The Role of Patient Advisory Councils in Health Research: Lessons From Two Provincial Councils in Canada
This article describes two patient advisory councils (PACs) in Canada in order to contribute to the limited evidence base on how they might facilitate patient engagement in health research. Specifically, members of PACs from Newfoundland and Labrador and Alberta describe their councils’ governance s...
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ftpubmed:oai:pubmedcentral.nih.gov:7786741 2023-05-15T17:22:09+02:00 The Role of Patient Advisory Councils in Health Research: Lessons From Two Provincial Councils in Canada Warren, Mike Leamon, Toni Hall, Amanda Twells, Laurie Street, Catherine Stordy, Allan Majumdar, Kakali Breault, Lorraine Fiest, Kirsten Rasiah, Jananee Santana, Maria Etchegary, Holly 2020-03-23 http://www.ncbi.nlm.nih.gov/pmc/articles/PMC7786741/ https://doi.org/10.1177/2374373520909598 en eng SAGE Publications http://www.ncbi.nlm.nih.gov/pmc/articles/PMC7786741/ http://dx.doi.org/10.1177/2374373520909598 © The Author(s) 2020 https://creativecommons.org/licenses/by-nc/4.0/ This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License (https://creativecommons.org/licenses/by-nc/4.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages (https://us.sagepub.com/en-us/nam/open-access-at-sage). CC-BY-NC J Patient Exp Feature Text 2020 ftpubmed https://doi.org/10.1177/2374373520909598 2021-01-17T01:28:31Z This article describes two patient advisory councils (PACs) in Canada in order to contribute to the limited evidence base on how they might facilitate patient engagement in health research. Specifically, members of PACs from Newfoundland and Labrador and Alberta describe their councils’ governance structure, primary functions, creation and composition, and recount specific research-related activities with which they have been involved. Key challenges of these councils and facilitators of their use are also presented. Finally, members from both councils recount lessons learned and offer suggestions for others interested in advisory councils as a mechanism for patient engagement in any health research project. Members believe patient engagement can result in better quality research and encourage decision makers and researchers to utilize patients’ valuable input to inform health system changes and drive priorities at a policy level. Text Newfoundland PubMed Central (PMC) Canada Newfoundland Journal of Patient Experience 7 6 898 905 |
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Feature Warren, Mike Leamon, Toni Hall, Amanda Twells, Laurie Street, Catherine Stordy, Allan Majumdar, Kakali Breault, Lorraine Fiest, Kirsten Rasiah, Jananee Santana, Maria Etchegary, Holly The Role of Patient Advisory Councils in Health Research: Lessons From Two Provincial Councils in Canada |
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description |
This article describes two patient advisory councils (PACs) in Canada in order to contribute to the limited evidence base on how they might facilitate patient engagement in health research. Specifically, members of PACs from Newfoundland and Labrador and Alberta describe their councils’ governance structure, primary functions, creation and composition, and recount specific research-related activities with which they have been involved. Key challenges of these councils and facilitators of their use are also presented. Finally, members from both councils recount lessons learned and offer suggestions for others interested in advisory councils as a mechanism for patient engagement in any health research project. Members believe patient engagement can result in better quality research and encourage decision makers and researchers to utilize patients’ valuable input to inform health system changes and drive priorities at a policy level. |
format |
Text |
author |
Warren, Mike Leamon, Toni Hall, Amanda Twells, Laurie Street, Catherine Stordy, Allan Majumdar, Kakali Breault, Lorraine Fiest, Kirsten Rasiah, Jananee Santana, Maria Etchegary, Holly |
author_facet |
Warren, Mike Leamon, Toni Hall, Amanda Twells, Laurie Street, Catherine Stordy, Allan Majumdar, Kakali Breault, Lorraine Fiest, Kirsten Rasiah, Jananee Santana, Maria Etchegary, Holly |
author_sort |
Warren, Mike |
title |
The Role of Patient Advisory Councils in Health Research: Lessons From Two Provincial Councils in Canada |
title_short |
The Role of Patient Advisory Councils in Health Research: Lessons From Two Provincial Councils in Canada |
title_full |
The Role of Patient Advisory Councils in Health Research: Lessons From Two Provincial Councils in Canada |
title_fullStr |
The Role of Patient Advisory Councils in Health Research: Lessons From Two Provincial Councils in Canada |
title_full_unstemmed |
The Role of Patient Advisory Councils in Health Research: Lessons From Two Provincial Councils in Canada |
title_sort |
role of patient advisory councils in health research: lessons from two provincial councils in canada |
publisher |
SAGE Publications |
publishDate |
2020 |
url |
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC7786741/ https://doi.org/10.1177/2374373520909598 |
geographic |
Canada Newfoundland |
geographic_facet |
Canada Newfoundland |
genre |
Newfoundland |
genre_facet |
Newfoundland |
op_source |
J Patient Exp |
op_relation |
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC7786741/ http://dx.doi.org/10.1177/2374373520909598 |
op_rights |
© The Author(s) 2020 https://creativecommons.org/licenses/by-nc/4.0/ This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License (https://creativecommons.org/licenses/by-nc/4.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages (https://us.sagepub.com/en-us/nam/open-access-at-sage). |
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CC-BY-NC |
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https://doi.org/10.1177/2374373520909598 |
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Journal of Patient Experience |
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7 |
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6 |
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898 |
op_container_end_page |
905 |
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1766108546674458624 |