Under-reporting of major birth defects in Northwest Russia : a registry-based study
The objective was to assess the prevalence of selected major birth defects, based on data from two medical registries in Murmansk County, and compare the observed rates with those available for Norway and Arkhangelsk County, Northwest Russia. It included all newborns (≥22 completed weeks of gestatio...
Published in: | International Journal of Circumpolar Health |
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Högskolan i Skövde, Institutionen för hälsa och lärande
2017
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Online Access: | http://urn.kb.se/resolve?urn=urn:nbn:se:his:diva-14095 https://doi.org/10.1080/22423982.2017.1366785 |
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ftskoevdehoeg:oai:DiVA.org:his-14095 2023-05-15T15:23:57+02:00 Under-reporting of major birth defects in Northwest Russia : a registry-based study Kovalenko, Anton A. Brenn, Tormod Odland, Jon Øyvind Nieboer, Evert Krettek, Alexandra Anda, Erik Eik 2017 application/pdf http://urn.kb.se/resolve?urn=urn:nbn:se:his:diva-14095 https://doi.org/10.1080/22423982.2017.1366785 eng eng Högskolan i Skövde, Institutionen för hälsa och lärande Högskolan i Skövde, Forskningsspecialiseringen Hälsa och Lärande Department of Community Medicine, UiT The Arctic University of Norway, Tromsø, Norway / International School of Public Health, Northern State Medical University, Arkhangelsk, Russia Department of Community Medicine, UiT The Arctic University of Norway, Tromsø, Norway Department of Biochemistry and Biomedical Sciences, McMaster University, Hamilton, Canada Department of Community Medicine, UiT The Arctic University of Norway, Tromsø, Norway / Department of Internal Medicine and Clinical Nutrition, Institute of Medicine, Sahlgrenska Academy at University of Gothenburg, Gothenburg, Sweden International Association of Circumpolar Health Publishers International Journal of Circumpolar Health, 1239-9736, 2017, 76:1, s. 1-10 http://urn.kb.se/resolve?urn=urn:nbn:se:his:diva-14095 doi:10.1080/22423982.2017.1366785 PMID 28853333 ISI:000408683800001 Scopus 2-s2.0-85044751655 info:eu-repo/semantics/openAccess Birth defect birth registry linkage under-reporting Public Health Global Health Social Medicine and Epidemiology Folkhälsovetenskap global hälsa socialmedicin och epidemiologi Article in journal info:eu-repo/semantics/article text 2017 ftskoevdehoeg https://doi.org/10.1080/22423982.2017.1366785 2022-10-25T20:51:53Z The objective was to assess the prevalence of selected major birth defects, based on data from two medical registries in Murmansk County, and compare the observed rates with those available for Norway and Arkhangelsk County, Northwest Russia. It included all newborns (≥22 completed weeks of gestation) registered in the Murmansk County Birth Registry (MCBR) and born between 1 January 2006 and 31 December 2009 (n=35,417). The infants were followed-up post-partum for 2 years through direct linkage to the Murmansk Regional Congenital Defects Registry (MRCDR). Birth defects identified and confirmed in both registries constituted the "cases" and corresponded to one or more of the 21 birth defect types reportable to health authorities in Moscow. The overall prevalence of major birth defects recorded in the MRCDR was 50/10,000 before linkage and 77/10,000 after linkage with the MCBR. Routine under-reporting to the MRCDR of 40% cases was evident. This study demonstrates that birth registry data improved case ascertainment and official prevalence assessments and reduced the potential of under-reporting by physicians. The direct linkage of the two registries revealed that hypospadias cases were the most prevalent among the major birth defects in Murmansk County. ABBREVIATIONS: ICD-10, International Classification of Diseases, 10th revision; MCBR, Murmansk County Birth Registry; MRCDR, Murmansk Regional Congenital Defects Registry; MGC, Murmansk Genetics Center. Article in Journal/Newspaper Arkhangelsk Circumpolar Health International Journal of Circumpolar Health Northwest Russia University of Skövde: Publications (DiVA) Murmansk Norway International Journal of Circumpolar Health 76 1 1366785 |
institution |
Open Polar |
collection |
University of Skövde: Publications (DiVA) |
op_collection_id |
ftskoevdehoeg |
language |
English |
topic |
Birth defect birth registry linkage under-reporting Public Health Global Health Social Medicine and Epidemiology Folkhälsovetenskap global hälsa socialmedicin och epidemiologi |
spellingShingle |
Birth defect birth registry linkage under-reporting Public Health Global Health Social Medicine and Epidemiology Folkhälsovetenskap global hälsa socialmedicin och epidemiologi Kovalenko, Anton A. Brenn, Tormod Odland, Jon Øyvind Nieboer, Evert Krettek, Alexandra Anda, Erik Eik Under-reporting of major birth defects in Northwest Russia : a registry-based study |
topic_facet |
Birth defect birth registry linkage under-reporting Public Health Global Health Social Medicine and Epidemiology Folkhälsovetenskap global hälsa socialmedicin och epidemiologi |
description |
The objective was to assess the prevalence of selected major birth defects, based on data from two medical registries in Murmansk County, and compare the observed rates with those available for Norway and Arkhangelsk County, Northwest Russia. It included all newborns (≥22 completed weeks of gestation) registered in the Murmansk County Birth Registry (MCBR) and born between 1 January 2006 and 31 December 2009 (n=35,417). The infants were followed-up post-partum for 2 years through direct linkage to the Murmansk Regional Congenital Defects Registry (MRCDR). Birth defects identified and confirmed in both registries constituted the "cases" and corresponded to one or more of the 21 birth defect types reportable to health authorities in Moscow. The overall prevalence of major birth defects recorded in the MRCDR was 50/10,000 before linkage and 77/10,000 after linkage with the MCBR. Routine under-reporting to the MRCDR of 40% cases was evident. This study demonstrates that birth registry data improved case ascertainment and official prevalence assessments and reduced the potential of under-reporting by physicians. The direct linkage of the two registries revealed that hypospadias cases were the most prevalent among the major birth defects in Murmansk County. ABBREVIATIONS: ICD-10, International Classification of Diseases, 10th revision; MCBR, Murmansk County Birth Registry; MRCDR, Murmansk Regional Congenital Defects Registry; MGC, Murmansk Genetics Center. |
format |
Article in Journal/Newspaper |
author |
Kovalenko, Anton A. Brenn, Tormod Odland, Jon Øyvind Nieboer, Evert Krettek, Alexandra Anda, Erik Eik |
author_facet |
Kovalenko, Anton A. Brenn, Tormod Odland, Jon Øyvind Nieboer, Evert Krettek, Alexandra Anda, Erik Eik |
author_sort |
Kovalenko, Anton A. |
title |
Under-reporting of major birth defects in Northwest Russia : a registry-based study |
title_short |
Under-reporting of major birth defects in Northwest Russia : a registry-based study |
title_full |
Under-reporting of major birth defects in Northwest Russia : a registry-based study |
title_fullStr |
Under-reporting of major birth defects in Northwest Russia : a registry-based study |
title_full_unstemmed |
Under-reporting of major birth defects in Northwest Russia : a registry-based study |
title_sort |
under-reporting of major birth defects in northwest russia : a registry-based study |
publisher |
Högskolan i Skövde, Institutionen för hälsa och lärande |
publishDate |
2017 |
url |
http://urn.kb.se/resolve?urn=urn:nbn:se:his:diva-14095 https://doi.org/10.1080/22423982.2017.1366785 |
geographic |
Murmansk Norway |
geographic_facet |
Murmansk Norway |
genre |
Arkhangelsk Circumpolar Health International Journal of Circumpolar Health Northwest Russia |
genre_facet |
Arkhangelsk Circumpolar Health International Journal of Circumpolar Health Northwest Russia |
op_relation |
International Journal of Circumpolar Health, 1239-9736, 2017, 76:1, s. 1-10 http://urn.kb.se/resolve?urn=urn:nbn:se:his:diva-14095 doi:10.1080/22423982.2017.1366785 PMID 28853333 ISI:000408683800001 Scopus 2-s2.0-85044751655 |
op_rights |
info:eu-repo/semantics/openAccess |
op_doi |
https://doi.org/10.1080/22423982.2017.1366785 |
container_title |
International Journal of Circumpolar Health |
container_volume |
76 |
container_issue |
1 |
container_start_page |
1366785 |
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1766354541224132608 |