Data from national health registers as endpoints for the Tromsø Study: Correctness and completeness of stroke diagnoses
AIM: To assess whether stroke diagnoses in national health registers are sufficiently correct and complete to replace manual collection of endpoint data for the Tromsø Study, a population-based epidemiological study. METHOD: Using the Tromsø Study Cardiovascular Disease Register for 2013–2014 as the...
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ftpubmed:oai:pubmedcentral.nih.gov:10599083 2023-11-12T04:27:29+01:00 Data from national health registers as endpoints for the Tromsø Study: Correctness and completeness of stroke diagnoses Varmdal, Torunn Løchen, Maja-Lisa Wilsgaard, Tom Njølstad, Inger Nyrnes, Audhild Grimsgaard, Sameline Mathiesen, Ellisiv B. 2021-06-14 http://www.ncbi.nlm.nih.gov/pmc/articles/PMC10599083/ http://www.ncbi.nlm.nih.gov/pubmed/34120523 https://doi.org/10.1177/14034948211021191 en eng SAGE Publications http://www.ncbi.nlm.nih.gov/pmc/articles/PMC10599083/ http://www.ncbi.nlm.nih.gov/pubmed/34120523 http://dx.doi.org/10.1177/14034948211021191 © Author(s) 2021 https://creativecommons.org/licenses/by/4.0/This article is distributed under the terms of the Creative Commons Attribution 4.0 License (https://creativecommons.org/licenses/by/4.0/) which permits any use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages (https://us.sagepub.com/en-us/nam/open-access-at-sage). Scand J Public Health Original Articles Text 2021 ftpubmed https://doi.org/10.1177/14034948211021191 2023-10-29T01:02:17Z AIM: To assess whether stroke diagnoses in national health registers are sufficiently correct and complete to replace manual collection of endpoint data for the Tromsø Study, a population-based epidemiological study. METHOD: Using the Tromsø Study Cardiovascular Disease Register for 2013–2014 as the gold standard, we calculated correctness (defined as positive predictive value, PPV) and completeness (defined as sensitivity) of stroke cases in four different data subsets derived from the Norwegian Patient Register and the Norwegian Stroke Register. We calculated the sensitivity and PPV with 95% confidence intervals (CIs) assuming a normal approximation of the binomial distribution. RESULTS: In the Norwegian Stroke Register we found a sensitivity of 79.8% (95% CI 74.2–85.4) and a PPV of 97.5% (95% CI 95.1–99.9). In the Norwegian Patient Register the sensitivity was 86.4% (95% CI 81.6–91.1) and the PPV was 84.2% (95% CI 79.2–89.2). The overall highest levels were found in a subset based on a linkage between the Norwegian Stroke Register and the Norwegian Patient Register, with a sensitivity of 88.9% (95% CI 84.5–93.3), and a PPV of 89.3% (95% CI 85.0–93.6). CONCLUSIONS: Data from the Norwegian Patient Register and from the linked data set between the Norwegian Patient Register and the Norwegian Stroke Register had acceptable levels of correctness and completeness to be considered as endpoint sources for the Tromsø Study Cardiovascular Disease Register. The benefits of using data from national registers as endpoints in epidemiological studies must be weighed against the impact of potentially decreased data quality. Text Tromsø PubMed Central (PMC) Scandinavian Journal of Public Health 51 7 1042 1049 |
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Original Articles Varmdal, Torunn Løchen, Maja-Lisa Wilsgaard, Tom Njølstad, Inger Nyrnes, Audhild Grimsgaard, Sameline Mathiesen, Ellisiv B. Data from national health registers as endpoints for the Tromsø Study: Correctness and completeness of stroke diagnoses |
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Original Articles |
description |
AIM: To assess whether stroke diagnoses in national health registers are sufficiently correct and complete to replace manual collection of endpoint data for the Tromsø Study, a population-based epidemiological study. METHOD: Using the Tromsø Study Cardiovascular Disease Register for 2013–2014 as the gold standard, we calculated correctness (defined as positive predictive value, PPV) and completeness (defined as sensitivity) of stroke cases in four different data subsets derived from the Norwegian Patient Register and the Norwegian Stroke Register. We calculated the sensitivity and PPV with 95% confidence intervals (CIs) assuming a normal approximation of the binomial distribution. RESULTS: In the Norwegian Stroke Register we found a sensitivity of 79.8% (95% CI 74.2–85.4) and a PPV of 97.5% (95% CI 95.1–99.9). In the Norwegian Patient Register the sensitivity was 86.4% (95% CI 81.6–91.1) and the PPV was 84.2% (95% CI 79.2–89.2). The overall highest levels were found in a subset based on a linkage between the Norwegian Stroke Register and the Norwegian Patient Register, with a sensitivity of 88.9% (95% CI 84.5–93.3), and a PPV of 89.3% (95% CI 85.0–93.6). CONCLUSIONS: Data from the Norwegian Patient Register and from the linked data set between the Norwegian Patient Register and the Norwegian Stroke Register had acceptable levels of correctness and completeness to be considered as endpoint sources for the Tromsø Study Cardiovascular Disease Register. The benefits of using data from national registers as endpoints in epidemiological studies must be weighed against the impact of potentially decreased data quality. |
format |
Text |
author |
Varmdal, Torunn Løchen, Maja-Lisa Wilsgaard, Tom Njølstad, Inger Nyrnes, Audhild Grimsgaard, Sameline Mathiesen, Ellisiv B. |
author_facet |
Varmdal, Torunn Løchen, Maja-Lisa Wilsgaard, Tom Njølstad, Inger Nyrnes, Audhild Grimsgaard, Sameline Mathiesen, Ellisiv B. |
author_sort |
Varmdal, Torunn |
title |
Data from national health registers as endpoints for the Tromsø Study: Correctness and completeness of stroke diagnoses |
title_short |
Data from national health registers as endpoints for the Tromsø Study: Correctness and completeness of stroke diagnoses |
title_full |
Data from national health registers as endpoints for the Tromsø Study: Correctness and completeness of stroke diagnoses |
title_fullStr |
Data from national health registers as endpoints for the Tromsø Study: Correctness and completeness of stroke diagnoses |
title_full_unstemmed |
Data from national health registers as endpoints for the Tromsø Study: Correctness and completeness of stroke diagnoses |
title_sort |
data from national health registers as endpoints for the tromsø study: correctness and completeness of stroke diagnoses |
publisher |
SAGE Publications |
publishDate |
2021 |
url |
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC10599083/ http://www.ncbi.nlm.nih.gov/pubmed/34120523 https://doi.org/10.1177/14034948211021191 |
genre |
Tromsø |
genre_facet |
Tromsø |
op_source |
Scand J Public Health |
op_relation |
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC10599083/ http://www.ncbi.nlm.nih.gov/pubmed/34120523 http://dx.doi.org/10.1177/14034948211021191 |
op_rights |
© Author(s) 2021 https://creativecommons.org/licenses/by/4.0/This article is distributed under the terms of the Creative Commons Attribution 4.0 License (https://creativecommons.org/licenses/by/4.0/) which permits any use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages (https://us.sagepub.com/en-us/nam/open-access-at-sage). |
op_doi |
https://doi.org/10.1177/14034948211021191 |
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Scandinavian Journal of Public Health |
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51 |
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7 |
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1042 |
op_container_end_page |
1049 |
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