Public engagement with genomic medicine: a summary of town hall discussions
Engaging with the public for their input about genomic medicine is critical before it is implemented into routine healthcare practice. In order to inform discussion and planning for the introduction of genome sequencing into clinical care in an Eastern Canadian province, we implemented a program of...
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ftpubmed:oai:pubmedcentral.nih.gov:7846649 2023-05-15T17:22:14+02:00 Public engagement with genomic medicine: a summary of town hall discussions Etchegary, Holly Winsor, Mercy Power, Angela Simmonds, Charlene 2020-08-31 http://www.ncbi.nlm.nih.gov/pmc/articles/PMC7846649/ http://www.ncbi.nlm.nih.gov/pubmed/32865775 https://doi.org/10.1007/s12687-020-00485-1 en eng Springer Berlin Heidelberg http://www.ncbi.nlm.nih.gov/pmc/articles/PMC7846649/ http://www.ncbi.nlm.nih.gov/pubmed/32865775 http://dx.doi.org/10.1007/s12687-020-00485-1 © Springer-Verlag GmbH Germany, part of Springer Nature 2020 J Community Genet Original Article Text 2020 ftpubmed https://doi.org/10.1007/s12687-020-00485-1 2021-02-07T01:45:52Z Engaging with the public for their input about genomic medicine is critical before it is implemented into routine healthcare practice. In order to inform discussion and planning for the introduction of genome sequencing into clinical care in an Eastern Canadian province, we implemented a program of public engagement activities. Here, we report a qualitative summary of two town hall discussions utilizing a hybrid information–consultation approach with 20 residents of the province of Newfoundland and Labrador, Canada. Discussion revealed largely positive attitudes towards genomic medicine; however, critical reflection around informed consent models, the return of sequencing findings, and access to qualified healthcare professionals revealed numerous public concerns. Public support will be important to realize the potential benefits of genomics and precision medicine to health outcomes. Our findings highlight public concerns that must be addressed in educational and informed consent documents related to sequencing. Town hall attendees endorsed ongoing public education and awareness-building initiatives which could help foster transparency and trust as genomics is integrated into healthcare systems. Text Newfoundland PubMed Central (PMC) Canada Newfoundland Journal of Community Genetics 12 1 27 35 |
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Original Article Etchegary, Holly Winsor, Mercy Power, Angela Simmonds, Charlene Public engagement with genomic medicine: a summary of town hall discussions |
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Original Article |
description |
Engaging with the public for their input about genomic medicine is critical before it is implemented into routine healthcare practice. In order to inform discussion and planning for the introduction of genome sequencing into clinical care in an Eastern Canadian province, we implemented a program of public engagement activities. Here, we report a qualitative summary of two town hall discussions utilizing a hybrid information–consultation approach with 20 residents of the province of Newfoundland and Labrador, Canada. Discussion revealed largely positive attitudes towards genomic medicine; however, critical reflection around informed consent models, the return of sequencing findings, and access to qualified healthcare professionals revealed numerous public concerns. Public support will be important to realize the potential benefits of genomics and precision medicine to health outcomes. Our findings highlight public concerns that must be addressed in educational and informed consent documents related to sequencing. Town hall attendees endorsed ongoing public education and awareness-building initiatives which could help foster transparency and trust as genomics is integrated into healthcare systems. |
format |
Text |
author |
Etchegary, Holly Winsor, Mercy Power, Angela Simmonds, Charlene |
author_facet |
Etchegary, Holly Winsor, Mercy Power, Angela Simmonds, Charlene |
author_sort |
Etchegary, Holly |
title |
Public engagement with genomic medicine: a summary of town hall discussions |
title_short |
Public engagement with genomic medicine: a summary of town hall discussions |
title_full |
Public engagement with genomic medicine: a summary of town hall discussions |
title_fullStr |
Public engagement with genomic medicine: a summary of town hall discussions |
title_full_unstemmed |
Public engagement with genomic medicine: a summary of town hall discussions |
title_sort |
public engagement with genomic medicine: a summary of town hall discussions |
publisher |
Springer Berlin Heidelberg |
publishDate |
2020 |
url |
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC7846649/ http://www.ncbi.nlm.nih.gov/pubmed/32865775 https://doi.org/10.1007/s12687-020-00485-1 |
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Canada Newfoundland |
geographic_facet |
Canada Newfoundland |
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Newfoundland |
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Newfoundland |
op_source |
J Community Genet |
op_relation |
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC7846649/ http://www.ncbi.nlm.nih.gov/pubmed/32865775 http://dx.doi.org/10.1007/s12687-020-00485-1 |
op_rights |
© Springer-Verlag GmbH Germany, part of Springer Nature 2020 |
op_doi |
https://doi.org/10.1007/s12687-020-00485-1 |
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Journal of Community Genetics |
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12 |
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1 |
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27 |
op_container_end_page |
35 |
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1766108727397580800 |