Cancer prevention in cancer predisposition syndromes: A protocol for testing the feasibility of building a hereditary cancer research registry and nurse navigator follow up model

• Published in: PLOS ONE
• Main Authors: Etchegary, Holly, Pike, April, Puddester, Rebecca, Watkins, Kathy, Warren, Mike, Francis, Vanessa, Woods, Michael, Green, Jane, Savas, Sevtap, Seal, Melanie, Gao, Zhiwei, Avery, Susan, Curtis, Fiona, McGrath, Jerry, MacDonald, Donald, Burry, T. Nadine, Dawson, Lesa
• Format: Text
• Language: English
• Published: Public Library of Science 2022
• Subjects: Study Protocol; Canada; Lynch; Newfoundland
• Online Access: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC9778977/; https://doi.org/10.1371/journal.pone.0279317

Monogenic, high penetrance syndromes, conferring an increased risk of malignancies in multiple organs, are important contributors to the hereditary burden of cancer. Early detection and risk reduction strategies in patients with a cancer predisposition syndrome can save their lives. However, despite...