Laying the foundation for Real-world evidence studies: a case study from Newfoundland and Labrador
The Janssen and Newfoundland and Labrador Health Innovation Partnership (JANL-HIP) was established to carry out Real-World Evidence (RWE) projects to generate evidence about disease pathways, healthcare delivery, the effects of clinical interventions. Doing so will support and influence clinical dec...
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ftpubmed:oai:pubmedcentral.nih.gov:10464867 2023-10-01T03:57:31+02:00 Laying the foundation for Real-world evidence studies: a case study from Newfoundland and Labrador Badaiki, Winifred Pyper, Evelyn Lester, Kendra Skeard, Janelle Penney, Michelle Shin, Janey Fisher, Brenda Hew, Huong Gulliver, Susanne Gulliver, Wayne Rahman, Proton 2022-09-02 http://www.ncbi.nlm.nih.gov/pmc/articles/PMC10464867/ http://www.ncbi.nlm.nih.gov/pubmed/37650031 https://doi.org/10.23889/ijpds.v7i1.1690 en eng Swansea University http://www.ncbi.nlm.nih.gov/pmc/articles/PMC10464867/ http://www.ncbi.nlm.nih.gov/pubmed/37650031 http://dx.doi.org/10.23889/ijpds.v7i1.1690 https://creativecommons.org/licenses/by-nc-nd/4.0/This work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License. Int J Popul Data Sci Population Data Science Text 2022 ftpubmed https://doi.org/10.23889/ijpds.v7i1.1690 2023-09-03T01:22:31Z The Janssen and Newfoundland and Labrador Health Innovation Partnership (JANL-HIP) was established to carry out Real-World Evidence (RWE) projects to generate evidence about disease pathways, healthcare delivery, the effects of clinical interventions. Doing so will support and influence clinical decision-making in Newfoundland and Labrador (NL). This case study describes the foundational elements necessary for a real-world evidence generation project in NL and may provide learning for the effective execution of real-world studies in other jurisdictions. It uses an ongoing project in psoriatic disease in NL to illustrate the partnership and the benefits of RWE studies. Ultimately, the JANL-HIP RWE project aims to inform decisions that will drive improvements in health outcomes, system delivery, and policy mutually beneficial to health ecosystem stakeholders. Text Newfoundland PubMed Central (PMC) Newfoundland International Journal of Population Data Science 7 1 |
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PubMed Central (PMC) |
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English |
topic |
Population Data Science |
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Population Data Science Badaiki, Winifred Pyper, Evelyn Lester, Kendra Skeard, Janelle Penney, Michelle Shin, Janey Fisher, Brenda Hew, Huong Gulliver, Susanne Gulliver, Wayne Rahman, Proton Laying the foundation for Real-world evidence studies: a case study from Newfoundland and Labrador |
topic_facet |
Population Data Science |
description |
The Janssen and Newfoundland and Labrador Health Innovation Partnership (JANL-HIP) was established to carry out Real-World Evidence (RWE) projects to generate evidence about disease pathways, healthcare delivery, the effects of clinical interventions. Doing so will support and influence clinical decision-making in Newfoundland and Labrador (NL). This case study describes the foundational elements necessary for a real-world evidence generation project in NL and may provide learning for the effective execution of real-world studies in other jurisdictions. It uses an ongoing project in psoriatic disease in NL to illustrate the partnership and the benefits of RWE studies. Ultimately, the JANL-HIP RWE project aims to inform decisions that will drive improvements in health outcomes, system delivery, and policy mutually beneficial to health ecosystem stakeholders. |
format |
Text |
author |
Badaiki, Winifred Pyper, Evelyn Lester, Kendra Skeard, Janelle Penney, Michelle Shin, Janey Fisher, Brenda Hew, Huong Gulliver, Susanne Gulliver, Wayne Rahman, Proton |
author_facet |
Badaiki, Winifred Pyper, Evelyn Lester, Kendra Skeard, Janelle Penney, Michelle Shin, Janey Fisher, Brenda Hew, Huong Gulliver, Susanne Gulliver, Wayne Rahman, Proton |
author_sort |
Badaiki, Winifred |
title |
Laying the foundation for Real-world evidence studies: a case study from Newfoundland and Labrador |
title_short |
Laying the foundation for Real-world evidence studies: a case study from Newfoundland and Labrador |
title_full |
Laying the foundation for Real-world evidence studies: a case study from Newfoundland and Labrador |
title_fullStr |
Laying the foundation for Real-world evidence studies: a case study from Newfoundland and Labrador |
title_full_unstemmed |
Laying the foundation for Real-world evidence studies: a case study from Newfoundland and Labrador |
title_sort |
laying the foundation for real-world evidence studies: a case study from newfoundland and labrador |
publisher |
Swansea University |
publishDate |
2022 |
url |
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC10464867/ http://www.ncbi.nlm.nih.gov/pubmed/37650031 https://doi.org/10.23889/ijpds.v7i1.1690 |
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Newfoundland |
geographic_facet |
Newfoundland |
genre |
Newfoundland |
genre_facet |
Newfoundland |
op_source |
Int J Popul Data Sci |
op_relation |
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC10464867/ http://www.ncbi.nlm.nih.gov/pubmed/37650031 http://dx.doi.org/10.23889/ijpds.v7i1.1690 |
op_rights |
https://creativecommons.org/licenses/by-nc-nd/4.0/This work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License. |
op_doi |
https://doi.org/10.23889/ijpds.v7i1.1690 |
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International Journal of Population Data Science |
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7 |
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1 |
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