Supporting women at average risk to make informed decisions about mammography when there is no “right” answer: a qualitative citizen deliberation study
BACKGROUND: Women are encouraged to make informed choices about mammography screening that align with their values and preferences, yet information materials developed by screening programs rarely provide complete, balanced information about screening. Through a series of deliberations with Ontario...
Published in: | CMAJ Open |
---|---|
Main Authors: | , |
Format: | Text |
Language: | English |
Published: |
Joule Inc. or its licensors
2019
|
Subjects: | |
Online Access: | http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6910141/ http://www.ncbi.nlm.nih.gov/pubmed/31836630 https://doi.org/10.9778/cmajo.20190102 |
id |
ftpubmed:oai:pubmedcentral.nih.gov:6910141 |
---|---|
record_format |
openpolar |
spelling |
ftpubmed:oai:pubmedcentral.nih.gov:6910141 2023-05-15T17:22:47+02:00 Supporting women at average risk to make informed decisions about mammography when there is no “right” answer: a qualitative citizen deliberation study Tripp, Laura Abelson, Julia 2019-12-09 http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6910141/ http://www.ncbi.nlm.nih.gov/pubmed/31836630 https://doi.org/10.9778/cmajo.20190102 en eng Joule Inc. or its licensors http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6910141/ http://www.ncbi.nlm.nih.gov/pubmed/31836630 http://dx.doi.org/10.9778/cmajo.20190102 Copyright 2019, Joule Inc. or its licensors Research Text 2019 ftpubmed https://doi.org/10.9778/cmajo.20190102 2020-01-12T01:14:25Z BACKGROUND: Women are encouraged to make informed choices about mammography screening that align with their values and preferences, yet information materials developed by screening programs rarely provide complete, balanced information about screening. Through a series of deliberations with Ontario citizens, we elicited perspectives on materials developed by screening programs to support informed decision-making. METHODS: We held 4 deliberative engagement events with citizens to discuss the current evidence about mammography and informed decision-making for the general population (i.e., women not at high risk) in the context of organized screening programs. Participants reviewed and provided feedback on the educational materials currently produced by screening programs in 8 provinces (British Columbia, Alberta, Saskatchewan, Manitoba, Ontario, Quebec, Nova Scotia and Newfoundland and Labrador) and 2 territories (Yukon Territory and Northwest Territory) and identified the key features that should guide the design of these materials to optimally support informed decision-making. RESULTS: In general, participants viewed the educational materials as insufficient to support informed decision-making. They identified the following key features of optimal educational materials: they should be accessible, complete and accurate, and provide information on both benefits and risks of screening in a comprehensive, easy-to-understand manner. Information materials should evoke the trust of the reader, and they should be consistent across Canada. INTERPRETATION: Canadian women have insufficient access to reliable information sources and complete evidence about mammography screening, and, without this information, they are unable to make fully informed decisions. Canadian breast screening programs must take steps to improve the information shared with women to support informed decision-making that aligns with women’s values and preferences. Text Newfoundland Yukon PubMed Central (PMC) British Columbia ENVELOPE(-125.003,-125.003,54.000,54.000) Canada Newfoundland Yukon CMAJ Open 7 4 E730 E737 |
institution |
Open Polar |
collection |
PubMed Central (PMC) |
op_collection_id |
ftpubmed |
language |
English |
topic |
Research |
spellingShingle |
Research Tripp, Laura Abelson, Julia Supporting women at average risk to make informed decisions about mammography when there is no “right” answer: a qualitative citizen deliberation study |
topic_facet |
Research |
description |
BACKGROUND: Women are encouraged to make informed choices about mammography screening that align with their values and preferences, yet information materials developed by screening programs rarely provide complete, balanced information about screening. Through a series of deliberations with Ontario citizens, we elicited perspectives on materials developed by screening programs to support informed decision-making. METHODS: We held 4 deliberative engagement events with citizens to discuss the current evidence about mammography and informed decision-making for the general population (i.e., women not at high risk) in the context of organized screening programs. Participants reviewed and provided feedback on the educational materials currently produced by screening programs in 8 provinces (British Columbia, Alberta, Saskatchewan, Manitoba, Ontario, Quebec, Nova Scotia and Newfoundland and Labrador) and 2 territories (Yukon Territory and Northwest Territory) and identified the key features that should guide the design of these materials to optimally support informed decision-making. RESULTS: In general, participants viewed the educational materials as insufficient to support informed decision-making. They identified the following key features of optimal educational materials: they should be accessible, complete and accurate, and provide information on both benefits and risks of screening in a comprehensive, easy-to-understand manner. Information materials should evoke the trust of the reader, and they should be consistent across Canada. INTERPRETATION: Canadian women have insufficient access to reliable information sources and complete evidence about mammography screening, and, without this information, they are unable to make fully informed decisions. Canadian breast screening programs must take steps to improve the information shared with women to support informed decision-making that aligns with women’s values and preferences. |
format |
Text |
author |
Tripp, Laura Abelson, Julia |
author_facet |
Tripp, Laura Abelson, Julia |
author_sort |
Tripp, Laura |
title |
Supporting women at average risk to make informed decisions about mammography when there is no “right” answer: a qualitative citizen deliberation study |
title_short |
Supporting women at average risk to make informed decisions about mammography when there is no “right” answer: a qualitative citizen deliberation study |
title_full |
Supporting women at average risk to make informed decisions about mammography when there is no “right” answer: a qualitative citizen deliberation study |
title_fullStr |
Supporting women at average risk to make informed decisions about mammography when there is no “right” answer: a qualitative citizen deliberation study |
title_full_unstemmed |
Supporting women at average risk to make informed decisions about mammography when there is no “right” answer: a qualitative citizen deliberation study |
title_sort |
supporting women at average risk to make informed decisions about mammography when there is no “right” answer: a qualitative citizen deliberation study |
publisher |
Joule Inc. or its licensors |
publishDate |
2019 |
url |
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6910141/ http://www.ncbi.nlm.nih.gov/pubmed/31836630 https://doi.org/10.9778/cmajo.20190102 |
long_lat |
ENVELOPE(-125.003,-125.003,54.000,54.000) |
geographic |
British Columbia Canada Newfoundland Yukon |
geographic_facet |
British Columbia Canada Newfoundland Yukon |
genre |
Newfoundland Yukon |
genre_facet |
Newfoundland Yukon |
op_relation |
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6910141/ http://www.ncbi.nlm.nih.gov/pubmed/31836630 http://dx.doi.org/10.9778/cmajo.20190102 |
op_rights |
Copyright 2019, Joule Inc. or its licensors |
op_doi |
https://doi.org/10.9778/cmajo.20190102 |
container_title |
CMAJ Open |
container_volume |
7 |
container_issue |
4 |
container_start_page |
E730 |
op_container_end_page |
E737 |
_version_ |
1766109644451741696 |