Transition of pediatric patients with bronchiectasis to adult medical care in the Northern Territory: A retrospective chart audit
BACKGROUND: Bronchiectasis is increasingly being recognized to exist in all settings with a high burden of disease seen in First Nations populations. With increasing numbers of pediatric patients with chronic illnesses surviving into adulthood, there is more awareness on examining the transition fro...
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ftpubmed:oai:pubmedcentral.nih.gov:10204705 2023-06-11T04:11:43+02:00 Transition of pediatric patients with bronchiectasis to adult medical care in the Northern Territory: A retrospective chart audit Schutz, Kobi L. Fancourt, Nicholas Chang, Anne B. Morris, Peter Buckley, Rachel Biancardi, Edwina Roberts, Kathryn Cush, James Heraganahally, Subash McCallum, Gabrielle B. 2023-04-28 http://www.ncbi.nlm.nih.gov/pmc/articles/PMC10204705/ https://doi.org/10.3389/fped.2023.1184303 en eng Frontiers Media S.A. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC10204705/ http://dx.doi.org/10.3389/fped.2023.1184303 © 2023 Schutz, Fancourt, Chang, Morris, Buckley, Biancardi, Roberts, Cush, Heraganahally and McCallum. https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY) (https://creativecommons.org/licenses/by/4.0/) . The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms. Front Pediatr Pediatrics Text 2023 ftpubmed https://doi.org/10.3389/fped.2023.1184303 2023-05-28T00:56:35Z BACKGROUND: Bronchiectasis is increasingly being recognized to exist in all settings with a high burden of disease seen in First Nations populations. With increasing numbers of pediatric patients with chronic illnesses surviving into adulthood, there is more awareness on examining the transition from pediatric to adult medical care services. We undertook a retrospective medical chart audit to describe what processes, timeframes, and supports were in place for the transition of young people (≥14 years) with bronchiectasis from pediatric to adult services in the Northern Territory (NT), Australia. METHODS: Participants were identified from a larger prospective study of children investigated for bronchiectasis at the Royal Darwin Hospital, NT, from 2007 to 2022. Young people were included if they were aged ≥14 years on October 1, 2022, with a radiological diagnosis of bronchiectasis on high-resolution computed tomography scan. Electronic and paper-based hospital medical records and electronic records from NT government health clinics and, where possible, general practitioner and other medical service attendance were reviewed. We recorded any written evidence of transition planning and hospital engagement from age ≥14 to 20 years. RESULTS: One hundred and two participants were included, 53% were males, and most were First Nations people (95%) and lived in a remote location (90.2%). Nine (8.8%) participants had some form of documented evidence of transition planning or discharge from pediatric services. Twenty-six participants had turned 18 years, yet there was no evidence in the medical records of any young person attending an adult respiratory clinic at the Royal Darwin Hospital or being seen by the adult outreach respiratory clinic. CONCLUSION: This study demonstrates an important gap in the documentation of delivery of care, and the need to develop an evidence-based transition framework for the transition of young people with bronchiectasis from pediatric to adult medical care services in the NT. Text First Nations PubMed Central (PMC) Frontiers in Pediatrics 11 |
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Pediatrics |
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Pediatrics Schutz, Kobi L. Fancourt, Nicholas Chang, Anne B. Morris, Peter Buckley, Rachel Biancardi, Edwina Roberts, Kathryn Cush, James Heraganahally, Subash McCallum, Gabrielle B. Transition of pediatric patients with bronchiectasis to adult medical care in the Northern Territory: A retrospective chart audit |
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Pediatrics |
description |
BACKGROUND: Bronchiectasis is increasingly being recognized to exist in all settings with a high burden of disease seen in First Nations populations. With increasing numbers of pediatric patients with chronic illnesses surviving into adulthood, there is more awareness on examining the transition from pediatric to adult medical care services. We undertook a retrospective medical chart audit to describe what processes, timeframes, and supports were in place for the transition of young people (≥14 years) with bronchiectasis from pediatric to adult services in the Northern Territory (NT), Australia. METHODS: Participants were identified from a larger prospective study of children investigated for bronchiectasis at the Royal Darwin Hospital, NT, from 2007 to 2022. Young people were included if they were aged ≥14 years on October 1, 2022, with a radiological diagnosis of bronchiectasis on high-resolution computed tomography scan. Electronic and paper-based hospital medical records and electronic records from NT government health clinics and, where possible, general practitioner and other medical service attendance were reviewed. We recorded any written evidence of transition planning and hospital engagement from age ≥14 to 20 years. RESULTS: One hundred and two participants were included, 53% were males, and most were First Nations people (95%) and lived in a remote location (90.2%). Nine (8.8%) participants had some form of documented evidence of transition planning or discharge from pediatric services. Twenty-six participants had turned 18 years, yet there was no evidence in the medical records of any young person attending an adult respiratory clinic at the Royal Darwin Hospital or being seen by the adult outreach respiratory clinic. CONCLUSION: This study demonstrates an important gap in the documentation of delivery of care, and the need to develop an evidence-based transition framework for the transition of young people with bronchiectasis from pediatric to adult medical care services in the NT. |
format |
Text |
author |
Schutz, Kobi L. Fancourt, Nicholas Chang, Anne B. Morris, Peter Buckley, Rachel Biancardi, Edwina Roberts, Kathryn Cush, James Heraganahally, Subash McCallum, Gabrielle B. |
author_facet |
Schutz, Kobi L. Fancourt, Nicholas Chang, Anne B. Morris, Peter Buckley, Rachel Biancardi, Edwina Roberts, Kathryn Cush, James Heraganahally, Subash McCallum, Gabrielle B. |
author_sort |
Schutz, Kobi L. |
title |
Transition of pediatric patients with bronchiectasis to adult medical care in the Northern Territory: A retrospective chart audit |
title_short |
Transition of pediatric patients with bronchiectasis to adult medical care in the Northern Territory: A retrospective chart audit |
title_full |
Transition of pediatric patients with bronchiectasis to adult medical care in the Northern Territory: A retrospective chart audit |
title_fullStr |
Transition of pediatric patients with bronchiectasis to adult medical care in the Northern Territory: A retrospective chart audit |
title_full_unstemmed |
Transition of pediatric patients with bronchiectasis to adult medical care in the Northern Territory: A retrospective chart audit |
title_sort |
transition of pediatric patients with bronchiectasis to adult medical care in the northern territory: a retrospective chart audit |
publisher |
Frontiers Media S.A. |
publishDate |
2023 |
url |
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC10204705/ https://doi.org/10.3389/fped.2023.1184303 |
genre |
First Nations |
genre_facet |
First Nations |
op_source |
Front Pediatr |
op_relation |
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC10204705/ http://dx.doi.org/10.3389/fped.2023.1184303 |
op_rights |
© 2023 Schutz, Fancourt, Chang, Morris, Buckley, Biancardi, Roberts, Cush, Heraganahally and McCallum. https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY) (https://creativecommons.org/licenses/by/4.0/) . The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms. |
op_doi |
https://doi.org/10.3389/fped.2023.1184303 |
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Frontiers in Pediatrics |
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11 |
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