Adaptation of a Shared Decision-Making Tool for Early Rheumatoid Arthritis Treatment Decisions with Indigenous Patients
BACKGROUND: Patient decision aids (PtDAs) enable shared decision-making between patients and healthcare providers. Adaptations to PtDAs for use with populations facing inequities in healthcare can improve the relevancy of information presented, incorporate appropriate cultural context, and address h...
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ftpubmed:oai:pubmedcentral.nih.gov:8866334 2023-05-15T16:16:50+02:00 Adaptation of a Shared Decision-Making Tool for Early Rheumatoid Arthritis Treatment Decisions with Indigenous Patients Umaefulam, Valerie Fox, Terri-Lynn Hazlewood, Glen Bansback, Nick Barber, Claire E. H. Barnabe, Cheryl 2021-09-06 http://www.ncbi.nlm.nih.gov/pmc/articles/PMC8866334/ http://www.ncbi.nlm.nih.gov/pubmed/34486098 https://doi.org/10.1007/s40271-021-00546-8 en eng Springer International Publishing http://www.ncbi.nlm.nih.gov/pmc/articles/PMC8866334/ http://www.ncbi.nlm.nih.gov/pubmed/34486098 http://dx.doi.org/10.1007/s40271-021-00546-8 © The Author(s) 2021 https://creativecommons.org/licenses/by-nc/4.0/Open AccessThis article is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License, which permits any non-commercial use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by-nc/4.0/ (https://creativecommons.org/licenses/by-nc/4.0/) . CC-BY-NC Patient Original Research Article Text 2021 ftpubmed https://doi.org/10.1007/s40271-021-00546-8 2022-03-06T01:49:06Z BACKGROUND: Patient decision aids (PtDAs) enable shared decision-making between patients and healthcare providers. Adaptations to PtDAs for use with populations facing inequities in healthcare can improve the relevancy of information presented, incorporate appropriate cultural context, and address health literacy concerns. Our objective was to adapt the Early RA (rheumatoid arthritis) PtDA for use with Canadian Indigenous patients. METHODS: The Early RA PtDA was modified through an iterative process using data obtained from semi-structured interviews of two sequential cohorts of Indigenous patients with RA. Interview data were analyzed using thematic analysis. RESULTS: Seven participants provided initial feedback on the existing PtDA. The modifications they suggested were made and shared with another nine participants to confirm acceptability and provide further feedback. The first cohort suggested revisions to clarify medical and cost coverage information, include Indigenous traditional healing practice options, simplify text, and include Indigenous images and colors aligned with Canadian Indigenous community representation. Additional revisions were suggested by the second cohort to increase the legibility of the text, insert more Indigenous imagery, address formulary coverage for non-status First Nations patients, and include information about lifestyle factors in managing RA. CONCLUSION: Incorporating Indigenous-specific adaptations in the design of PtDAs may increase use and relevancy to support engagement in treatment decisions, thereby supporting health-equity oriented health service interventions. Indigenous patient-specific evidence and translation of key words into the end-users’ Indigenous languages should be included for implementation of the PtDA. SUPPLEMENTARY INFORMATION: The online version contains supplementary material available at 10.1007/s40271-021-00546-8. Text First Nations PubMed Central (PMC) The Patient - Patient-Centered Outcomes Research 15 2 233 243 |
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Original Research Article Umaefulam, Valerie Fox, Terri-Lynn Hazlewood, Glen Bansback, Nick Barber, Claire E. H. Barnabe, Cheryl Adaptation of a Shared Decision-Making Tool for Early Rheumatoid Arthritis Treatment Decisions with Indigenous Patients |
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Original Research Article |
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BACKGROUND: Patient decision aids (PtDAs) enable shared decision-making between patients and healthcare providers. Adaptations to PtDAs for use with populations facing inequities in healthcare can improve the relevancy of information presented, incorporate appropriate cultural context, and address health literacy concerns. Our objective was to adapt the Early RA (rheumatoid arthritis) PtDA for use with Canadian Indigenous patients. METHODS: The Early RA PtDA was modified through an iterative process using data obtained from semi-structured interviews of two sequential cohorts of Indigenous patients with RA. Interview data were analyzed using thematic analysis. RESULTS: Seven participants provided initial feedback on the existing PtDA. The modifications they suggested were made and shared with another nine participants to confirm acceptability and provide further feedback. The first cohort suggested revisions to clarify medical and cost coverage information, include Indigenous traditional healing practice options, simplify text, and include Indigenous images and colors aligned with Canadian Indigenous community representation. Additional revisions were suggested by the second cohort to increase the legibility of the text, insert more Indigenous imagery, address formulary coverage for non-status First Nations patients, and include information about lifestyle factors in managing RA. CONCLUSION: Incorporating Indigenous-specific adaptations in the design of PtDAs may increase use and relevancy to support engagement in treatment decisions, thereby supporting health-equity oriented health service interventions. Indigenous patient-specific evidence and translation of key words into the end-users’ Indigenous languages should be included for implementation of the PtDA. SUPPLEMENTARY INFORMATION: The online version contains supplementary material available at 10.1007/s40271-021-00546-8. |
format |
Text |
author |
Umaefulam, Valerie Fox, Terri-Lynn Hazlewood, Glen Bansback, Nick Barber, Claire E. H. Barnabe, Cheryl |
author_facet |
Umaefulam, Valerie Fox, Terri-Lynn Hazlewood, Glen Bansback, Nick Barber, Claire E. H. Barnabe, Cheryl |
author_sort |
Umaefulam, Valerie |
title |
Adaptation of a Shared Decision-Making Tool for Early Rheumatoid Arthritis Treatment Decisions with Indigenous Patients |
title_short |
Adaptation of a Shared Decision-Making Tool for Early Rheumatoid Arthritis Treatment Decisions with Indigenous Patients |
title_full |
Adaptation of a Shared Decision-Making Tool for Early Rheumatoid Arthritis Treatment Decisions with Indigenous Patients |
title_fullStr |
Adaptation of a Shared Decision-Making Tool for Early Rheumatoid Arthritis Treatment Decisions with Indigenous Patients |
title_full_unstemmed |
Adaptation of a Shared Decision-Making Tool for Early Rheumatoid Arthritis Treatment Decisions with Indigenous Patients |
title_sort |
adaptation of a shared decision-making tool for early rheumatoid arthritis treatment decisions with indigenous patients |
publisher |
Springer International Publishing |
publishDate |
2021 |
url |
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC8866334/ http://www.ncbi.nlm.nih.gov/pubmed/34486098 https://doi.org/10.1007/s40271-021-00546-8 |
genre |
First Nations |
genre_facet |
First Nations |
op_source |
Patient |
op_relation |
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC8866334/ http://www.ncbi.nlm.nih.gov/pubmed/34486098 http://dx.doi.org/10.1007/s40271-021-00546-8 |
op_rights |
© The Author(s) 2021 https://creativecommons.org/licenses/by-nc/4.0/Open AccessThis article is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License, which permits any non-commercial use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by-nc/4.0/ (https://creativecommons.org/licenses/by-nc/4.0/) . |
op_rightsnorm |
CC-BY-NC |
op_doi |
https://doi.org/10.1007/s40271-021-00546-8 |
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The Patient - Patient-Centered Outcomes Research |
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15 |
container_issue |
2 |
container_start_page |
233 |
op_container_end_page |
243 |
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