Relatives’ level of satisfaction with advanced cancer care in Greenland – a mixed methods study
Palliative cancer care in Greenland is provided by health professionals at local level, the national Queen Ingrid’s Hospital and at Rigshospitalet in Denmark. To improve and develop care for relatives of patients with advanced cancer, we conducted a mixed method study examining relatives’ level of s...
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ftpubmed:oai:pubmedcentral.nih.gov:5497545 2023-05-15T16:28:43+02:00 Relatives’ level of satisfaction with advanced cancer care in Greenland – a mixed methods study Augustussen, Mikaela Hounsgaard, Lise Pedersen, Michael Lynge Sjøgren, Per Timm, Helle 2017-06-14 http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5497545/ http://www.ncbi.nlm.nih.gov/pubmed/28613119 https://doi.org/10.1080/22423982.2017.1335148 en eng Taylor & Francis http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5497545/ http://www.ncbi.nlm.nih.gov/pubmed/28613119 http://dx.doi.org/10.1080/22423982.2017.1335148 © 2017 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group. http://creativecommons.org/licenses/by/4.0/ This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited. CC-BY Research Article Text 2017 ftpubmed https://doi.org/10.1080/22423982.2017.1335148 2017-07-16T00:10:10Z Palliative cancer care in Greenland is provided by health professionals at local level, the national Queen Ingrid’s Hospital and at Rigshospitalet in Denmark. To improve and develop care for relatives of patients with advanced cancer, we conducted a mixed method study examining relatives’ level of satisfaction with care and treatment and their current main concerns. The aim was to investigate relatives’ level of satisfaction with advanced cancer care and bring to light their current main concerns. The FAMCARE-20 questionnaire was translated to Greenlandic and pilot tested. The questionnaire was supplemented by open-ended questions about relative’s current main concerns and analyzed with a phenomenological hermeneutical approach. Greenlandic patients with advanced cancer who were previously participating in a prospective study were asked if their closest adult relative would participate in the study. Telephone interviews were conducted and relatives responded to the questionnaire. A total of thirty-two relatives were contacted by telephone and 30 (94%) completed the FAMCARE-20 questionnaire and answered open-ended questions. The highest rate of satisfaction was with the availability of a hospital bed (66%) and relatives were the most dissatisfied with the lack of inclusion in decision making related to treatment and care (71%) and the length of time required to diagnose cancer (70%). Responses to the open-ended questions revealed that relatives faced challenges in gaining access to information from health professionals. They experienced a lack of security, worries about the future and a lack of support at home. The study showed a substantial level of dissatisfaction among relatives of patients with advanced cancer. We strongly recommend a focus on psychosocial care, more access to information and to include relatives in decision making and in the future planning of palliative care services. An assessment of relatives’ needs is essential to develop an adequate palliative care in a range of settings. Text Greenland greenlandic PubMed Central (PMC) Greenland International Journal of Circumpolar Health 76 1 1335148 |
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Research Article Augustussen, Mikaela Hounsgaard, Lise Pedersen, Michael Lynge Sjøgren, Per Timm, Helle Relatives’ level of satisfaction with advanced cancer care in Greenland – a mixed methods study |
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Research Article |
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Palliative cancer care in Greenland is provided by health professionals at local level, the national Queen Ingrid’s Hospital and at Rigshospitalet in Denmark. To improve and develop care for relatives of patients with advanced cancer, we conducted a mixed method study examining relatives’ level of satisfaction with care and treatment and their current main concerns. The aim was to investigate relatives’ level of satisfaction with advanced cancer care and bring to light their current main concerns. The FAMCARE-20 questionnaire was translated to Greenlandic and pilot tested. The questionnaire was supplemented by open-ended questions about relative’s current main concerns and analyzed with a phenomenological hermeneutical approach. Greenlandic patients with advanced cancer who were previously participating in a prospective study were asked if their closest adult relative would participate in the study. Telephone interviews were conducted and relatives responded to the questionnaire. A total of thirty-two relatives were contacted by telephone and 30 (94%) completed the FAMCARE-20 questionnaire and answered open-ended questions. The highest rate of satisfaction was with the availability of a hospital bed (66%) and relatives were the most dissatisfied with the lack of inclusion in decision making related to treatment and care (71%) and the length of time required to diagnose cancer (70%). Responses to the open-ended questions revealed that relatives faced challenges in gaining access to information from health professionals. They experienced a lack of security, worries about the future and a lack of support at home. The study showed a substantial level of dissatisfaction among relatives of patients with advanced cancer. We strongly recommend a focus on psychosocial care, more access to information and to include relatives in decision making and in the future planning of palliative care services. An assessment of relatives’ needs is essential to develop an adequate palliative care in a range of settings. |
format |
Text |
author |
Augustussen, Mikaela Hounsgaard, Lise Pedersen, Michael Lynge Sjøgren, Per Timm, Helle |
author_facet |
Augustussen, Mikaela Hounsgaard, Lise Pedersen, Michael Lynge Sjøgren, Per Timm, Helle |
author_sort |
Augustussen, Mikaela |
title |
Relatives’ level of satisfaction with advanced cancer care in Greenland – a mixed methods study |
title_short |
Relatives’ level of satisfaction with advanced cancer care in Greenland – a mixed methods study |
title_full |
Relatives’ level of satisfaction with advanced cancer care in Greenland – a mixed methods study |
title_fullStr |
Relatives’ level of satisfaction with advanced cancer care in Greenland – a mixed methods study |
title_full_unstemmed |
Relatives’ level of satisfaction with advanced cancer care in Greenland – a mixed methods study |
title_sort |
relatives’ level of satisfaction with advanced cancer care in greenland – a mixed methods study |
publisher |
Taylor & Francis |
publishDate |
2017 |
url |
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5497545/ http://www.ncbi.nlm.nih.gov/pubmed/28613119 https://doi.org/10.1080/22423982.2017.1335148 |
geographic |
Greenland |
geographic_facet |
Greenland |
genre |
Greenland greenlandic |
genre_facet |
Greenland greenlandic |
op_relation |
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5497545/ http://www.ncbi.nlm.nih.gov/pubmed/28613119 http://dx.doi.org/10.1080/22423982.2017.1335148 |
op_rights |
© 2017 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group. http://creativecommons.org/licenses/by/4.0/ This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited. |
op_rightsnorm |
CC-BY |
op_doi |
https://doi.org/10.1080/22423982.2017.1335148 |
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International Journal of Circumpolar Health |
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76 |
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1 |
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1335148 |
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