Understanding culturally safe cancer survivorship care with inuit in an urban community
Cancer is a leading cause of death among Inuit. A legacy of colonialism, residential schools, and systemic racism has eroded trust among Inuit and many do not receive culturally safe care. This study aimed to explore the meaning of culturally safe cancer survivorship care for Inuit, and barriers and...
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ftpubmed:oai:pubmedcentral.nih.gov:8259824 2023-05-15T15:55:23+02:00 Understanding culturally safe cancer survivorship care with inuit in an urban community Enuaraq, Sipporah Gifford, Wendy Ashton, Savanah Al Awar, Zeina Larocque, Catherine Rolfe, Danielle 2021-07-05 http://www.ncbi.nlm.nih.gov/pmc/articles/PMC8259824/ http://www.ncbi.nlm.nih.gov/pubmed/34219604 https://doi.org/10.1080/22423982.2021.1949843 en eng Taylor & Francis http://www.ncbi.nlm.nih.gov/pmc/articles/PMC8259824/ http://www.ncbi.nlm.nih.gov/pubmed/34219604 http://dx.doi.org/10.1080/22423982.2021.1949843 © 2021 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group. https://creativecommons.org/licenses/by-nc/4.0/This is an Open Access article distributed under the terms of the Creative Commons Attribution-NonCommercial License (http://creativecommons.org/licenses/by-nc/4.0/ (https://creativecommons.org/licenses/by-nc/4.0/) ), which permits unrestricted non-commercial use, distribution, and reproduction in any medium, provided the original work is properly cited. CC-BY-NC Int J Circumpolar Health Original Research Article Text 2021 ftpubmed https://doi.org/10.1080/22423982.2021.1949843 2021-07-18T00:29:53Z Cancer is a leading cause of death among Inuit. A legacy of colonialism, residential schools, and systemic racism has eroded trust among Inuit and many do not receive culturally safe care. This study aimed to explore the meaning of culturally safe cancer survivorship care for Inuit, and barriers and facilitators to receiving it in an urban setting in Ontario Canada. As Inuit and Western researchers, we conducted a descriptive qualitative study. We held two focus groups (n = 27) with cancer survivors and family members, and semi-structured interviews (n = 7) with health providers. Data were analysed using thematic content analysis. Three broad themes emerged as central to culturally safe care: access to traditional ways of life, communication, and family involvement. Family support, patient navigators, and designated spaces were facilitators; lack of support for traditional ways, like country food, was a barrier. Participants were clear what constituted culturally safe care, but major barriers exist. Lack of direction at institutional and governmental levels contributes to the complexity of issues that prevent Inuit from engaging in and receiving culturally safe cancer care. To understand how to transform healthcare to be culturally safe, studies underpinned by Inuit epistemology, values, and principles are required. Text Circumpolar Health inuit PubMed Central (PMC) Canada International Journal of Circumpolar Health 80 1 1949843 |
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Original Research Article |
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Original Research Article Enuaraq, Sipporah Gifford, Wendy Ashton, Savanah Al Awar, Zeina Larocque, Catherine Rolfe, Danielle Understanding culturally safe cancer survivorship care with inuit in an urban community |
topic_facet |
Original Research Article |
description |
Cancer is a leading cause of death among Inuit. A legacy of colonialism, residential schools, and systemic racism has eroded trust among Inuit and many do not receive culturally safe care. This study aimed to explore the meaning of culturally safe cancer survivorship care for Inuit, and barriers and facilitators to receiving it in an urban setting in Ontario Canada. As Inuit and Western researchers, we conducted a descriptive qualitative study. We held two focus groups (n = 27) with cancer survivors and family members, and semi-structured interviews (n = 7) with health providers. Data were analysed using thematic content analysis. Three broad themes emerged as central to culturally safe care: access to traditional ways of life, communication, and family involvement. Family support, patient navigators, and designated spaces were facilitators; lack of support for traditional ways, like country food, was a barrier. Participants were clear what constituted culturally safe care, but major barriers exist. Lack of direction at institutional and governmental levels contributes to the complexity of issues that prevent Inuit from engaging in and receiving culturally safe cancer care. To understand how to transform healthcare to be culturally safe, studies underpinned by Inuit epistemology, values, and principles are required. |
format |
Text |
author |
Enuaraq, Sipporah Gifford, Wendy Ashton, Savanah Al Awar, Zeina Larocque, Catherine Rolfe, Danielle |
author_facet |
Enuaraq, Sipporah Gifford, Wendy Ashton, Savanah Al Awar, Zeina Larocque, Catherine Rolfe, Danielle |
author_sort |
Enuaraq, Sipporah |
title |
Understanding culturally safe cancer survivorship care with inuit in an urban community |
title_short |
Understanding culturally safe cancer survivorship care with inuit in an urban community |
title_full |
Understanding culturally safe cancer survivorship care with inuit in an urban community |
title_fullStr |
Understanding culturally safe cancer survivorship care with inuit in an urban community |
title_full_unstemmed |
Understanding culturally safe cancer survivorship care with inuit in an urban community |
title_sort |
understanding culturally safe cancer survivorship care with inuit in an urban community |
publisher |
Taylor & Francis |
publishDate |
2021 |
url |
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC8259824/ http://www.ncbi.nlm.nih.gov/pubmed/34219604 https://doi.org/10.1080/22423982.2021.1949843 |
geographic |
Canada |
geographic_facet |
Canada |
genre |
Circumpolar Health inuit |
genre_facet |
Circumpolar Health inuit |
op_source |
Int J Circumpolar Health |
op_relation |
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC8259824/ http://www.ncbi.nlm.nih.gov/pubmed/34219604 http://dx.doi.org/10.1080/22423982.2021.1949843 |
op_rights |
© 2021 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group. https://creativecommons.org/licenses/by-nc/4.0/This is an Open Access article distributed under the terms of the Creative Commons Attribution-NonCommercial License (http://creativecommons.org/licenses/by-nc/4.0/ (https://creativecommons.org/licenses/by-nc/4.0/) ), which permits unrestricted non-commercial use, distribution, and reproduction in any medium, provided the original work is properly cited. |
op_rightsnorm |
CC-BY-NC |
op_doi |
https://doi.org/10.1080/22423982.2021.1949843 |
container_title |
International Journal of Circumpolar Health |
container_volume |
80 |
container_issue |
1 |
container_start_page |
1949843 |
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1766390870094905344 |