Understanding the needs and preferences for cancer care among First Nations people: an integrative review.

This systematic review aimed to identify the needs and preferences for cancer care services among Australian First Nations people. An integrative review was conducted. A wide range of search terms were used to increase the sensitivity and specificity of the searches in electronic databases. Methodol...

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Published in:Journal of Advanced Nursing
Main Authors: Paterson, C., Roberts, C., Blackburn, J., Jojo, N., Northam, H.L., Wallis, E., Hind, A., Caulfield, R., Barratt, M., Toohey, K., Kavanagh, P.S., Bacon, R., Wilson, R.L.
Format: Article in Journal/Newspaper
Language:unknown
Published: Wiley 2023
Subjects:
Online Access:https://doi.org/10.1111/jan.15968
https://rgu-repository.worktribe.com/file/2163150/1/PATERSON%202024%20Understanding%20the%20needs%20%28VOR%29
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spelling ftrobertguniv:oai:rgu-repository.worktribe.com:2163150 2024-06-02T08:06:36+00:00 Understanding the needs and preferences for cancer care among First Nations people: an integrative review. Paterson, C. Roberts, C. Blackburn, J. Jojo, N. Northam, H.L. Wallis, E. Hind, A. Caulfield, R. Barratt, M. Toohey, K. Kavanagh, P.S. Bacon, R. Wilson, R.L. 2023-11-28 https://doi.org/10.1111/jan.15968 https://rgu-repository.worktribe.com/file/2163150/1/PATERSON%202024%20Understanding%20the%20needs%20%28VOR%29 https://rgu-repository.worktribe.com/output/2163150 unknown Wiley https://rgu-repository.worktribe.com/output/2163150 doi:https://doi.org/10.1111/jan.15968 https://rgu-repository.worktribe.com/file/2163150/1/PATERSON%202024%20Understanding%20the%20needs%20%28VOR%29 0309-2402 10.1111/jan.15968 openAccess https://creativecommons.org/licenses/by/4.0/ Supportive care Unmet needs Cancer care Indigenous First nations Health & Wellbeing Journal Article publishedVersion 2023 ftrobertguniv https://doi.org/10.1111/jan.15968 2024-05-07T23:31:29Z This systematic review aimed to identify the needs and preferences for cancer care services among Australian First Nations people. An integrative review was conducted. A wide range of search terms were used to increase the sensitivity and specificity of the searches in electronic databases. Methodological quality assessment, data extraction, was conducted independently by two reviewers, and a narrative synthesis was conducted. Forty‐two studies were included. A total of 2965 Australian First Nations adults, both men and women of various ages across the lifespan, were represented; no First Nations children affected by cancer were represented in the studies. Three themes emerged which included: (1) discrimination, racism and trauma, resulting from colonization, directly impacted First National people's cancer care experience; (2) cultural ways of knowing, being and doing are fundamental to how First Nations people engage with cancer care services; and (3) First Nations people need culturally safe person‐centred cancer care services that address practical needs. Most participants represented in this review experienced discrimination, racism and trauma, resulting from colonization, which directly negatively impacted Aboriginal peoples' cancer care experience. While the Optimal Cancer Pathway (OCP) was launched in Australia several years ago, people with cancer may continue to experience distressing unmet care needs. Our team includes both First Nations people, non‐First Nations researchers and healthcare professionals with expertise in cancer care. The researchers employed decolonizing restorative approaches to ensure voice, respect, accountability and reciprocity in this review work. Members of the multidisciplinary team including nurses and policymakers should reflect on these findings, ensure that they have up‐to‐date cultural safety training and stand together with Indigenous and non‐Indigenous cancer leaders to take proactive steps to stamp out and dismantle oppression in health, and safely implement the OCP. Article in Journal/Newspaper First Nations OpenAIR@RGU (Robert Gordon University, Aberdeen) Journal of Advanced Nursing 80 5 1776 1812
institution Open Polar
collection OpenAIR@RGU (Robert Gordon University, Aberdeen)
op_collection_id ftrobertguniv
language unknown
topic Supportive care
Unmet needs
Cancer care
Indigenous
First nations
Health & Wellbeing
spellingShingle Supportive care
Unmet needs
Cancer care
Indigenous
First nations
Health & Wellbeing
Paterson, C.
Roberts, C.
Blackburn, J.
Jojo, N.
Northam, H.L.
Wallis, E.
Hind, A.
Caulfield, R.
Barratt, M.
Toohey, K.
Kavanagh, P.S.
Bacon, R.
Wilson, R.L.
Understanding the needs and preferences for cancer care among First Nations people: an integrative review.
topic_facet Supportive care
Unmet needs
Cancer care
Indigenous
First nations
Health & Wellbeing
description This systematic review aimed to identify the needs and preferences for cancer care services among Australian First Nations people. An integrative review was conducted. A wide range of search terms were used to increase the sensitivity and specificity of the searches in electronic databases. Methodological quality assessment, data extraction, was conducted independently by two reviewers, and a narrative synthesis was conducted. Forty‐two studies were included. A total of 2965 Australian First Nations adults, both men and women of various ages across the lifespan, were represented; no First Nations children affected by cancer were represented in the studies. Three themes emerged which included: (1) discrimination, racism and trauma, resulting from colonization, directly impacted First National people's cancer care experience; (2) cultural ways of knowing, being and doing are fundamental to how First Nations people engage with cancer care services; and (3) First Nations people need culturally safe person‐centred cancer care services that address practical needs. Most participants represented in this review experienced discrimination, racism and trauma, resulting from colonization, which directly negatively impacted Aboriginal peoples' cancer care experience. While the Optimal Cancer Pathway (OCP) was launched in Australia several years ago, people with cancer may continue to experience distressing unmet care needs. Our team includes both First Nations people, non‐First Nations researchers and healthcare professionals with expertise in cancer care. The researchers employed decolonizing restorative approaches to ensure voice, respect, accountability and reciprocity in this review work. Members of the multidisciplinary team including nurses and policymakers should reflect on these findings, ensure that they have up‐to‐date cultural safety training and stand together with Indigenous and non‐Indigenous cancer leaders to take proactive steps to stamp out and dismantle oppression in health, and safely implement the OCP.
format Article in Journal/Newspaper
author Paterson, C.
Roberts, C.
Blackburn, J.
Jojo, N.
Northam, H.L.
Wallis, E.
Hind, A.
Caulfield, R.
Barratt, M.
Toohey, K.
Kavanagh, P.S.
Bacon, R.
Wilson, R.L.
author_facet Paterson, C.
Roberts, C.
Blackburn, J.
Jojo, N.
Northam, H.L.
Wallis, E.
Hind, A.
Caulfield, R.
Barratt, M.
Toohey, K.
Kavanagh, P.S.
Bacon, R.
Wilson, R.L.
author_sort Paterson, C.
title Understanding the needs and preferences for cancer care among First Nations people: an integrative review.
title_short Understanding the needs and preferences for cancer care among First Nations people: an integrative review.
title_full Understanding the needs and preferences for cancer care among First Nations people: an integrative review.
title_fullStr Understanding the needs and preferences for cancer care among First Nations people: an integrative review.
title_full_unstemmed Understanding the needs and preferences for cancer care among First Nations people: an integrative review.
title_sort understanding the needs and preferences for cancer care among first nations people: an integrative review.
publisher Wiley
publishDate 2023
url https://doi.org/10.1111/jan.15968
https://rgu-repository.worktribe.com/file/2163150/1/PATERSON%202024%20Understanding%20the%20needs%20%28VOR%29
https://rgu-repository.worktribe.com/output/2163150
genre First Nations
genre_facet First Nations
op_relation https://rgu-repository.worktribe.com/output/2163150
doi:https://doi.org/10.1111/jan.15968
https://rgu-repository.worktribe.com/file/2163150/1/PATERSON%202024%20Understanding%20the%20needs%20%28VOR%29
0309-2402
10.1111/jan.15968
op_rights openAccess
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op_doi https://doi.org/10.1111/jan.15968
container_title Journal of Advanced Nursing
container_volume 80
container_issue 5
container_start_page 1776
op_container_end_page 1812
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