Ethical and methodological issues in research with Sami experiencing disability
Objectives: The main study was designed to examine and understand the everyday life, transitions between life stages and democratic participation of Norwegian Sami people experiencing disability. Hence, the purpose of this article is to increase the understanding of possible ethical and methodologic...
Published in: | International Journal of Circumpolar Health |
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Online Access: | http://hdl.handle.net/11250/2495754 https://doi.org/10.3402/ijch.v75.31656 |
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ftsfomsorgsforsk:oai:brage.bibsys.no:11250/2495754 2023-05-15T15:55:12+02:00 Ethical and methodological issues in research with Sami experiencing disability Melbøe, L. Hansen, K.L. Johnsen, B.-E. Fedreheim, G.E. Dinesen, T. Minde, G.-T. Rustad, M. 2016 http://hdl.handle.net/11250/2495754 https://doi.org/10.3402/ijch.v75.31656 unknown International Journal of Circumpolar Health Navngivelse 4.0 Internasjonal http://creativecommons.org/licenses/by/4.0/deed.no CC-BY 75 International Journal of Circumpolar Health 1 ethical and methodological issues Sami indigenous health disability Norway Journal article 2016 ftsfomsorgsforsk https://doi.org/10.3402/ijch.v75.31656 2018-12-07T21:15:15Z Objectives: The main study was designed to examine and understand the everyday life, transitions between life stages and democratic participation of Norwegian Sami people experiencing disability. Hence, the purpose of this article is to increase the understanding of possible ethical and methodological issues in research within this field. The article describes and discusses ethical and methodological issues that arose when conducting our study and identifies some strategies for addressing issues like these. Methods: The ethical and methodological issues addressed in the article are based on a qualitative study among indigenous Norwegian Sami people experiencing disability. The data in this study were collected through 31 semi-structured in-depth interviews with altogether 24 Sami people experiencing disability and 13 next of kin of Sami people experiencing disability (8 mothers, 2 fathers, 2 sister and 1 guardian). Findings and discussion: The researchers identified 4 main areas of ethical and methodological issues. We present these issues chronologically as they emerged in the research process: 1) concept of knowledge when designing the study, 2) gaining access, 3) data collection and 4) analysis and accountability. Conclusion: The knowledge generated from this study has the potential to benefit future health research, specifically of Norwegian Sami people experiencing disability, as well as health research concerning indigenous people in general, providing scientific-based insight into important ethical and methodological issues in research with indigenous people experiencing disability. Article in Journal/Newspaper Circumpolar Health International Journal of Circumpolar Health sami Centre for Care Research: Omsorgsbiblioteket (Brage) Norway International Journal of Circumpolar Health 75 1 31656 |
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Centre for Care Research: Omsorgsbiblioteket (Brage) |
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ftsfomsorgsforsk |
language |
unknown |
topic |
ethical and methodological issues Sami indigenous health disability Norway |
spellingShingle |
ethical and methodological issues Sami indigenous health disability Norway Melbøe, L. Hansen, K.L. Johnsen, B.-E. Fedreheim, G.E. Dinesen, T. Minde, G.-T. Rustad, M. Ethical and methodological issues in research with Sami experiencing disability |
topic_facet |
ethical and methodological issues Sami indigenous health disability Norway |
description |
Objectives: The main study was designed to examine and understand the everyday life, transitions between life stages and democratic participation of Norwegian Sami people experiencing disability. Hence, the purpose of this article is to increase the understanding of possible ethical and methodological issues in research within this field. The article describes and discusses ethical and methodological issues that arose when conducting our study and identifies some strategies for addressing issues like these. Methods: The ethical and methodological issues addressed in the article are based on a qualitative study among indigenous Norwegian Sami people experiencing disability. The data in this study were collected through 31 semi-structured in-depth interviews with altogether 24 Sami people experiencing disability and 13 next of kin of Sami people experiencing disability (8 mothers, 2 fathers, 2 sister and 1 guardian). Findings and discussion: The researchers identified 4 main areas of ethical and methodological issues. We present these issues chronologically as they emerged in the research process: 1) concept of knowledge when designing the study, 2) gaining access, 3) data collection and 4) analysis and accountability. Conclusion: The knowledge generated from this study has the potential to benefit future health research, specifically of Norwegian Sami people experiencing disability, as well as health research concerning indigenous people in general, providing scientific-based insight into important ethical and methodological issues in research with indigenous people experiencing disability. |
format |
Article in Journal/Newspaper |
author |
Melbøe, L. Hansen, K.L. Johnsen, B.-E. Fedreheim, G.E. Dinesen, T. Minde, G.-T. Rustad, M. |
author_facet |
Melbøe, L. Hansen, K.L. Johnsen, B.-E. Fedreheim, G.E. Dinesen, T. Minde, G.-T. Rustad, M. |
author_sort |
Melbøe, L. |
title |
Ethical and methodological issues in research with Sami experiencing disability |
title_short |
Ethical and methodological issues in research with Sami experiencing disability |
title_full |
Ethical and methodological issues in research with Sami experiencing disability |
title_fullStr |
Ethical and methodological issues in research with Sami experiencing disability |
title_full_unstemmed |
Ethical and methodological issues in research with Sami experiencing disability |
title_sort |
ethical and methodological issues in research with sami experiencing disability |
publisher |
International Journal of Circumpolar Health |
publishDate |
2016 |
url |
http://hdl.handle.net/11250/2495754 https://doi.org/10.3402/ijch.v75.31656 |
geographic |
Norway |
geographic_facet |
Norway |
genre |
Circumpolar Health International Journal of Circumpolar Health sami |
genre_facet |
Circumpolar Health International Journal of Circumpolar Health sami |
op_source |
75 International Journal of Circumpolar Health 1 |
op_rights |
Navngivelse 4.0 Internasjonal http://creativecommons.org/licenses/by/4.0/deed.no |
op_rightsnorm |
CC-BY |
op_doi |
https://doi.org/10.3402/ijch.v75.31656 |
container_title |
International Journal of Circumpolar Health |
container_volume |
75 |
container_issue |
1 |
container_start_page |
31656 |
_version_ |
1766390562145959936 |