Preventing Drift through Continued Co-Design with a First Nations Community: Refining the Prototype of a Tiered FASD Assessment
As part of the broader Yapatjarrathati project, 47 remote health providers and community members attended a two-day workshop presenting a prototype of a culturally-safe, tiered neurodevelopmental assessment that can identify fetal alcohol spectrum disorder (FASD) in primary healthcare. The workshop...
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Online Access: | http://www.ncbi.nlm.nih.gov/pmc/articles/PMC9517247/ http://www.ncbi.nlm.nih.gov/pubmed/36141498 https://doi.org/10.3390/ijerph191811226 |
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ftpubmed:oai:pubmedcentral.nih.gov:9517247 2023-05-15T16:15:29+02:00 Preventing Drift through Continued Co-Design with a First Nations Community: Refining the Prototype of a Tiered FASD Assessment Miller, Luke Shanley, Dianne C. Page, Marjad Webster, Heidi Liu, Wei Reid, Natasha Shelton, Doug West, Karen Marshall, Joan Hawkins, Erinn 2022-09-07 http://www.ncbi.nlm.nih.gov/pmc/articles/PMC9517247/ http://www.ncbi.nlm.nih.gov/pubmed/36141498 https://doi.org/10.3390/ijerph191811226 en eng MDPI http://www.ncbi.nlm.nih.gov/pmc/articles/PMC9517247/ http://www.ncbi.nlm.nih.gov/pubmed/36141498 http://dx.doi.org/10.3390/ijerph191811226 © 2022 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/). CC-BY Int J Environ Res Public Health Article Text 2022 ftpubmed https://doi.org/10.3390/ijerph191811226 2022-10-02T00:59:26Z As part of the broader Yapatjarrathati project, 47 remote health providers and community members attended a two-day workshop presenting a prototype of a culturally-safe, tiered neurodevelopmental assessment that can identify fetal alcohol spectrum disorder (FASD) in primary healthcare. The workshop provided a forum for broad community feedback on the tiered assessment process, which was initially co-designed with a smaller number of key First Nations community stakeholders. Improvement in self-reported attendee knowledge, confidence, and perceived competence in the neurodevelopmental assessment process was found post-workshop, assessed through self-report questionnaires. Narrative analysis described attendee experiences and learnings (extracted from the workshop transcript), and workshop facilitator experiences and learnings (extracted from self-reflections). Narrative analysis of the workshop transcript highlighted a collective sense of compassion for those who use alcohol to cope with intergenerational trauma, but exhaustion at the cyclical nature of FASD. There was a strong desire for a shared responsibility for First Nations children and families and a more prominent role for Aboriginal Health Workers in the assessment process. Narrative analysis from workshop facilitator reflections highlighted learnings about community expertise, the inadvertent application of dominant cultural approaches throughout facilitation, and that greater emphasis on the First Nation’s worldview and connection to the community was important for the assessment process to be maintained long-term. This study emphasised the benefit of continued co-design to ensure health implementation strategies match the needs of the community. Text First Nations PubMed Central (PMC) International Journal of Environmental Research and Public Health 19 18 11226 |
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Article Miller, Luke Shanley, Dianne C. Page, Marjad Webster, Heidi Liu, Wei Reid, Natasha Shelton, Doug West, Karen Marshall, Joan Hawkins, Erinn Preventing Drift through Continued Co-Design with a First Nations Community: Refining the Prototype of a Tiered FASD Assessment |
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description |
As part of the broader Yapatjarrathati project, 47 remote health providers and community members attended a two-day workshop presenting a prototype of a culturally-safe, tiered neurodevelopmental assessment that can identify fetal alcohol spectrum disorder (FASD) in primary healthcare. The workshop provided a forum for broad community feedback on the tiered assessment process, which was initially co-designed with a smaller number of key First Nations community stakeholders. Improvement in self-reported attendee knowledge, confidence, and perceived competence in the neurodevelopmental assessment process was found post-workshop, assessed through self-report questionnaires. Narrative analysis described attendee experiences and learnings (extracted from the workshop transcript), and workshop facilitator experiences and learnings (extracted from self-reflections). Narrative analysis of the workshop transcript highlighted a collective sense of compassion for those who use alcohol to cope with intergenerational trauma, but exhaustion at the cyclical nature of FASD. There was a strong desire for a shared responsibility for First Nations children and families and a more prominent role for Aboriginal Health Workers in the assessment process. Narrative analysis from workshop facilitator reflections highlighted learnings about community expertise, the inadvertent application of dominant cultural approaches throughout facilitation, and that greater emphasis on the First Nation’s worldview and connection to the community was important for the assessment process to be maintained long-term. This study emphasised the benefit of continued co-design to ensure health implementation strategies match the needs of the community. |
format |
Text |
author |
Miller, Luke Shanley, Dianne C. Page, Marjad Webster, Heidi Liu, Wei Reid, Natasha Shelton, Doug West, Karen Marshall, Joan Hawkins, Erinn |
author_facet |
Miller, Luke Shanley, Dianne C. Page, Marjad Webster, Heidi Liu, Wei Reid, Natasha Shelton, Doug West, Karen Marshall, Joan Hawkins, Erinn |
author_sort |
Miller, Luke |
title |
Preventing Drift through Continued Co-Design with a First Nations Community: Refining the Prototype of a Tiered FASD Assessment |
title_short |
Preventing Drift through Continued Co-Design with a First Nations Community: Refining the Prototype of a Tiered FASD Assessment |
title_full |
Preventing Drift through Continued Co-Design with a First Nations Community: Refining the Prototype of a Tiered FASD Assessment |
title_fullStr |
Preventing Drift through Continued Co-Design with a First Nations Community: Refining the Prototype of a Tiered FASD Assessment |
title_full_unstemmed |
Preventing Drift through Continued Co-Design with a First Nations Community: Refining the Prototype of a Tiered FASD Assessment |
title_sort |
preventing drift through continued co-design with a first nations community: refining the prototype of a tiered fasd assessment |
publisher |
MDPI |
publishDate |
2022 |
url |
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC9517247/ http://www.ncbi.nlm.nih.gov/pubmed/36141498 https://doi.org/10.3390/ijerph191811226 |
genre |
First Nations |
genre_facet |
First Nations |
op_source |
Int J Environ Res Public Health |
op_relation |
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC9517247/ http://www.ncbi.nlm.nih.gov/pubmed/36141498 http://dx.doi.org/10.3390/ijerph191811226 |
op_rights |
© 2022 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/). |
op_rightsnorm |
CC-BY |
op_doi |
https://doi.org/10.3390/ijerph191811226 |
container_title |
International Journal of Environmental Research and Public Health |
container_volume |
19 |
container_issue |
18 |
container_start_page |
11226 |
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1766001231450341376 |