Engagement and partnership with consumers and communities in the co-design and conduct of Research: Lessons from the INtravenous iron polymaltose for First Nations Australian patients with high FERRitin levels on haemodialysis (INFERR) clinical trial.

• Published in: Research Involvement and Engagement
• Main Authors: Long, Stephanie, Ross, Cheryl, Koops, Joan, Coulthard, Katherine, Nelson, Jane, Shapkota, Archana Khadka, Hewett, Leiana, Tate-Baker, Jaclyn, Graham, Jessica, Mukula, Rose, Tetteh, Cynthia, Hoppo, Libby, Cherian, Sajiv, Pawar, Basant, Chmielewski, Heidi Lee, Gold, Lorna Murakami, Rathnayake, Geetha, Heron, Bianca, Brewster-O'Brien, Teana, Karepalli, Vijay, Maple-Brown, Louise, Batey, Robert, Morris, Peter, Davies, Jane, Fernandes, David Kiran, Thomas, Sajan, Abeyaratne, Asanga, Lawton, Paul D, Barzi, Federica, Taylor, Sean, Mayo, Mark, Cass, Alan, Majoni, Sandawana William
• Format: Manuscript
• Language: English
• Published: BioMed Central 2024
• Subjects: Aboriginal and/or torres strait Islander peoples; Clinical trial; Communities; Consumers; Engagement; First nations peoples; Haemodialysis; INFERR; Partnership; Reference groups; Research; First Nations
• Online Access: https://doi.org/10.1186/s40900-024-00608-9; https://pubmed.ncbi.nlm.nih.gov/39010175; https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11250943/

Engagement and partnership with consumers and communities throughout research processes produces high quality research meeting community needs and promoting translation of research into improved policy and practice. Partnership is critical in research involving Aboriginal and/or Torres Strait Islander people (First Nations Peoples) to ensure cultural safety. We present lessons from the design, implementation and progress of the National Health and Medical Research Council funded INtravenous iron polymaltose for First Nations Australian patients with high FERRitin levels on hemodialysis (INFERR) clinical trial.