydanskunivpub https://doi.org/10.3389/fsoc.2023.1161021 2024-06-18T14:53:21Z With a focus on socially marginalised Greenlanders in Denmark, this study explores the significance of the concept of social suffering for the concept of total pain. Greenland is a former Danish colony and Greenlanders retain the right to Danish citizenship with all the benefits of access to the resources of Denmark as any other Danish citizen. However, Greenlanders are overrepresented amongst the most socially disadvantaged in Denmark. They have a disproportionately high risk of early death, often undiagnosed and untreated. This study reports on research conducted with socially marginalised Greenlanders and some of the professionals who work with them. It interrogates the concept of total pain as developed by Cicely Saunders, the founder of modern palliative care. Saunders noted that pain at the end-of-life was not adequately explained by symptoms of a disease process because it was more like a situation that engulfed every aspect of the patient and those close to them; it included physical, psychological, spiritual, and social dimensions. We agree with other scholars that the social dimension of the total pain experience is underexplored. By drawing on the theoretical and methodological lens of intersectionality, our work with marginalised Greenlanders has enabled us to describe the multiple and intersecting social forces that create social suffering for this group. This leads us to conclude that social suffering is not entirely an individual experience but a product of social harm and disadvantage, poverty, inequality, and the various legacies of colonialism, which combine to place some citizens in a harmed condition. Our findings also draw us into a discussion with the concept of total pain and its neglect of the socially constructed nature of social suffering. We conclude by indicating ways in which the concept of total pain can be informed by a more thoroughgoing concept of social suffering. We conclude, with others, that there is a problem of inequity in the way that end-of-life care is currently ... Article in Journal/Newspaper Greenland greenlander* University of Southern Denmark Research Portal Greenland Saunders ENVELOPE(-45.316,-45.316,-60.700,-60.700) Frontiers in Sociology 8 |
institution |
Open Polar |
collection |
University of Southern Denmark Research Portal |
op_collection_id |
ftsydanskunivpub |
language |
English |
topic |
Greenlanders intersectionality marginalised Greenlanders othering palliative care social suffering stigma total pain |
spellingShingle |
Greenlanders intersectionality marginalised Greenlanders othering palliative care social suffering stigma total pain Graven, Vibeke Abrahams, Maja Bangsgaard Pedersen, Tina Total pain and social suffering:marginalised Greenlanders’ end-of-life in Denmark |
topic_facet |
Greenlanders intersectionality marginalised Greenlanders othering palliative care social suffering stigma total pain |
description |
With a focus on socially marginalised Greenlanders in Denmark, this study explores the significance of the concept of social suffering for the concept of total pain. Greenland is a former Danish colony and Greenlanders retain the right to Danish citizenship with all the benefits of access to the resources of Denmark as any other Danish citizen. However, Greenlanders are overrepresented amongst the most socially disadvantaged in Denmark. They have a disproportionately high risk of early death, often undiagnosed and untreated. This study reports on research conducted with socially marginalised Greenlanders and some of the professionals who work with them. It interrogates the concept of total pain as developed by Cicely Saunders, the founder of modern palliative care. Saunders noted that pain at the end-of-life was not adequately explained by symptoms of a disease process because it was more like a situation that engulfed every aspect of the patient and those close to them; it included physical, psychological, spiritual, and social dimensions. We agree with other scholars that the social dimension of the total pain experience is underexplored. By drawing on the theoretical and methodological lens of intersectionality, our work with marginalised Greenlanders has enabled us to describe the multiple and intersecting social forces that create social suffering for this group. This leads us to conclude that social suffering is not entirely an individual experience but a product of social harm and disadvantage, poverty, inequality, and the various legacies of colonialism, which combine to place some citizens in a harmed condition. Our findings also draw us into a discussion with the concept of total pain and its neglect of the socially constructed nature of social suffering. We conclude by indicating ways in which the concept of total pain can be informed by a more thoroughgoing concept of social suffering. We conclude, with others, that there is a problem of inequity in the way that end-of-life care is currently ... |
format |
Article in Journal/Newspaper |
author |
Graven, Vibeke Abrahams, Maja Bangsgaard Pedersen, Tina |
author_facet |
Graven, Vibeke Abrahams, Maja Bangsgaard Pedersen, Tina |
author_sort |
Graven, Vibeke |
title |
Total pain and social suffering:marginalised Greenlanders’ end-of-life in Denmark |
title_short |
Total pain and social suffering:marginalised Greenlanders’ end-of-life in Denmark |
title_full |
Total pain and social suffering:marginalised Greenlanders’ end-of-life in Denmark |
title_fullStr |
Total pain and social suffering:marginalised Greenlanders’ end-of-life in Denmark |
title_full_unstemmed |
Total pain and social suffering:marginalised Greenlanders’ end-of-life in Denmark |
title_sort |
total pain and social suffering:marginalised greenlanders’ end-of-life in denmark |
publishDate |
2023 |
url |
https://portal.findresearcher.sdu.dk/da/publications/22e4e43e-934c-4d24-bfc4-57eb60396a99 https://doi.org/10.3389/fsoc.2023.1161021 https://findresearcher.sdu.dk/ws/files/238095088/fsoc_08_1161021.pdf |
long_lat |
ENVELOPE(-45.316,-45.316,-60.700,-60.700) |
geographic |
Greenland Saunders |
geographic_facet |
Greenland Saunders |
genre |
Greenland greenlander* |
genre_facet |
Greenland greenlander* |
op_source |
Graven , V , Abrahams , M B & Pedersen , T 2023 , ' Total pain and social suffering : marginalised Greenlanders’ end-of-life in Denmark ' , Frontiers in Sociology , vol. 8 , 1161021 . https://doi.org/10.3389/fsoc.2023.1161021 |
op_relation |
https://portal.findresearcher.sdu.dk/da/publications/22e4e43e-934c-4d24-bfc4-57eb60396a99 |
op_rights |
info:eu-repo/semantics/openAccess |
op_doi |
https://doi.org/10.3389/fsoc.2023.1161021 |
container_title |
Frontiers in Sociology |
container_volume |
8 |
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1809913004329795584 |