A qualitative study of home care client and caregiver experiences with a complex cardio-respiratory management model

BACKGROUND: Home care clients are typically older and have some degree of medical, physical, cognitive or social conditions that require formal or informal support to promote healthy aging in the community. Home care clients contribute a significant proportion of health service use, including emerge...

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Published in:BMC Geriatrics
Main Authors: Schumacher, Connie, Dash, Darly, Mowbray, Fabrice, Klea, Lindsay, Costa, Andrew
Format: Text
Language:English
Published: BioMed Central 2021
Subjects:
Research
Newfoundland
Online Access:http://www.ncbi.nlm.nih.gov/pmc/articles/PMC8103627/
http://www.ncbi.nlm.nih.gov/pubmed/33962577
https://doi.org/10.1186/s12877-021-02251-5
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spelling ftpubmed:oai:pubmedcentral.nih.gov:8103627 2023-05-15T17:22:46+02:00 A qualitative study of home care client and caregiver experiences with a complex cardio-respiratory management model Schumacher, Connie Dash, Darly Mowbray, Fabrice Klea, Lindsay Costa, Andrew 2021-05-07 http://www.ncbi.nlm.nih.gov/pmc/articles/PMC8103627/ http://www.ncbi.nlm.nih.gov/pubmed/33962577 https://doi.org/10.1186/s12877-021-02251-5 en eng BioMed Central http://www.ncbi.nlm.nih.gov/pmc/articles/PMC8103627/ http://www.ncbi.nlm.nih.gov/pubmed/33962577 http://dx.doi.org/10.1186/s12877-021-02251-5 © The Author(s) 2021 https://creativecommons.org/licenses/by/4.0/Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) . The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/ (https://creativecommons.org/publicdomain/zero/1.0/) ) applies to the data made available in this article, unless otherwise stated in a credit line to the data. CC0 PDM CC-BY BMC Geriatr Research Text 2021 ftpubmed https://doi.org/10.1186/s12877-021-02251-5 2021-05-16T00:36:28Z BACKGROUND: Home care clients are typically older and have some degree of medical, physical, cognitive or social conditions that require formal or informal support to promote healthy aging in the community. Home care clients contribute a significant proportion of health service use, including emergency department visits. The DIVERT-CARE trial introduced a cardio-respiratory management model to improve client motivation, symptoms and rates of unwarranted health service use. Our objective was to explore the perceptions and experiences of individuals who participated in the DIVERT-CARE self-management support and education intervention. METHODS: A qualitative study was nested within a pragmatic randomized control trial and conducted following a 15-week multi-component cardio-respiratory intervention. A phenomenological descriptive design was employed using thematic analysis. Post-intervention, clients and their caregivers were invited to participate in a semi-structured telephone interview. Interview questions were designed to elicit the experience with the intervention components. RESULTS: A total of 29 interviews were completed from June 2018 to March 2020 from participants in Ontario, Newfoundland, and British Columbia. Three themes were identified; self-care trajectory and burden of responsibility, learning and behaviour change, and feeling connected pre-emptively to care providers, the information and medical advice, and connection through the therapeutic relationship. CONCLUSIONS: Home care clients experience unique challenges in managing cardio-respiratory related chronic disease. Home-based interventions fostered a therapeutic relationship of connectedness while equipping clients with necessary knowledge and skills. These results inform recommendations for community nursing, and home-based self-management supports for older community-residing individuals. SUPPLEMENTARY INFORMATION: The online version contains supplementary material available at 10.1186/s12877-021-02251-5. Text Newfoundland PubMed Central (PMC) BMC Geriatrics 21 1
institution Open Polar
collection PubMed Central (PMC)
op_collection_id ftpubmed
language English
topic Research
spellingShingle Research
Schumacher, Connie
Dash, Darly
Mowbray, Fabrice
Klea, Lindsay
Costa, Andrew
A qualitative study of home care client and caregiver experiences with a complex cardio-respiratory management model
topic_facet Research
description BACKGROUND: Home care clients are typically older and have some degree of medical, physical, cognitive or social conditions that require formal or informal support to promote healthy aging in the community. Home care clients contribute a significant proportion of health service use, including emergency department visits. The DIVERT-CARE trial introduced a cardio-respiratory management model to improve client motivation, symptoms and rates of unwarranted health service use. Our objective was to explore the perceptions and experiences of individuals who participated in the DIVERT-CARE self-management support and education intervention. METHODS: A qualitative study was nested within a pragmatic randomized control trial and conducted following a 15-week multi-component cardio-respiratory intervention. A phenomenological descriptive design was employed using thematic analysis. Post-intervention, clients and their caregivers were invited to participate in a semi-structured telephone interview. Interview questions were designed to elicit the experience with the intervention components. RESULTS: A total of 29 interviews were completed from June 2018 to March 2020 from participants in Ontario, Newfoundland, and British Columbia. Three themes were identified; self-care trajectory and burden of responsibility, learning and behaviour change, and feeling connected pre-emptively to care providers, the information and medical advice, and connection through the therapeutic relationship. CONCLUSIONS: Home care clients experience unique challenges in managing cardio-respiratory related chronic disease. Home-based interventions fostered a therapeutic relationship of connectedness while equipping clients with necessary knowledge and skills. These results inform recommendations for community nursing, and home-based self-management supports for older community-residing individuals. SUPPLEMENTARY INFORMATION: The online version contains supplementary material available at 10.1186/s12877-021-02251-5.
format Text
author Schumacher, Connie
Dash, Darly
Mowbray, Fabrice
Klea, Lindsay
Costa, Andrew
author_facet Schumacher, Connie
Dash, Darly
Mowbray, Fabrice
Klea, Lindsay
Costa, Andrew
author_sort Schumacher, Connie
title A qualitative study of home care client and caregiver experiences with a complex cardio-respiratory management model
title_short A qualitative study of home care client and caregiver experiences with a complex cardio-respiratory management model
title_full A qualitative study of home care client and caregiver experiences with a complex cardio-respiratory management model
title_fullStr A qualitative study of home care client and caregiver experiences with a complex cardio-respiratory management model
title_full_unstemmed A qualitative study of home care client and caregiver experiences with a complex cardio-respiratory management model
title_sort qualitative study of home care client and caregiver experiences with a complex cardio-respiratory management model
publisher BioMed Central
publishDate 2021
url http://www.ncbi.nlm.nih.gov/pmc/articles/PMC8103627/
http://www.ncbi.nlm.nih.gov/pubmed/33962577
https://doi.org/10.1186/s12877-021-02251-5
genre Newfoundland
genre_facet Newfoundland
op_source BMC Geriatr
op_relation http://www.ncbi.nlm.nih.gov/pmc/articles/PMC8103627/
http://www.ncbi.nlm.nih.gov/pubmed/33962577
http://dx.doi.org/10.1186/s12877-021-02251-5
op_rights © The Author(s) 2021
https://creativecommons.org/licenses/by/4.0/Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) . The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/ (https://creativecommons.org/publicdomain/zero/1.0/) ) applies to the data made available in this article, unless otherwise stated in a credit line to the data.
op_rightsnorm CC0
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op_doi https://doi.org/10.1186/s12877-021-02251-5
container_title BMC Geriatrics
container_volume 21
container_issue 1
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